| Re: infantile pckd
i have to ask if you have really researched this at all?if you have,you know that having the recessive form in an unborn,well,the odds are not good hon.i hate to tell you that.just how enlarged are the kidneys?there is the autosomal dominant type and the recessive type.kind of the same but also very different in just how they actually present and what takes place when this is found in an unborn child.just what have your doctors told you about the baby so far,any new therepies or anything availiable?i really am sorry this was found in your child.as you are already doing here,you really need to do your research on this.there is ALOT of info out there on it.i was kind of hoping that they had come upwith something new to try and be able to treat this some way in newborns.i researched both types back in 99 very heavily when my son(he was then 12 and had just presented with liver failure) was Dxed with the autosomal dominant type then so was i.i know the info i did see on the recessive was very sad and very dissappointing.it sounds from what you were told that not alot has actually chaneged in this area,for that,i truely am so very sorry.have the docs given you ANY real hope at all for a different outcome,any?marcia
Last edited by feelbad; 03-07-2008 at 08:44 AM.
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