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Originally Posted by MoLu Hi Play Hard-
I have a disease called Synovial Chondromatosis which produces benign soft tissue tumors. I have it in the knee. Has your dr said what kind of tumor this is you have? I'm curious if you have a similar disease. Another similar disease is PVNS that causes tumors. Any of these names discussed with you? I too go to an orthopedic oncologist for this and have had several operations. You can read some of my earlier posts under synovial chondromatosis further down this page. I know sometimes the tumor can weaken your knee and the injury is a result of the weakness and not the other way around. Are you scheduled for arthoscopy or open knee surgery? Let me know I'm curious. Good luck to you.
MoLu |
MoLu-
I had my surgery and the tumor was found in the synovium. The oncologist said that the location of the tumor was rare. I am curious about this Synovial Chrondromatosis. I know that you mentioned that the tumor can weaken the knee and an injury can be the result of the weakend knee. I do know that was not the case with my situation. My injury happened as a result of me falling off of a ski lift (I tore my MCL and did some other damage), which I think anyone would have messed-up their knee in that situation. However, the tumor did not show up until about a year after my accident. I'm thinking that either the injury and tumor are totally separate cases or the injury after time stimulated the growth of a tumor.
I did a little reading about this disease and found it interesting that these tumors can form in areas where there is a synovium membrane (knee, hip, ankle, etc...). I had a tumor on my ankle when I was 9 years old, I'm not sure if this was located in the synovium (my surgery report was not that detailed).
Any more information on this condition would be greatly appreciated.
Thanks!