Why did they say that they were taking it out and why right now? My 4 yr old daughter was just diagnosed with this on Mon. and our dr. said he think there was any need to do anything like that. BUT i did find a couple of sights that mentioned precancerous cells.
i looked at your message again and think that i totally missed your question. We were told that it just meant that her left kidney was substantially smaller than it should be. According our dr. he said that if the other kidney is fully functioning and fine then it wouldn't be a problem. We have to have more blood work done to see if her right kidney is filtering and a nuclear renal scan to trace the process of her renal organs - kidney, bladder, urethra etc. What i don't get is the high blood pressure. i see it online with kidney disorders but i can't make the connection. Have they tested his other kidney BEFORE they take the small one out?
weve had all those tests and more! It sounds like you are just beginning the journey that we've been on since september of 2002.
they say the left one is non functioning and that the right is compensating for the left not working.
Hypertension is one of the first things that usually happens in kidney disorders. In fact I just read the other day that most children who have hypertension are checked for some sort of kidney problem first.
so anyway the pediatric urologist we saw said that if my sons bp would of been fine then he would consider leaving the "nub" of a kidney in there but since its most likely the cause of the high bp then it needs to come out.
sidenote: my son was a preemie. he was born seven weeks early and was put on a vent at birth for underdeveloped lungs. well babies put on a vent are also given a "line" in their belly button. well that line they think very probably caused a blood clot to go to his left kidney therefore killing the kidney. this is called Renal Vein Thrombosis. but it was a price we had to pay for him to be able to breathe at the time so it was worth it.
So did the dr actually tell you that your daughter has hypoplastic kidney or dysplastic kidney? weve been told both of those things by two different doctors and from what i can find they arent the same ?????????
so I dont know yet if they are saying that my son has both of those things or if they are just assoiciated those words with the same disorder
With renal failure and blood pressure it is still quite a 'chicken and egg' situation. It is possible to have renal problems due to high blood pressure, however, it is also possible to get renal problems first, that then go onto cause blood pressure problems.
The heart is also involved in blood pressure control, but the kidney is also involved via what is known as the Renin-Angiotensin-Aldosterone pathway. In basic terms, when your blood pressure drops, this pathway with help your kidneys hold onto more water and sodium and stop you passing urine, so if you hold onto more water, then your cirulating blood volume increases and your blood pressure will go up. The Angiotensin also cause vasoconstriction of blood vessels and if this happens blood pressure also goes up.
Basically, you will have hypertension if your kidneys fail, as the Renin is released from cells within the kidney and if they are damaged, then this cannot happen. It is also true that some renal patients have uncontrollable blood pressure and the only way in which to resolve this is sometimes to remove the kidneys.
I don't know whether you have heard of blood pressure tablets called ACE inhibitors? Well these work directly on the kidneys and are called Angiotensin Converting Enzyme inhibitors. When blood pressure falls, the justaglomerular apparatus of the kidney releases Renin, which works on angiotensinogen (a plasma globulin made by the liver, to release angiotensin 1). Angiotensin I is then converted to Angiotensin II by Angiotensin Converting Enzyme. Angiotensin II is a vasoconstrictor and it is at this level that ACE inhibitors work, by preventing the conversion of Antiotensin I to Angiotensin II.
Hope this helps and if you want to read more you can find the information in any good physiology text book such as Marieb?
i fear that you are right about us just starting this journey. We are going to a specialist at UVA next week. i can't find a formula or calculator or chart to tell me what children's blood pressure ranges are - so how do i know if it is high or not - obviously if the dr says but if it isn't today can it be high next month? our dr. thinks that this was a birth defect kind of thing for our daughter. her right kidney is still in the normal range it makes me wonder if it has been that long and/or wonder why it isn't bigger? he says there is know reason to check our son. another big fear is the fact that diabetes is prevalent in my husbands family to the extreme. i hope that the surgery goes well. if you get a chance please tell us any thing you find out.
funny you should mention diabetes. it is very prevalent in my family as I am a diabetic as well. my siblings are all diabetics my aunts and uncles my father my grandma.... the list goes on, so that was my first concern.
Our nephrologist/urologist wants my sons bp to be 113/70 or below. hes five years old and weighs 40 pounds they asked me that when we talked so I wonder if that makes a difference.
I will get back on here when we get home after the surgery and let everyone know how it went. we are only supposed to be there for one day. barring no unforseen problems.
We went to UVA this week and gave a 24hr urine sample and another blood test. The nephrologist said that her creatinine level was a little high and that her right kidney was not as big as he thought that it should be at this point. HOWEVER, when he put her weight, height and etc into a formula it came out that he estimates she has 95% of her kidney function !! He wants to check her for reflux by a catheter test and do the nuclear scan the same day. Her bp is fine for now and he only talked about taking it out if she has the reflux problem. So far so good...
Julane, you mentioned that you did not understand the blood pressure problem connection to the kidneys. Kidneys control the blood pressure. I have a kidney disorder, so was told that by the doctors. Hope this helps.
tosharp - we took our daughter to UVA adn had the vcug and the nuclear renal scan done. They said she has reflux on the left side (the small kidney) and that it is damaged. They said it is only doign about 3% function. They suggest taking it out to prevent the high blood pressure andthey want to checkour son (he's one)because it is hereditary. Can you tell me anything about the surgery?????? My how things have changed. I am glad we went to a specialist...Julane
hi, i had a hypoplastic kidney for 37 years and only found out about it by accident. Kidney was successfully removed in 2003 and i'm now fine. managed to have 3 healthy children in that time too. unfortunately blood pressure is now on the increase and i have just gone on medication. hope this helps anyone out there.