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Old 09-12-2012, 03:13 PM   #1
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Exclamation Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

My story briefly. I am a 24 year old male 5'9" 165 lbs and had been running distance since I was about 12 right up until February when the trouble started. One fantastic Friday I went for a 6 mile run and woke up the next day with some clicking in the left knee. The problem continued to get worse over the period of about a month and I went and saw a guy named Dr. Tjoumakiris at the Rothman Institute. He gave me a real brief physical exam and said that all the pain was coming from the knee cap and referred me to a non-operative orthopaedic doctor named Dr. Krome. I asked for an MRI just to be sure and I got my MRI done by the C team at the CMCH, NJ branch of Cape Radiology. I had a problem years ago with my lower abdomen and they found absolutely nothing wrong, of course at Jefferson I got a definitive diagnosis out of the MRI scan they did. So of course the Radiologist that graduated at the bottom of her class that took the scan found nothing wrong whatsoever. After this I got a synovisc injection from Dr. Krome which seemed to make the problem if anything, more painful. Fast forward to August I've gone through 3 weeks of pt with Novacare and the knee has gotten much more painful, so I stop the pt.

So let me describe the problem that I actually have. When I'm walking with every step it feels like the knee joint itself popps in and out of it's socket. I get a dramatic popping sensation. The knee cap stays relatively centered although there is some pain on the inside. I feel a lot of instability when I walk on that leg it feels like the knee bends inward. My foot also twists outwards in the course of a stride. In fact it's hard to keep that foot straight when I'm walking. It takes a lot of effort to keep the leg straight when I'm walking. Any cutting in direction causes lasting pain. I know the Rothman Institute is supposed to be really good but I have a feeling that they don't have much of an interest if your not trying to get back into a sport or your not an older person.

 
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Old 09-16-2012, 08:24 AM   #2
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Re: Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

That constant popping and instability does not sound normal, nor does the PT making it worse. Synvisc often does cause pain right after the shot, though.

I had knee pain for 13 years, since high school. One doctor after another told me I should just live with it, surgery is far too risky, etc. I insisted the PT was making it worse, everyone told me I was crazy. Finally I couldn't stand it any more and went to a surgeon near Newark. He went in and took out the plica. Five days later, I was in PT comfortably doing squats, riding the exercise bike, and other things I hadn't done in many years.

Keep looking. Don't give up. If your doctor won't help, try another one. If PT makes it worse, insist that the therapist help you find different exercises. Get the original films from your MRI, not just the report, and take it to a good surgeon.

 
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Old 09-16-2012, 05:40 PM   #3
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Re: Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

I just wanted to add that all the good orthopedic surgeons I've seen (some practicing as sports medicine doctors) have reviewed my films, rather than just relying on the radiologist's report. The films belong to you, and if you have difficulty getting them yourself, any doctor you visit should be able to get the films for you.

When I was at a loss as to who to visit, I looked for the team surgeon for my local NFL team. I was somewhat concerned that he would brush me off because I was not a multi-million per year earner. He spent a long time evaluating me (an hour on a Friday afternoon), ruled out certain problems, showed me how to read an MRI, showed me where the problem was, and sent me to someone else for a surgical consult. I was really glad for his informative nature, his caring for me as a human (not a blank check), and realizing his own limits by sending me to asub-specialist. You can find these traits in doctors; if I find a doctor lacking, I seek out another doctor.

Keep looking; walking at 24 should be neither difficult nor painful.

 
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Old 09-22-2012, 03:47 PM   #4
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Re: Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

Is there any way you can give me the name of the doctor you went to or name of the group practice. I'm not sure if this site moderates that. My parents are simply unwilling to let me go to HSS in New York even though I suspect that would be the best place. I'm under their insurance and they don't want to be caught in New York traffic. Sucks, but what are you gonna do.

 
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Old 09-22-2012, 10:34 PM   #5
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Re: Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

The doctors I have seen are in California, so a bit more of a commute! Is there any particular reason your parents need to accompany you? My husband and I are on the same insurance, and I have not needed to go with him to the doctor. I just give him one of my insurance cards. If you have found a doctor's office you think will be helpful, maybe you could call the office to find out what and whom you need to bring with you?

 
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Old 09-22-2012, 11:23 PM   #6
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Re: Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

They don't have to they're threatening to cut me off of their insurance if I go to that place. They think it's mostly in my head. I could be dishonest and go up there anyway but if I needed an operation they would find out. Then cut me off their insurance. It's a terrible situation. And a lot to explain on here. Anyway, the first person who posted that said she saw a doctor in Newark, NJ, that's who I'm referring to, but thank you anyway.

 
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Old 10-05-2012, 04:21 PM   #7
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Smile Re: Knee trouble diagnosed as patellafemoral syndrome, suspect it is something else

Quote:
Originally Posted by janewhite1 View Post
That constant popping and instability does not sound normal, nor does the PT making it worse. Synvisc often does cause pain right after the shot, though.

I had knee pain for 13 years, since high school. One doctor after another told me I should just live with it, surgery is far too risky, etc. I insisted the PT was making it worse, everyone told me I was crazy. Finally I couldn't stand it any more and went to a surgeon near Newark. He went in and took out the plica. Five days later, I was in PT comfortably doing squats, riding the exercise bike, and other things I hadn't done in many years.

Keep looking. Don't give up. If your doctor won't help, try another one. If PT makes it worse, insist that the therapist help you find different exercises. Get the original films from your MRI, not just the report, and take it to a good surgeon.
I have seen a doctor in Vineland since your post and he proposed the plica excision surgery. I was just wondering if you could give me the name or the practice name of the doctor that you see since we both live in New Jersey. I tried to ask this message in private because I'm not sure what the rules are regarding exchanging doctor information, but just the group practice name or some sort of clue would be great.

 
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