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Old 09-05-2011, 09:55 PM   #1
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stage 4 reanal failure

I have had renal failure for a couple of years but was in denial for one of them. I wish I hadn't been and had started dialysis sooner. I have now been on dialysis for about a year. At first it was ok, but about 5 months into it I stopped urinating which brought on alot more problems like retaining fluids in my legs and feet. By the end of the day they hurt so bad that the only thing that will help them is to go to bed. I still have a catheter in my chest because my veins will not support anything in my arms. I have just started the transplant procedure and I am hoping and praying for a donor. I do have siblings that are willing to test. This can't come soon enough because I do not fair well in dialysis.....

 
Old 09-06-2011, 06:30 AM   #2
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Re: stage 4 reanal failure

Hi and welcome. I was in the same boat as you. I didn't start dialysis soon enough, had a neck line, and didn't fare well on hemo. Have you thought about peritoneal dialysis? It is much easier on your body. It would involve a small surgery for the catheter to be inserted, but it's not a big deal.

I was on hemo for 1 year and my cousin gave me a kidney (on her birthday if you can believe it). I am now almost 9 years post transplant and am doing well. Feel free to ask lots of questions. There is good support here.
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Last edited by Administrator; 10-01-2011 at 11:29 PM.

 
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Old 09-14-2011, 01:51 AM   #3
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Re: stage 4 reanal failure

Hello there, I am curious to find out more about your situation. My dad is in stage 5 renal failure, but he has not had to start dialysis. He got his first fistula this week in his left arm, but we do not expect him to start dialysis asap.
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Old 09-29-2011, 12:01 AM   #4
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Exclamation Re: stage 4 reanal failure

Quote:
Originally Posted by Jrobaby View Post
Hello there, I am curious to find out more about your situation. My dad is in stage 5 renal failure, but he has not had to start dialysis. He got his first fistula this week in his left arm, but we do not expect him to start dialysis asap.


Hope I am not too late
Stage 5 is the most critical stage.

You have to identify the cause of disorder whether it is chronic or acute.
Better get your dad confined in the hospital..

If it is acute, there is still hope for full recovery...check if the kidneys shrunk ..do a full abdominal test if you still have time..

To reverse the failing kidneys, your doctor may first use steroid transfusion
and inject diuretics to help release some water...Hemodialysis is next...
If you perform dialisys before taking steroids, there is a possibility that your creatinine level and Blood nitrogen urea(BUN) may go up!

If it is chronic...your best option would be stem cell and kidney transplant.

Hope the information is helpful.
Good luck to you dad

Regards,
spadia

 
Old 09-29-2011, 11:59 AM   #5
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Re: stage 4 reanal failure

Thank you for your concern! To ease your worry, he has PKD and has known since he was 20 or so. He is already on the waiting list and sees his various doctors every couple weeks. All we can do now is help control the symptoms and wait for his name to hit the top of the list!
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Old 10-01-2011, 11:07 PM   #6
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Re: stage 4 reanal failure

For the mean time, try to keep his BP within 125/80
If I am not mistaken, there is currently no cure for PKD.

So it waiting is not a very good option.
Good luck!

Last edited by Administrator; 10-01-2011 at 11:30 PM.

 
Old 10-01-2011, 11:25 PM   #7
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Re: stage 4 reanal failure

Quote:
Originally Posted by Jrobaby View Post
Thank you for your concern! To ease your worry, he has PKD and has known since he was 20 or so. He is already on the waiting list and sees his various doctors every couple weeks. All we can do now is help control the symptoms and wait for his name to hit the top of the list!
Hi,

Just make sure to keep his bp within 125/80 or lower.

I am very sorry to hear about the PKD...sounds really bad.
There is no real cure for it yet...not now..

I guess its the only way to go is kidney transplant.

 
Old 10-02-2011, 02:45 PM   #8
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Re: stage 4 reanal failure

Hi, We are very experienced in the PKD lifestyle, but thank you for your thoughts :-) He has his own kidney specialist that keeps tabs on him and his blood is drawn every 3 weeks for monitoring. He also just got a fistula which will be used when he has to start dialysis. He has been on every blood pressure medicine there is and nothing wants to do the job like minoxidil does, which is fine with him since it makes his hair grow haha! You are correct, there is no cure. Waiting for a donor kidney is the only option now.
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Old 10-03-2011, 05:40 PM   #9
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Re: stage 4 reanal failure

Hi jrobaby,

Don't worry, kidney transplant is quite safe and common nowadays.
You shouldn't worry too much...if you or your dad wants to have a transplant soon, maybe you can try other countries.

I heard that China's kidney transplant wait time is just two weeks.
Costs are lower as compared to the US.

Looking forward to your dad's speedy recovery.

 
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