It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Leukemia Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 12-17-2002, 04:01 PM   #1
Newbie
 
Join Date: Dec 2002
Posts: 6
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
mjb54 HB User
Post BloodPhoenix are you out there?

My friend was just diagnosed with AML less than a month ago. She was given 7 days of chemo and just got the results from her bone marrow biopsy which wasn't good. I read that you are an AML survivor and wondered if you might be able to give us the names of Hospital and Dr's that treated you. At this point her prognosis isn't good, but looks like you beat the odds and hopefully she will too. Look forward to hearing from you or anyone else out there that might have some good information to share.

 
Sponsors Lightbulb
   
Old 12-28-2002, 10:56 PM   #2
Inactive
 
Join Date: Dec 2001
Posts: 903
Hugs: 0
Hugged 3 Times in 3 Posts
Thanks: 0
Thanked 2 Times in 2 Posts
Jay Tor HB User
Post

Hi:

My child was diagnosed with AML, underwent extensive chemo, a bone marrow transplant, had GVHD [a transplant/rejection problem] and is now fine. This is a very long and very rough ride ahead of your friend, her family and her friends.

The best cancer hospitals and treatment centers also tend to be the top research and teaching hospitals, such as Johns Hopkins, Fred Hutchison, M.D. Anderson, etc. There are other hospitals that are probably as good but happen to be less well known. You can identify a good prospect by looking up the NCI or NIH cancer clinical trials. The best cancer hospitals are always involved in several cancer clinical trials simultaneously. Because your friend has AML, it's equally important that the hospital treating her AML also has an excellent track record in doing bone marrow transplants and in diagnosing and treating GVHD [Graft Versus Host Disease].
[url="http://www.nci.nih.gov/"]http://www.nci.nih.gov/[/url]

Something that you may want to know about AML - the five year survival rate is much higher for people who have a bone marrow [or peripheral blood stem cell] transplant. Your friend will need to find a "match" [donor]. Call or look up the Bone Marrow Foundation or the National Bone Marrow Registry for more information about this.

Good luck,
Jay

 
Old 12-28-2002, 11:51 PM   #3
Newbie
 
Join Date: Dec 2002
Posts: 6
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
mjb54 HB User
Post

Jay, I am so happy to hear your child is doing well afer treatment. Thanks so much for your reply. I will research the website you gave me. They are already looking for bone marrow donors. Unfortunately her sister didn't match, but she has lots of friends who are willing to be tested. She is at Kaiser right now just finishing her 2nd round of chemo. Her husband was very cautious about moving her as he didn't want her to miss chemo by moving to a new hospital and dealing with all the paperwork, while wasting precious time. Hopefully that will be a possibility at a later date. Thanks again for your reply!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Lumbar MRI Results explanation - My doc says there shouldn't be any pain bsisco Back Problems 4 02-12-2010 11:34 PM
What is Old? Am I there Yet? I Just Do Not Feel It! neflin Aging Issues 37 02-26-2008 01:20 PM
is there hope? T4Taylor06 Bipolar Disorder 7 01-07-2007 04:47 PM
Feels Lost,detached from life and wondering "is this all there is?" makingsenseout Mental Health 5 10-26-2006 06:59 PM
Hello there mcdreamy Bipolar Disorder 14 10-24-2006 07:51 PM
Are there surgeries for the deaf to hear? crazyabout blue Hearing Disorders 20 01-16-2006 06:22 PM
I'm back, thank you all so much for being there for me BAXTER Back Problems 60 06-06-2003 07:24 AM
lump still there?!?! double0bondo Dental Health 1 08-21-2002 08:59 PM
Is there a pill that makes you tell the truth...? WATER BOY Alternative Medicine 1 10-12-2001 03:33 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off









Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Aspirin
Cipro
Dilaudid
Gleevec
Morphine
  Oxycontin
Prednisone
Singulair Tylenol
Zoloft


Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Leukemia

    bubblegirl (3), pupcake (3), mary1977 (2), jon2 (1), bestoldies (1), kalical (1), results (1), wisangel (1), LIBLONDIE45 (1), houtex54 (1)

    Site Wide Totals

    thanbey (581), janewhite1 (526), BlueSkies14 (511), SpineAZ (483), DGabriel10 (462), mscat40 (419), tetonteri66 (418), jennybyc (399), sammy64 (388), jgrangran (355)

    All times are GMT -7. The time now is 02:13 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.