kidney reflux - Kidney Disorders Message Board

jenn0911 · 07-22-2003, 07:40 PM

My 4 year old was diagnosed with grade 2 kidney reflux in her right kidney with no reflux in her left now she has grade 4 in her right kidney and from nothing to grade 3 in here left and I was told that nothing could be done to help her until she reached grade 5 in either of kidney now the are enlarged and the right one has alot of cysts inside the kidney please any advice would be great thank you

Sehsun · 07-29-2003, 04:07 PM

Wow, grade 4-5 are the highest for vesicoureteral reflux. I have grade 2 on my left kidney, and the only thing that I can do is keep taking antibiotics to prevent infections from occurring. Has your daughter's doctor given her antibiotics? Are the cysts affecting the kidney's function? People can live perfectly well lives on one kidney, in case one needs to be taken out. I think you should talk to your child's doctor about your concerns and get other opinions from other doctors as well. Good luck!

jesfriday · 08-01-2003, 08:48 PM

My daughter had grade 3 reflux in one side. They gave me two options, antibiotics or surgery. I chose surgery and am glad I did because in the hospital my daughter roomed with a 7 year old that had relfux for 3 years and was told she didnt need surgery. She finaly got a second opinion and had the surgery. Sadly she already has a signifigant amount of damage to her kidneys.

jenn0911 · 08-02-2003, 12:20 AM

That is what I am going through now with my daughter I asked my family doctor to send me to a specialist and he sent me to a pediatrician and the peditrician told me she would be on medication for awhile and she has been on so much I do not want to put her through any more it has been to long she was diagnosed with grade 2 reflux in her right kidney shortly after her first b-day with nothing in her left and now both are affected the right being the worst and now probably so damaged there is no way to fix it I just worry so much because I see her in so much pain all the time could you please reply back and let me know what happened after your daughters surgury and how big the incision was thank you

pjboucher2001 · 09-25-2003, 10:14 AM

Hi...my 4.5 yo daughter has a Grade 3 on one side and a Grade 4 on the other, just diagnosed in January. She has been on nitrofurantoin since January. We are waiting another year and will be a repeat VCUG to see if it has resolved...if not, she will need surgery. At this point the daily antibiotics are preventing any breakthrough infections.