Re: Kidney Stones and Randall's Plaque
I know I am a little late to this discussion but I thought I'd throw my experiences in for others with the same issue.
I have had stones since I was 17. I would get a flareup about twice a year that was bad enough to send me in to the hospital due to the pain. About two years ago they became much more frequent and there also was an added constant level of discomfort.
The next time I was in Emerg. they sent me for a CT which showed rather a lot in there so I finally broke down and went to a Urologist. He decided to do a laser lithotripsy procedure (laser with a camera inserted up the urethra, Pew Pew!) when he got "up" there he found that most of them were attached plaques and was unwilling to try and detach or break them up due to the danger to the kidney its self.
By the way, this procedure is very uncomfortable and was worse then the stones had been for about 2 days afterwards.
The Urologist discussed this with me and basically said that there is little that can be done other then a low oxalate diet and drinking plenty of fluids. (I aim for about 6 L a day.) He also told me that discomfort and pain are not uncommon as the plaques can crack and nick the interior of the kidney, which hurts in a similar fashion to passing a stone though a little different. It is hard to explain but I can tell the difference between the two.
I rarely see the Urologist now as it really isn't necessary as there is nothing he can do. My GP has taken care of pain management with a combination of Nortriptyline (30mg once daily before bed) and Cymbalta (30mg once daily) daily for the low grade pain (this is surprisingly effective). For acute pain (When it's really bad it is Diclofenac (AKA Voltaren) (30mg up to three time daily) and Hydromorphone (AKA Dilaudid) (4mg every 4 hours when needed) This is usually enough to beat the pain into submission though from time to time even this isn't enough and in to Emerg. I head for IV Hydromorphone.
I have been on the diet for a little over a year and there has been some reduction in the frequency of the acute attacks but I have not noticed a reduction in the chronic pain.
In the grand scheme it really ins't the worst thing that could happen. I'm not dead and this isn't going to kill me.