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Old 07-22-2008, 04:56 PM   #1
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msreta HB User
chronic lymphocytic leukemia

I was just diagnosed as having this disease. I have been under a lot of stress the past two years. Can stress cause me to test positive for this disease. I think they are relying on the blood work numbers. Don't know what they were but was told barely measured in the range for this disease. What should I ask my doctor next...Please help very afraid..

 
Old 07-30-2008, 06:37 AM   #2
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Re: chronic lymphocytic leukemia

hi, im sorry to hear that you are ill. i dont think it is caused by stress, my dad has CLL and his mother before him did, so there is possibly a genetic factor involved. my dad was diagnosed 11 yrs ago. he visits the hospital regularly for check ups but has recieved no other treatment. he looks after himself, takes loads of vitamins, eats well (he has to eat a lot or he loses weight easily as a result of the disease) and rests when tired. he has slowed down a bit and does get tired more easily also - although that could be related to his age as well.he is more vulnerable to infection so needs to be careful with cleanliness in general and any sign of infection needs to be seen by his gp for antibiotics.
you are probably a bit in shock after diagnosis, but im sure there will be questions in the near future. just ask as they arise. im sure your dr will speak to you about any immediate concerns when you visit.i dont know where you are from but i know in the uk (and im sure elsewhere) there is plenty of specialist help and support(emotional and physical) for you and your family if you need or want it. take care

 
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Old 07-30-2008, 08:33 AM   #3
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Re: chronic lymphocytic leukemia

Hi msreta!

I read your post and the reply of the other person before me who lives in the UK - I'm not going to say that this person is wrong, but my mom had CLL and her oncologist told me that blood cancers are not hereditary. I also don't think they are caused by stress. I believe from what I know that they are from some fluke thing with the cells, or just bad luck.

I'm sorry you are going through this - I hope my reply helps.

take care!
supermom3

 
Old 07-30-2008, 03:29 PM   #4
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Re: chronic lymphocytic leukemia

Thanks for the reply...I show no signs of this disease other than my lab results. I did read somewhere thought that stress can cause the white blood counts and lymphocyte counts to elevate. I was wondering if I could have been misdiagnosed.

 
Old 07-30-2008, 03:31 PM   #5
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Re: chronic lymphocytic leukemia

Thanks for the reply...I also read the same thing about this disease not being hereditary. Because no one in my family has ever had this disease that we know of. We mostly have heart disease issues in my family tree..I go back in September for another blood test. Is is possibly that I could test for this disease but no have it. Could stress cause this disease...I know that stress affects your immune system. Thanks for any info you may have..

 
Old 08-22-2008, 04:23 PM   #6
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Re: chronic lymphocytic leukemia

A high white blood count is a red flag that something is wrong. It doesnt mean that you have CLL.. Normally its an indication, however additonal testing on your blood confirms the CLL.. Stress does not cause CLL.. (doesnt help it either)
If you were told that you have CLL, my suggestion would be to get a second opionion from a specialist. They will draw blood and run several test.. from that you will get your confirmation... good luck!

 
Old 08-22-2008, 08:01 PM   #7
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Re: chronic lymphocytic leukemia

I Have Already Seen A Specialist. That Is Who Says I Have This Disease. I Have Allergic Rhinitis And Think That Maybe That Is Why My White Count Is Elevated. But The Doctor Checked Me For Lupus And Leukemia. The Lupus Test Came Back Negative. So I Am Wondering If The Doctor Just Assumed That It Was The Other One. I Just Feel Like This Doctor DidN'T Eliminate Other Diesease Before Diagnosing Me With This Disease. I Feel Fine. So It Is Hard For Me To Believe That I Have Cll. I Have Photophobia Also And I Know That Is A Symptom Of Lupus. I Also Have Other Symptoms Of Lupus And I Know It Is Hard To Diagnos Lupus And That You Don't Just Rely On The Test Results To Diagnose Lupus. I Just Think That There Could Be Another Reason Why My Wbc Is Elevated. I Know That A Bone Marrow Biopsy Will Tell For Sure But Don't Want To Go To That Extreme Just Yet....i Go Back For Another Cbc In September. Am Hoping My Wbc Is Down, Even Though It Wasnt Very High Anyway. It Was 13,600. Also Have Lympocytes In My Blood. I Have Researched This And Know That Allergies Can Cause Eleveated Wbc And Lymphocytes In Blood Also. I Just Don't Know About This....does A Flow Cytometry Test Definitely Diagnose This Disease Or Not. Is There Another Test Except For A Bone Biopsy That Can Tell For Sure What I Have....any Suggestions From Anyone Will Be Greatly Appreciated....

Last edited by msreta; 08-22-2008 at 08:03 PM.

 
Old 08-26-2008, 11:31 PM   #8
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Re: chronic lymphocytic leukemia

Hello ~ just wanted to share something with you ...
My sister was diagnosed with CLL, 4 years ago, at age 43. Then our mother was diagnosed with CLL two years later. ~total shock~ It very well could be hereditary.
My sisters is very aggressive and she requires treatment ... our mothers' is not aggressive and she has not required any treatment so far. Just regular checkups with her Dr.

WifeToW

 
Old 09-06-2008, 10:23 AM   #9
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Lightbulb Re: chronic lymphocytic leukemia

My husband was diagnosed prior to surgery in a screening test (cbc) about two years ago. His lymphocyte count was around 14,000. He was 63 at the time. His surgeon sent him to an oncologist. She did a bone marrow and identified his CLL as B cell lymphocyte involvement. B cells are your memory cells (the ones that remember that you had chicken pox). She said if he had to have it that this one was the best. T cells (the other lymphocyte) protect you from active disease (like HIV). The bone marrow was a definative test. Not pleasant, but can tell you for sure. You can probably wait to see if the lymphocyte count may be caused by disease. If it is, then the lymphocyte count should go down. His count is around 34,000 now and will fluxuate by about 4,000. Normal is between 1000 and 3500. The oncologist says that they would not even begin treatment until 350,000. So, the point is that if you have it - there is probably time - so don't panic. There are fast moving types of CLL, so you should be monitoring your WBC (white blood count) frequently. Hope this helps.

 
Old 09-10-2008, 11:37 PM   #10
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Re: chronic lymphocytic leukemia

Hi....Very sorry to hear that you have joined the ranks of CLL patients. I understand your fears - been through that phase. I was diagnosed in May of 2004. I have blood work done every 3 months. My initial advice to you is find an expert in the field of CLL. Many oncologists/hematologists treat a variety of blood cancers. I am lucky enough to be able to see a world respected expert in the CLL field at M.D. Anderson Hospital in Houston. He is on the cutting edge of research, new developments in treatments and anything else to do with CLL. If possible, FIND AN EXPERT!!! He/she will be able to relieve fears and keep you informed. I also believe in being your own advocate so you must educate yourself. There are many informative websites that deal with CLL - read, ask questions. It is your health and you must be in charge and have the knowledge to advocate for yourself. The FISH test and ZAP 70 will give your doctor insight into long term prognosis. If your current doctor is unaware or cannot administer these - find the doctor who can. Good luck. It is a frightening diagnosis at first - stay strong.

Last edited by CLLAnnie; 09-10-2008 at 11:42 PM.

 
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Old 09-10-2008, 11:39 PM   #11
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Re: chronic lymphocytic leukemia

Hi....Very sorry to hear that you have joined the ranks of CLL patients. I understand your fears - been through that phase. I was diagnosed in May of 2004. I have blood work done every 3 months. My initial advice to you is find an expert in the field of CLL. Many oncologists/hematologists treat a variety of blood cancers. I am lucky enough to be able to see a world respected expert in the CLL field at M.D. Anderson Hospital in Houston. He is on the cutting edge of research, new developments in treatments and anything else to do with CLL. If possible, FIND AN EXPERT!!! He/she will be able to relieve fears and keep you informed. I also believe in being your own advocate so you must educate yourself. There are many informative websites that deal with CLL - read, ask questions. It is your health and you must be in charge and have the knowledge to advocate for yourself. The FISH test and ZAP 70 will give your doctor insight into long term prognosis. If your current doctor is unaware or cannot administer these - find the doctor who can. Good luck. It is a frightening diagnosis at first - stay strong.

Last edited by CLLAnnie; 09-10-2008 at 11:43 PM.

 
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