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twobell · 03-06-2008, 04:10 PM

My son has been having grand mal siezures and drop attacks since he was 10 months old. He has drop attacks more times that I can count a day. He is mentaly and developmentaly delayed. We have gone thru eegs, cat scan's, mri's, and still we have no answer. We are in the emergancy room so much, weshould be on first name basis with everyone there. He was tested on all 5 points at Early intervention when he was 1 and came out at 5 month level. He is on phenobarbital and klonopin and everytime we got o the er, they keep upping his phenobarb....HELP!

: it is so frustrating not knowing what is going on with your child and not being able to help. Is anyone else have any of these issues?

SentenceDoing · 05-12-2008, 12:02 PM

Hello,
You might want to post over at the Epilepsy board. There are a number of helpful people there who have Epilepsy or who are taking care of a family member with Epilepsy and therefore are knowledgeable about the experiences they've been through with seizures and seizure meds.
Did your son's EEG show seizure activity? Does your son have a neurologist? That would be the best place to start, because going to the ER every time he has a seizure and having them up the dose of the medication he's already on won't necessarily stop the seizures. There are tons of different types of seizure meds out there, and everyone responds to them differently. A neurologist would be able to work with him and have him try different meds or different combinations of meds to control his seizures, but it's a process that will require regular contact with a neurologist.
Good luck.

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