Proteinuria and biopsy - confused and afraid
Hi, I’m hoping someone might be able to help me. In February, my son had a urinary tract infection, and when he went to his family doctor, he did a dip-stick test that should the presence of protein. On his follow up a month later, they did another one which also showed protein, so we were referred to a nephrologist. We really thought this was nothing more than a ‘better safe than sorry’ situation, but on our first visit, the nephrologists told us that our son likely had IgA Nephropathy. To be honest, he terrified us. Our son was to take a 24hr urine and come back. Well, the test didn’t go well. Here are his numbers:
Electrophoresis was normal and so was immunofixation.
He gave us the results on our second visit and told us he needed a biopsy asap. He hasn’t had any other tests besides this one 24hr. urine and the dip-stick tests. I know that he has something wrong, and he has had repeated illnesses since he was about 8, but we are really afraid about him having a biopsy, because he does get infections so easily. Here are my main issues with the Dr., the test, and the upcoming biopsy:
1. He had bronchitis and a sinus (infection?) at the time of the test – couldn’t the numbers be higher than normal because of this? (The Dr. said it didn’t)
2. I asked whether his repeated bouts with bronchitis, pneumonia, etc., were connected or had any thing to do with the kidney issue, and he said no.
3. I read that he should be completely free of infection and not taking any meds for two weeks before the biopsy, but he has bronchitis, and he is taking meds for that.
4. When I asked if there was anything we could be doing now, diet, rest, anything, he said no, he could eat or drink whatever he wanted.
Our son is otherwise very healthy. Perfect blood pressure, normal weight, etc. He just has these bouts of illnesses once or twice a year. We had only two visits, and we feel like we’ve been blindsided – he left us confused and terrified, like this is a death sentence. We haven’t slept, we haven’t eaten and all our energy is used trying to look like everything’s fine in front of our son. We are trying to get a referral for a second opinion.
If any of you have any insight, or maybe have IgA, it would be so greatly appreciated. Some hope would be really nice right now. We feel so helpless.
Thank you for listening and sorry this is so long.