I realize that there are probably a ton of posts about this, but I need some personalized advice. I'm grasping for straws here
Ever since I was 16, I've been having issues with kidney stones and UTIs (usually pyelonephritis). I went a few years without any kidney stones (which was wonderful!) until last year (2008) I started having that unmistakable stone pain. I ended up having 2 stones, one in each kidney (my stones have almost always been in the left kidney/ureter) and had Lithotripsy (ESLW) and ureteroscopy with 2 stents placed. I had a bad reaction to the stents and ended up having kidney and ureter spasms (WORST pain I've ever been in! It made the stone pain seem like a simple headache!). After last summer, I went the rest of the year without any stones or any major kidney pain (I still got the UTIs).
Unfortunately, my time without having pain was too short. As I said before, I get UTIs all the time, so when I have any symptoms that could indicate an infection, I see the doctor right away to have it treated. This past April, I developed symptoms of an infection and decided to see the doctor about 2 days later. Over those 2 days, my symptoms got exponentially worse. Due to the rapid progress of my symptoms, my doctor decided to be aggressive and treat me with a strong dose of Cipro (I'd been on Cipro before and never had a negative reaction). Unfortunately, the Cipro didn't help me over the next couple of days. My symptoms continued to get worse, so I decided to go see my Urologist. While at my Urologist's office, I collapsed in his office and was admitted to the ER for Acute Renal Failure. I'd never had (or was aware of) kidney failure and was really worried. My creatinine levels went from 0.6 to 1.8 and my functioning level was about 50%.
The next 4-5 months were horrible. I was in a lot of pain. nothing
got rid of the pain! I even went on a Fentanyl patch to help maintain it and that still didn't work by itself (I had to take hydrocodone along with the Fentanyl). I've had an infection every month (excepting for August) since my problem in April.
My pain is so far manageable, but the frequent infections concern me more than the pain. They have no idea why I keep getting them and what caused my kidneys to fail in the first place.
I guess my question is this: Has anyone ever had this problem? If so, how did you deal with it/handle it/fix it? Does anyone have any insight on what could be causing this problem? Neither my urologist or nephrologist can figure what's going on.
I'm only 22 (closer to 23) and I'm tired of having problems with my kidneys that people much older than me usually get. Any
feedback is welcome!
Thank you for taking the time to read this!