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Old 07-16-2012, 11:38 AM   #1
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Unhappy Sad, confused and frightened

Hello, I am a new member who is just searching for advice and shoulders to help me bear some of this weight. I am a 56 year old woman who has been taking blood pressure medications (currently Lisinopril 20mg) for approx. 10 years. I also take a cholesterol med (Lovastatin 10mg) for approx. 4 years, and thyroid med (Levothyroxine 100 mcg). For the past few months I have had unhappy kidney tests. Creatine levels started at 1.6, then 1.11 and have risen slightly again, but don't have the number. Blood pressure is inconsistent(140/86 was the highest) My doctor is setting me up with an appointment with a nephrologist. I am just so sad. Any advice?

 
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Old 07-16-2012, 01:43 PM   #2
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Re: Sad, confused and frightened

My first bit of advice to you is to try to relax. Your creatinine is only very mildly elevated. If you do have kidney damage, it is very early stages and progression can be delayed by seeing a specialist who will help with diet and some meds. In the meantime, try to make sure you are hydrated for any further bloodwork and always make sure you are. That way there will be less fluctuations in results. I would also cut back on sodium. Don't eat processed foods and that should be enough, at least for now.

Best of luck and keep us posted about the appointment with the specialist.
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Old 07-16-2012, 01:54 PM   #3
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Re: Sad, confused and frightened

Cora, I was so hoping it would be you that responded. I have admired your advice, and your positive spirit! Thank you very much. I will keep you posted.

 
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Old 07-16-2012, 02:33 PM   #4
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Re: Sad, confused and frightened

Are you aware of the recent studies on statins? You are doing your body irreparable harm using statins. Your vascular system and levels of ubiquinol (a powerful and necessary anti-oxidant factor Co-Q10) are being damaged, as well as risks to your muscular system and liver.

 
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Old 07-16-2012, 02:56 PM   #5
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Re: Sad, confused and frightened

Deanne, Thank you for reminding me of statins. My liver function was within the normal range. However, my kidney function could be stressing because of the lovastatin. We will find out! I think I will stop eating food. That should help with my cholesterol.

 
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Old 07-17-2012, 04:27 PM   #6
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Re: Sad, confused and frightened

Quote:
Originally Posted by wvjeb View Post
Deanne, Thank you for reminding me of statins. My liver function was within the normal range. However, my kidney function could be stressing because of the lovastatin. We will find out! I think I will stop eating food. That should help with my cholesterol.
The statins are not going to attack the kidneys. But what you should concern yourself with is the depletion of needful antioxidant levels and liver stress and the danger of muscle wastage. Have you tried modifying your diet, getting some excercise? There is a small subpopulationi of patients who do poorly in decreasing cholesterol because of underlying health issues.

 
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Old 07-17-2012, 04:36 PM   #7
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Re: Sad, confused and frightened

Ace inhibitors can actually cause elevations in creatinine, (like Lisinopril) but they don't cause kidney damage. I would wait until you talk to nephrologist, as monitoring may be all that is needed right now. A change in BP meds may be suggested just to see if it is the lisinopril or not.

 
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Old 07-17-2012, 04:40 PM   #8
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Re: Sad, confused and frightened

Hi, I admit that i have not been very good about eating as i should. I really do need to adopted a fat free, low sodium, low protein diet. I really want to get off at least lovastatin. Every pill I put in my mouth now has me scared. I am seeing my reg doctor tomorrow and I will talk to her about that. Thanks.

 
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Old 07-17-2012, 04:43 PM   #9
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Re: Sad, confused and frightened

Hi Ladybug, I believe that is what my doctor is suspecting at this point. She has perscribed a new med Adolpinine (or something like that) but she doesn't want me to take it until my visit with the nephrologist. In the meantime, I am faithfully taking lisinopril, but I am so worried that I am not doing myself any favors. I am just trying to follow the doctors advice. Thank you for your advice. You are absolutely right.

 
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Old 07-17-2012, 06:36 PM   #10
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Re: Sad, confused and frightened

Don't be afraid of the lisinopril. It is an excellent drug. If you end up with extremely elevated creatinine (10 or 20 years down the road) they may take you off. I was on it for a decade before dialysis and I had no side effects. I believe it was the early introduction of ace inhibitors that allowed me to last for decades before I needed intervention.
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Old 07-18-2012, 08:06 AM   #11
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Re: Sad, confused and frightened

Hi everyone, I had a doctor appt this morning to go over the lab results. My creatinine level has gone up again to 1.16 from 1.11 (in a 3 mo. time) and the eGFR went from 51 to 48. My blood pressure was 124/80. Needless to say, my anxiety is getting the better of me. I am still waiting for a call back from the nephrologist's office for an appointment. In the meantime, my doctor told me to continue drinking water, watch my sodium intake, and she gave me a big old bear hug. I still can't believe this is happening to me.

 
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Old 07-18-2012, 09:13 AM   #12
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Re: Sad, confused and frightened

As I told you before, try to relax a bit. I know it's scary, but you need to keep it in perspective. Your cr. went up by 0.05. That could be lab error, hydration or maybe a legitimate change, but it's a miniscule amount. At that rate, it will take a very, very long time to need any intervention like dialysis. While I left it too long, my cr. was about 11.0 before I took the plunge.

In the meantime, I'm giving you a zen bear-hug too to help you feel better (the hug I'd give you if I was there but I'm not so I can't).
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Old 07-18-2012, 09:31 AM   #13
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Re: Sad, confused and frightened

Cora, I think I love you. I am sorry for being such a wimp. I am hoping it is just a matter of changing the blood pressure meds I am currently on. My doctor mentioned that sometimes being on Lisinopril for an extended time (I have on it since I was about 45 yo) could effect the kidney function, and perhaps it is just a matter of finding something else. The nephrologist will help pinpoint the reasons I am sure. Thanks for your support.

 
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Old 08-01-2012, 12:58 PM   #14
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Re: Sad, confused and frightened

Deanne, I asked my doctor about getting off of Lovastatin, and she had no problem. So now I am Lovastatin-free! I am being careful about what I am eating...increased vegetables and fruits and do not drink sodas. My nephrologist appointment is 8/21 and I am going in with a positive attitude that all will be well (though it is still scarey for me). Thank you for your advice.

 
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Old 08-23-2012, 03:08 PM   #15
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Re: Sad, confused and frightened

Hello all, I have an update. The neph was pleased with a recent bloodtest I had. Creatinine serum level went down to 0.98. GFR went up to 59. I am off of lovastatin and the diuretic part of my bood pressure med lisinopril. He suggested that the kidney may be healing themselves, and to be doubly sure, recommended an ultrasound. I should continue taking the lisinopril and my thyroid medication with no changes. I see him in another year. Thanks for your advice and encouragement on this site, it helped me so much.

 
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