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Old 10-03-2007, 09:27 PM   #1
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Almost 2 Yrs After Tkr, Still Pain!

Hey all. I had a surgery when I was 11 for a dislocated knee cap which always bothered me & then I got arthritis in the joint. After I had gained a lot of weight it really began bothering me & I pretty much had bone on bone. Had my TKR in 2005. Did my PT fine, still hurt, I was told it was muscle pain & it would get better. Doc told me the 1 year mark was the turning point for new knees. At my 1 year appointment I told him that it still hurt. I told him that when I bent my knee & then straightened it there was one point that it felt like my knee cap wanted to pop off like it was spring loaded. He took x rays, said it's fine. He couldn't believe that I was still on pain meds for it & said I should get off of them. Then last February I couldn't take it anymore. I went in & he said that he would put me under & do a manipulation. That's where they bend your knee as far as they can to break up scar tissue. He also said that if that didn't work he'd scope it to see what's going on inside. I had no fever & no real heat coming out of the joint so he didn't think it was infected. So, I had the manipulation, did 6 more weeks of PT...still pain. At my last appointment in May I told him I still had the same pain & the weight bearing exercises made it worse. He ordered more x rays to see if the patella was tracking right in the groove. The x ray techs told me that they couldn't get a good view because my patella was so deep in the groove. They had me sit on the x ray table, bend my knee as far into my chest as I could & they shot the x ray over my shoulder, pointing down towards my knee. This is the only way they could see the patella tracking. I went back into the room & told my doc what they said & wondered if this could be causing my pain? Well, of course he said, your patella is tracking JUST fine, that's not the problem. I then asked if he could do the arthroscopic surgery to check to see if it's scar tissue, a ripped ligament or whatever. He said that doing it might actually do more harm than good & could possibly make more painful scar tissue. For the 1st time he mentioned my weight & told me that the pain might go away if I lose the weight. So I felt that he was just writing me off, PERIOD. I also have Fibromyalgia & Chronic Fatigue so it's really hard for me to be active so that I can lose weight. I have lost 10 pounds since then & there's been no difference in pain. I know that I need to lose lots more but I can't do it over night & this pain is getting to me. Anyone else have this problem?

 
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Old 10-05-2007, 08:44 AM   #2
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Re: Almost 2 Yrs After Tkr, Still Pain!

Oh God, yes! My Mother has been going through absolute hell for the last two years with Doctors telling her EVRYTHING looks fine but bottom line, she's is still in SO much pain after her TKR.

Have they done a bone scan on you to possibly determine if the prosthesis could be loose?

 
Old 10-05-2007, 01:54 PM   #3
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Re: Almost 2 Yrs After Tkr, Still Pain!

No, they haven't. I'm going to send a letter to an ortho doc that I saw when I lived in Wyoming. I have a feeling that the doc who did my surgery saw something he didn't like in my last x ray & that's why he won't do the arthroscope. Is your mother still on pain meds & if so, what kind?

 
Old 10-08-2007, 06:18 AM   #4
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Re: Almost 2 Yrs After Tkr, Still Pain!

My mom has run the gamut of pain meds. There's a bunch of them she can't take because she has an allergic reaction to them. She's mainly on percocet but they really don't help much. She did have complications from staph infection with this TKR but her blood tests have come back fine for a while now.

The whole ordeal has been discouraging and the original surgeon has proven to be a waste. He told her that he knows she's not happy with the TKR and he's not happy with it either but other than that, he had no suggestions. She's now consulting with a fifth surgeon. They all seem to be at a loss. I've never understood why they haven't offered to do an arthroscope to see it something shows. A while ago, they did a test that hinted at possible loosening but they said that for the first 2 years after surgery, the results could look that way.

We're keeping our fingers crossed with this surgeon. He's taking a conservative approach and has asked for all of the results from her previous blood tests. He told her that she probably doesn't want to hear it but the only way to get to the bottom of this just may be to open the knee up again.

Last edited by millpark26; 10-08-2007 at 01:16 PM.

 
Old 10-08-2007, 11:33 AM   #5
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Re: Almost 2 Yrs After Tkr, Still Pain!

Oh my, you're poor mother. How old is she? Percocet is a pretty strong med & should be helping her pain. Do you know exactly where her pain is located? My doctor said that location tell a lot of what's causing it. That's why he says mine is just in the muscles. You would think that your mom's current doc would want to do a scope before he cuts her knee wide open. I just don't get surgeons sometimes! After my last unsuccessful PT stint my doc prescribed me a TENS unit. It does help somewhat but of course it just masks the pain by little jolts of electricity. If your mom doesn't want to have another surgery, maybe she could try a TENS unit for awhile.
My Fibromyalgia doc prescribed me the Norco, 10 mg & I'd cut them in half. I took 1/2 pill at bedtime & also when I was doing activities that kept me on my feet all day. We just bought a house with no yard or fence so we were busy all summer long & I wanted to help my hubby so I'd just pop a pill & work. I haven't had any Norco since the middle of August but my activity level is greatly diminished due to my Fibro & Chronic Fatigue. Having such pain in an area that is supposed to be fixed by a new joint makes one very depressed. I feel for your mom & I hope the new surgeon with find an easy fix to her problem. Bless you for trying to get to the bottom of it with her! Take care.

 
Old 10-08-2007, 01:15 PM   #6
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Re: Almost 2 Yrs After Tkr, Still Pain!

My mom will be 65 this month. Her pain is along the outside and along the bottom side of where her knee bends. Then, she also gets pain down the front of her leg. It always scares me when she starts talking about dying so she doesn't have to endure this pain anymore. She just had her other knee replaced this Summer and thank God things are better with that one.

The percocets really don't do much (according to her...). But as I said, she's been on so many pain meds including morphine patches, oxycodone, etc. She feels that none of these surgeons believe her but I keep telling her that's not the case, she just needs to find the right surgeon that deals with complicated cases.

She's had this pain ever since they put in her device after she had finally been cleared of staph.

Thanks for the suggestion of a tens unit. I've spoken to her about one, too. We're hoping to get to the bottom of this so she just doesn't have to "live with it" as her original surgeon mentioned.

 
Old 10-08-2007, 04:13 PM   #7
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Re: Almost 2 Yrs After Tkr, Still Pain!

She may be building up a tolerance to the pain meds. I hope her pain gets resolved soon.

 
Old 10-11-2007, 11:40 AM   #8
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Lightbulb Hey Millpark! Almost 2 Yrs After Tkr, Still Pain!

Millpark,
Yesterday I was going down the stairs the "granny way" like I always do. I know it's going to hurt doing the stairs normal so I rarely do it. I took a deep breath & went for the gusto! As I came down on my replaced knee it felt as though the prosthesis joint slid sideways. Like the femur went one way & the tibia went the opposite way. It hurt like holy heck for the rest of the day & the clunking sound it much worse. It is actually audible now. I had an epiphany, my Doc is so arrogant that he doesn't want to take blame for the failed surgery (he doesn't call it that, but I do). I think I might try to fall down the stairs ( gracefully as not to hurt myself too badly) & call him to tell him I hurt my knee. Then he might do more testing & if my prosthesis is loose, he can blame me! Silly isn't it the thoughts that run through our minds when we're in so much pain & our Docs won't listen.
Has your mother ever mentioned that she would like to just get her leg amputated at the knee so the pain will go away?

 
Old 10-24-2007, 07:08 AM   #9
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Re: Hey Millpark! Almost 2 Yrs After Tkr, Still Pain!

Oh, you don't know how many times she's talked about taking a hammer to the knee or just dying so she doesn't have to deal with this ongoing mess anymore. Have you gone to another surgeon?

Last edited by millpark26; 10-24-2007 at 07:09 AM.

 
Old 10-25-2007, 04:56 PM   #10
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Re: Hey Millpark! Almost 2 Yrs After Tkr, Still Pain!

Quote:
Originally Posted by leeleelanilou View Post
Millpark,
Yesterday I was going down the stairs the "granny way" like I always do. I know it's going to hurt doing the stairs normal so I rarely do it. I took a deep breath & went for the gusto! As I came down on my replaced knee it felt as though the prosthesis joint slid sideways. Like the femur went one way & the tibia went the opposite way. It hurt like holy heck for the rest of the day & the clunking sound it much worse. It is actually audible now. I had an epiphany, my Doc is so arrogant that he doesn't want to take blame for the failed surgery (he doesn't call it that, but I do). I think I might try to fall down the stairs ( gracefully as not to hurt myself too badly) & call him to tell him I hurt my knee. Then he might do more testing & if my prosthesis is loose, he can blame me! Silly isn't it the thoughts that run through our minds when we're in so much pain & our Docs won't listen.
Has your mother ever mentioned that she would like to just get her leg amputated at the knee so the pain will go away?
I had bilateral knee replacements last summer. From the get go my left leg gave me a problem after the surgery. I went to 6 weeks of therapay and at my one year checkup the doctor said my legs were fine. Shortly thereafter I started having a burning sensation in the thigh above my left knee. After that there were pinching pains. I went to the surgeion twice complaining about the problem and after the second visit he said it was my back and there was a nerve being pressed. He sent me to pain managment and they did a steroid injection in my spain because the MRI the doctor ordered said I had degeneration in the lower lumbar. The injection did nothing for my leg but caused me a lot of side effects. I didn't go back to pain management. My regular doctor sent me to a spine specialist and after looking at the MRI and asking some questions he said my degeneration was not causing the pain in my leg. My leg gets completely stiff when sitting too long, and there is a constant pressure in the knee area like I am wearing a brace. Now the sensation is going down the front of my leg and into my calf. I just visited another doctor today that my doctor sent me to, but I found out he was a bone cancer doctor and after looking at my xrays he said that I didn't need him and gave me the name of another orthopedic surgeon to see. I am so frustrated because I went through this surgery so I wouldn't have to deal with pain anymore, and I am just as bad as before. Have you had any of these problems?

 
Old 10-26-2007, 10:57 AM   #11
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Re: Hey Millpark! Almost 2 Yrs After Tkr, Still Pain!

Wow, Dianne.....My Mom's gone through all that, too.

 
Old 11-11-2007, 08:47 PM   #12
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Re: Almost 2 Yrs After Tkr, Still Pain!

LeeLee
I am sixty years old and I have arthritic knees and have seriously considered knee replacements. After reading some of the posts I don't feel very optimistic about it helping the pain. I am already dealing with an ankle fusion that is very painful after almost three years. I am sorry you are suffering in so much pain with your knees. Hang in there Lee. Please stay in touch.
Mus

 
Old 11-16-2007, 08:30 PM   #13
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Re: Almost 2 Yrs After Tkr, Still Pain!

Hi all! Sorry it's taken so long to post!
I wanted you all to know that I've lost 20 pounds & my knee is much better! I still have to make myself go down the stairs the proper way & it still hurts but not as much as before. I'm planning on losing more weight so I'll let you know if that helps even more.

 
Old 12-04-2007, 12:44 PM   #14
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Re: Almost 2 Yrs After Tkr, Still Pain!

LeeLee ~
So glad to hear your update! Has it been from the weight loss alone that has brought you so much relief in your pain?

 
Old 12-20-2007, 09:04 AM   #15
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Re: Almost 2 Yrs After Tkr, Still Pain!

Sorry, I thought I had answered you. I think it has a lot to do with the weight loss. I had a bad fall on some ice last week though & now the knee hurts pretty bad again. Luckily, I didn't come down on my knees but instead, my left foot was trapped under my seat when I fell & it bent the knee so far back that I'm pretty sure it was bent further than when the doc did the manipulation under sedation. I should go see someone because it has popped a few times since then. How is your mother doing?

 
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