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Knee & Hip Problems Message Board
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Old 12-13-2012, 03:29 PM   #1
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Unhappy Pain in Hip and Knee... Negative Xrays???

Hi all....I and 32 years old have been having severe pain for about 8 months now. It started in my knee which has always hurt me for years and slowly moved into my inner hip. I have problems walking on my left leg because of this. I have also developed in the past 4 months, severe neck, ankle, wrist and shoulder pain and stiffness asymmetrically on my body. The pain is mainly in the joint and feels like a severe ache radiating in the bone. The joints click and clack together and make grinding sounds whenever I move them. I am also getting really bad sinus type headaches and severe fatigue. The fatigue is so bad that I can barely wake up in the morning and stay awake through the day. I feel drowsy all day long and can barely get things done around the house.

I went to the doctor two weeks ago and he sent me to a Rhematologist. She assessed me and did not see any visible swelling or redness in my joints. She did diagnose me with having hyper mobile joints that bend a little funny. She sent me for blood work to check my thyroid, RA factor, ANA and lyme. She also did a full CBC. I was put on Medrol dose pack to help with the pain and it really helped dramatically. For 3 days while taking it I had more energy, didn't need to nap and the pain in my joints felt a lot better.

I also went to see an orthopedic surgeon who took X-rays of my hip and knee. He did not see any visible issues and thought the Rhematologist would of found something out instead. Well I met with the Rhematologist yesterday and she told me all my blood work was completely negative and nothing was wrong. I told her the pain had come back full force since being off of the Medrol and she said I was OK and didn't have Lupus, RA or thyroid issues and that my main problem was Fibromyaligia. She didn't give me any meds to help and told me I needed to see a Psychiatrist for possible depression. I am not depressed, I am in pain all the time and can barely take care of myself and my son. At this point I am going back to see my regular doctor and find out what is going on with me. I am not having pain in my muscles so I have no clue how it could be Fibromylagia. Has anyone had similar issues like this? It's slowly taking over my life and the pain is so unbearable.

 
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Old 01-09-2013, 05:55 PM   #2
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Re: Pain in Hip and Knee... Negative Xrays???

I am sorry you are in such pain. I hope your regular doctor is helping and providing treatment. have you had an MRI? They can show issues an xray cannot. Were your vitamin D levels ok? Low vit D is common in our area and can cause major pain and fatigue. Mine was very low, I had to take 50k/week for 12 weeks and it did help. I was dx'd with fibromyalgia 3-4 years ago and it took a while for me to believe yes it *could* be that, and yes, it *can* be this bad. I was sure it was skeletal, or immune, or anything else! The fibro makes any pains i have worse, so my screwy SI joint feels way worse than it would to others. Fibro is also &*^% on your sleep, and the pain is so draining too. Maybe you want to try treating the fibro? It's a tough one to treat and manage. I tried MANY meds and other care options, been years but finally Savella has given me some life back in my life. Just a few thoughts, wish I could help and hope you get some relief ASAP

 
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