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Leukemia Message Board
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Old 01-23-2009, 01:01 PM   #1
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timbrigham HB User
Scared and want advice

My wife (23 years old) was diagnosed yesterday with acute leukemia. We don't know the subtype yet. We need to take our three month old son to be tested as well. On top of that, the company that I work for is folding. They will be out of business in less than three months. I'm already job shopping, and have a known condition to add to the list.

We're both scared out of our minds. Any support or advice you all can offer would be greatly appreciated.

 
Old 01-24-2009, 08:09 AM   #2
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Luckman42 HB User
Re: Scared and want advice

I don't know much about that type of Leukemia as I have CLL which is Chronic Lymphocytic Leukemia. After the initial shock of the diagnosis, you'll be faced with more questions than answers and this is no time for self pity because it won't help. Leukemia is a disease that comes with no warning and can't be blamed on anything but bad luck. It's not like, let's say, lung cancer that you can blame on yourself because you smoked for 20 years. It is what it is and the sooner you accept that fact the better you'll feel. It's normal to be angry, sad and most of all scared of the unknown.
Start by contacting the "Leukemia Society" for answers and most of all, financial advise. The road to recovery is not cheap and they may be able to help. Check with your employer about "Cobra" insurance to see if that is a possibility. Learn as much as you can about the disease, listen to your Dr., get a second opinion from a specialist and draw strength from from wherever you can, friends, family, faith etc. This will be a long road but not an impossible one. They are doing amazing things nowadays with Leukemias and new developments are coming all the time! With any luck, we'll be able to beat this thing and live long and happy lives!
My motto is "You play the hand that's dealt" so let's play hard and win!
Smile, it'll be all good!

 
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Old 02-03-2009, 09:46 AM   #3
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alks456 HB User
Re: Scared and want advice

Do advice to try Su-jok Onnuri acupuncture,
proven working even at 4-th stage of leukemia.
The costs are more than likely far less than for
standard treatment.

Last edited by alks456; 02-03-2009 at 09:46 AM.

 
Old 02-03-2009, 11:30 PM   #4
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lotsoquestions HB User
Re: Scared and want advice

Ignore that last message. There is virtually no staging in Leukemia. My husband had ALL (acute lymphocytic leukemia). He was diagnosed at age 54. Please let me know if you would like more advice/input. Over the course of his treatment I became a virtual expert on all things related, but our outcome was not the best, so please know that the age of your wife is definitely in your favor and things may turn out well, but it won't be an easy road.

 
Old 02-07-2009, 04:16 AM   #5
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timbrigham HB User
Re: Scared and want advice

Thanks for the input everyone. It's been a hard trip so far, but we're getting in to the swing of things. Thankfully we caught it early. It's AML, and my wife's cytogenetic came back clean, so hopefully we won't need a bone marrow transplant. Plus she qualified for a Mylotarg research study.
After the initial shock, and with the advice of those here it has been a lot more manageable than we expected.

 
Old 02-07-2009, 08:01 AM   #6
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alks456 HB User
Re: Scared and want advice

Quote:
Originally Posted by lotsoquestions View Post
Ignore that last message. There is virtually no staging in Leukemia. My husband had ALL (acute lymphocytic leukemia). He was diagnosed at age 54. Please let me know if you would like more advice/input. Over the course of his treatment I became a virtual expert on all things related, but our outcome was not the best, so please know that the age of your wife is definitely in your favor and things may turn out well, but it won't be an easy road.
Beware of such expertise. There could be "terminal phase" or
the moment the doctors say "we regret but there's really not much we can do" instead of 4-th stage, which does make a difference!
That Su-jok can help has already proven not one time, so
ignoring this can serve one really
nice.

Last edited by alks456; 02-07-2009 at 10:12 AM.

 
Old 02-10-2009, 08:57 PM   #7
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girl1955 HB User
Re: Scared and want advice

My own experience with Acute Mylosetic Leukemia is tough. I had it once with acute and fatal onset and then a relapse, again acute and fatal onset. This time I had a mini stem cell transplant. The worldwide bone marrow registry came up with three possible donors. I was a patient at Fred Hutch after the relapse and for the transplant and they handled the chemo, the chemical food (TPN) and the radiation. They talked with the donor, worked him up medically to make certain he was disease free, willing and healthy enough to help me. He was, he donated his stem cells and he gave me a new opportunity at life. There is no explaining how this thing starts, no rational answer. It's just a fact and it requires absolute and immediate treatment. Everyone is walking an unknown path and it is painful getting a central line installed and bone marrow biopsies and endless blood and blood by products and it makes you sick as a dog............but dear heart, life is like licking honey off a thorn; *****s a little but oh so sweet. If not religious, a tight walk with your Lord is a must to comfort you and sooth you and carry you when you cannot carry yourself. I read Psalm 139 many times late at night when I was alone. I will begin to pray for you. Please give me your first name. I am Ann in Everett, WA

 
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