Re: Refractory ALL survivors
Hi, I just joined this group so I am sorry that you are not receiving this letter sooner. I was diagnosed with chronic myelogenous leukemia on February 12, 1991 while in the Navy when I was 21. This was before Gleevac and my only hope of survival was a bone marrow transplant. It was still less than 5% for five years, but without one it would be fatal within 3 months. The good thing that your daughter has on her side is her age. The younger people I watched go through this process did much better than even the 30-40 year olds. The other good thing is that this is 16 years later and medical procedures and bone marrow transplants have improved drastically. Please let me know how you all are doing and if you have any questions please ask.