| | Polycythemia Vera
Obviously I am a newbie here, Memy, 60 y/o, dx'd with Polycythemia Vera in '02 at the age of 52, but had symptoms of the disease for several yrs prior to dx even though I was seeking medical care for the symptoms for 3 yrs prior to dx. Fast forward to now, and I am doing well. I have been in treatment since '02. I was treated with phlebotomy only for first 6 years, then due to the veins in my arms breaking down from all the many huge---garden hose-sized---needle jabs, it became counter productive to remain with phleb-only treatment and in '06 I was placed on 500 mgs Hydrea (Hydroxyurea) daily and have responded well to this treatment. I feel blessed that there is such a drug available to me with minimal side effects, relatively inexpensive (or at least affordable to me) and that helps keeps my blood close to the normal range. BUT, I do have a problem with high platelets ---950 range, and no matter what treatment I am receiving, my plts will not come down. Does anyone have this problem? Are there any other folks on this health board with the dx of Polycythemia Vera?
As I am new to this site, I am having a bit of a problem learning how to navigate through the different threads and so forth.
There are other things about PV which I would like feed back from and so forth or to compare notes with another, so if anyone is interested or has PV, I would appreciate any thing you might like to add or ask me things related to PV........ I am a member of the LLS and do volunteer services for them which is quite rewarding for me. My apologies if I have made a rather redundant new thread--I am still learning the way around!
Thanks, Memy from the Deep South!
Last edited by Memy; 01-31-2011 at 07:26 AM.