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Old 03-22-2009, 12:11 PM   #1
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PKD with 35% kidney function

PKD with 35% kidney function +what can I eat?

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Old 03-23-2009, 09:15 AM   #2
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Re: PKD with 35% kidney function

honestly,just because of where your function currently is at,i would seriously speak with either your neph or even your primary doc about seeing a nutritionist who knows about kidney disease. you just really do need very specific info at the level of loss you are running on right now. that would be what i would do if my PKD was where yours is. thankfully my numbers are still amazingly within all norms despite having USs that look like swiss cheese with some huge huge areas of solid cysts,no good tissue left. still freaks me out in just how this nasty disease actually plays itself out. but i certainly would consult with an actual nutritionist at this point for the best possible advice. they would know. i do wish you luck and hope the numbers don't go any further anytime soon. marcia

Old 03-23-2009, 09:44 PM   #3
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Re: PKD with 35% kidney function


Whoever the person was who diagnosed you, should have referred you to a nephrologist (kidney specialist). The nephrologist, in turn, will no doubt refer you to a ''kidney nutritionist''. You are going to need one of them ASAP. I don't want to scare you, but no doubt you'll need to be on a kidney diet, according to your GFR result. This is no easy diet. On the contrary, it's hard. But it IS DOABLE! It basically involves cutting out (as much as possible), potassium, phosphorous, sodium, protein. You will be given literature explaining all this in more detail, I'm sure. Are you also diabetic? You will also have to keep your blood pressure under very good control.

Hope this helps. Get to the neph pronto!

Good Luck,


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