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Old 04-20-2006, 10:51 PM   #1
Join Date: Apr 2006
Posts: 2
drsunshine HB User
Untreated MDS - Prognosis

Dear friends,

How long does normally an untreated myelodysplastic syndrome patient survive ?



Old 04-23-2006, 08:47 AM   #2
Senior Veteran
Join Date: Apr 2005
Posts: 533
Merimac HB UserMerimac HB User
Re: Untreated MDS - Prognosis

MDS is an unsual disease in that the treatment only starts when the condition of the blood counts is at a level that the body is in distress. For instance, if the platelets become too low to prevent bleeding, packed platelet tranfusions will be given, if bone marrow failure is at a younger age a stemcell transplant or other major solutions can be achieved. Survival in all instances depends on the age and physical condition of the patient and is dependent on factors too numerous to discuss in this forum. The statistics are misleading and do not provide individual information and will discourage some and provide false hope for others.

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Old 06-03-2006, 09:47 PM   #3
Join Date: Oct 2005
Posts: 9
myohmy HB User
Re: Untreated MDS - Prognosis

Dr. Sunshine. I may have MDS. I posted on the cancer page. I am a 31 year old female with a history of low white counts. a recent bone marrow biopsy showed that I have an abnormal chromosome. This seem so rare please tell me more about you or your loved one. I want to know what to expect for my life. My doctor is talking bone marrow transplant. I feel this would be too risky since I have a pretty good quality of life. I get tired quickly and I'm underweight with a loss of appetite but generally I am well. I just wish to find someone who is in my situation so I can relate with them.

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