Hi, I hope someone can help me. I just had a baby in January. During my pregnancy, I was in the hospital for a total of about 5 months. It started with a 4mm kidney stone, they put in a stint, and I had it for 2 months, it caused constant pain, so severe that I could barely walk, and I did not leave my house the entire time. I finally made them take it out, and 2 days later, my ureter had closed shut, and I had pseudomonas, I was in ICU for a week, and they said I was close to dying, after that I had formed about 20 stones, and had about 8 different bacterial infections, so they put in a nephrostemy tube, and when they tried to remove it, it had become calcified, and I had to have lithrotripsy to remove it. After I had the baby the infections went away, but I still have a few stones in the kidney and ureter. I stay in constant pain, my uroligist has given up, they say that if a stone is not blocking the urine flow, then I shouldn't be in pain, but I have had another doctor tell me that, that is not true, that a stone can cause pain, no matter where it is. but the pain I have does not feel like your regular severe stone pain, it is more like a constant dull pain, it almost feels like it takes my breath away, like someone is hitting me in the kidney, but the pain can be anywhere from high in my back, near the inside of my shoulder, to the front, just below my sternum, and all down the ureter, I have had a several sono's, cat scans, and IVP's, but they just show kidney stones, no gall stones. I read about a disease called berger's disease on Discovery Health. com, should I have a biopsy done on the tissue of the kidney, I'm worried about kidney failure later on in life if this continues, is this a logocial worry? Someone please help, by the way, I am a 24 yr. old female, is this more common in women, than men?
[This message has been edited by leo in pain (edited 07-13-2002).]
[This message has been edited by leo in pain (edited 07-13-2002).]
Hello Jen. I read your post and am sure sorry to hear you have been dealing with all these problems especially after having a baby. I havn't had any of these problems, but I do understand what you are going through. I have been having similar problems with my 16 yr. old. She had her IV P this morning and I am waiting to hear from the Doc. Have they found the cause of your problems yet? Have you had any other symptoms? I would like to hear from you. Oh, by the way, CONGRATULATIONS!
I cant believe all that you have gone through, I am so sorry I wish I had answers to give you. I had my first kidney stones at 19, and have had 10 since, Im now 27. I wanted to thank you because you have finally given me the info I needed about having kidney pain with a stone that is not backing up the kidney. I have gone to my uroligist multiple times complaining of kidney pain, VERY similar to yours, and was sent away with the answer that "if the stone is not blocking the urine flow than you should be feeling no pain" apparently they have never had kidney stones before. Good luck with your search and thank you for letting me know Im not the only one that has pain with no blockage.
Thank you for your care and consideration.
Originally posted by browniz: Hello Jen. I read your post and am sure sorry to hear you have been dealing with all these problems especially after having a baby. I havn't had any of these problems, but I do understand what you are going through. I have been having similar problems with my 16 yr. old. She had her IV P this morning and I am waiting to hear from the Doc. Have they found the cause of your problems yet? Have you had any other symptoms? I would like to hear from you. Oh, by the way, CONGRATULATIONS!
Thank You for the congrats. They have not found what the cause of all my pain is, but I lost my insurance, and haven't been able to go back to the doctor. I am sorry about your daughter. I was about the same age when I got my first kidney stone. If you have never had a stone, the only thing that I can compare it to , is child birth. And that is the honest truth, so be very compassionate to what your daughter is going through. Tell her that during a bout of a stone moving, the best thing is a heating pad, but I found that if I get a hand towel and get it wet and put it in a baggie and heat it in the microwave for about 30sec - 1 min it does help a little more because it gets hotter. oh, and F.Y.I I have found out that normally when you have kidney stones you will probably have gall bladder problems too, now even though my sono's did not show any gall stones, I have someone tell me that they went through the same thing, and none of the sono's showed any gall stones, that they finally found them with an upper G.I. So when I get insurance I am going to have that done. And tell your daughter to drink nothing but water, not tap water because thats bad for you too, but get some filtered water that will help.
I would have thought it sounded like agulstones being pain up by the shoulder blade, but if it not there then it obviously isnt. Ive been getting kidney stones since I was about 15, and have had continuous lithurtripsy and stuff, im now 21. Im6 months pregnant at the moment, and had to go back to see about kidneys the other week. I tried to explain that I had the pain theer then, it was also up by the shoulder blade, but he said that it couldnt be. I had a stone gotten rid of about 5 months ago( b4 I knew I was preganat)and he said that it is impossable for one to develop in that time? anyone any ideas on this then. Ive had them develop a lot quicker than that in the past, but he just insisted on that. Just have to wait now until after the baby is here to see him again. Im glad im not othe only one that finds it there as wel then. I really hope that they can find the reason for you, if they say it cant be because the stones, all the best with it.
I am 31 years old and have passed 29 kidney stones thus far. I currently have 5 more that I am working on passing with 4 of those being in the kidney. I have lots of experience with these things and I can tell you from my experience that I have pain when the stones are still in the kidney. The pain varies and can be described as constant and dull mostly, however at times it tends to feel as if I am being punched over and over in that kidney and then at times it feels as if someone is sticking me with pins and needles. Dont let a Dr tell you that you shouldnt feel pain when the stones are still in the kidney because that just isnt always true and everyones experience is different. Pain is a symptom that something isnt right with your body and a stone in your kidney is not the normal makeup of the kidney. There are a few things that can help with the pain such as heat application, whirlpool if thats available to you and then if all else fails you should talk to you Dr about some type of pain medication. I have found several of the non narcotic meds work pretty good such as ultram or ultracet. Good luck in your answers for your pain and God bless.
Life is no laughing matter, but can you imagine life without laughing?
I can't tell you how much this sounds like our case. We almost lost both the baby and my wife. It started at 22 weeks along and contiune thru the whole preg. Her stent got embeded and was encrusted the WHOLE length. No one yet that we have see or talked to has seen this massive amount of stones on a stent in just 2 1/2 months. She has been producing stones daily for 8 yrs now. And we can't get anyone to help. She also had preeclamsia, seizures, placenta abruption, and then eclampsia. They had to induce labor early cuz again she was in danger of dying. She has been to several pain centers even out of state. She produces every kind of stone and it always is changing. 28 surgeries even open. Still dealing with this. And fighting Drs about something for pain all the time. I would like to know more about your case. Hang in there!! It does make you stronger..(grin)
I am currently 7 mos pregnant with my first child. At about 5 mos I started experiencing extreme kidney pain. At first I was told that I possibly had kidney stones. Now, after a CT Scan the Dr.s have discovered that I have a blood vessel growing over top of the right ureter, not allowing the kidney to drain. I now have a Nephrostemy tube in my back. Last Monday I went to have the tube changed out after 6 weeks, and it become so calcified and encrusted the Dr had an extremely hard time getting the tube out. Needless to say, 2 1/2 hours later it was replaced and almost a week later I am stilll in an extreme amount of pain and sore. Does anyone know if there are certain things I can avoid such as foods, drinks, etc... to decrease the amount of calcification I have?