No, we still have not found out anything.
I am sorry to hear that your child is going through the same thing. They have continued her on antibiotic therapy. We recently just switched to bactrim as the macrodantin was no longer sensitive to it. Antibiotic resistance is said to be present when an organism which previously responded to an antibiotic (such as the macrodantin) would become immune to the drug and no longer responds to it as it did earlier. We do everything we can to prevent infections. The whole process is very frustrating.
Not having any answers and the doctors plan of action is not something I am happy with. I drive two hours to the urologist because they are suppose to be the best (U of M) but they still seem to have no answers, just medicine. Even on the medicine she still keeps getting infections but they do not know what is causing it and keep saying "hopefully she grows out of it." They plan to get her infection free for 6 months and then take her off the antibiotics. Although she has not ever made it 8 weeks alone 6 months. I hope that you do find answers because it is horrible watching your child go through any kind of illness. Here are a few things I wish I would have known from the beginning:
1. When your child shows signs of infection, rather it be painful urination, fever or vomiting, get a urinalysis. Even if the results of the urinalysis are negative have the doctor/lab send it for culture. Even with a negative urinalysis there can be bacteria growing. With my daughter I know when she has an infection, there was many times we went to the family doctor and it came back negative, where I would sit back and scratch my head. I later found out from one of the urologist that because she is on antibiotic therapy that it can have an impact on the results. Now, she has had several negative urinalysis that were sent for culture and ended up growing bacteria.
2. Keep logs of everything. I have logs that I write down every urination, bowel movement, infection, changes in medication, etc. It might sound like alot of work but it is worth it. I have it hanging on our bathroom wall so everytime she goes to the bathroom I can write it down. I
3. I know it is hard to not give a toddler sugar, especially chocolate but it really seems to keep infections down.
4. You have to make sure that they have loose stools (pudding like). You do not want any stool staying in the body where bacteria can grow. In addition a high fiber diet.
5. Keep the bladder empty. Kids are in a hurry when they use the bathroom they have better things to do. When sitting on the toilet make sure they have a stool to put their feet on. They need to relax every muscle in the body to completely empty their bladder. Make sure they sit long enough to completely empty it.
I will be praying for you and hope that you have answers soon.