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Possible Leukemia?!?!?

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Old 03-21-2011, 12:16 PM   #1
Join Date: Mar 2011
Location: United States
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mom2dotNjimmy HB User
Possible Leukemia?!?!?


So I am 28 years old and I a going crazy. My story is kind of long so I will try to go fast but with detail. 2 years ago I had donated blood and received a letter back from the Red Cross saying that I had tested positive for HTLV-1 which concerned me because they said I could not donate blood anymore so I figured it must be bad. I scheduled an appointment with mmy family Dr who said...."HTLV-1 ahhh everyone has something, like diabetes or high blood pressure, we will take blood tests 2 times a year, but everything is fine, nothing to worry about." So I was like cool ok, since I felt fine. Well 6 months ago, I started waking up with random unexplained bruises, always on my legs, on the inner thigh and right behind my knee, once I got one the size of a grape fruit right below the knee area, on the back of the leg, I immediately went to a different Dr who did a CBC and said "everything is normal, your just more prone to bruising than most people, it means you bruise easily." I was like ummmm ok, well the bruising continues, and I know it's not that I bruise easily because I am constantly bumping my hands and face on stuff and I never get bruises. Now, I started getting bad headaches only on the left side of my head, and my legs and my wrists hurt soooo bad like down to the bone a really deep pain that cripples me for like an hour or two.

I went to a different Dr who drew blood and confirmed HTLV-1 and sent me to an Infectious disease specialist who ordered another CBC and something called Von Willabrand Factor III and an HIV test and I asked for a blood smear test which she ordered but she called and left a voicemail this morning saying that all the lab tests with regards to my bruising came back normal, and that I don't have to go see her again????? ***, no mention about the blood smear with regards to the leukemia, I am going crazy, I HATE THE WORD NORMAL because I know bruising for no reason and constant headaches and bone pains is not normal. Oh yeah and I also have little tiny red spots scattered on my chest, arms and legs.....I'm thinking its petechia.

Anyone here fighting to find an answer to any similar symptoms?

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Old 03-23-2011, 11:44 AM   #2
Join Date: Mar 2011
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mom2dotNjimmy HB User
Re: Possible Leukemia?!?!?

so no answers from anyone?????

i want to add that my bruise on my legs have faded just a bit but after 3 1/2 weeks are still noticeable. should i follow up with a hematologist and demand other tests?

Old 04-28-2011, 10:06 PM   #3
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toni703 HB User
Re: Possible Leukemia?!?!?

Hello mom2dotandJimmy,

I just happened to come across your thread as I to am looking for some answers. You ight want to ask your doctor to do a blood test called a flow cytometry. This test is a special test that is used to see if you have any type of leukemia or lymphomas. I just had this test done on yesterday. It was a oncologist that ordered my test. I have had several CBC tests done and they keep coming back with my WBC being abnormal. I have suffered from anemia all of my life and I am 37yrs old now. And like you I do have some of the same symptoms too. The only thing that scares me is I got the phone call from my dr.s office telling me that a needed to have this test done ASAP! So now I wait & see. I hope this will help you & please let me know how things are going with you and this matter.
With gentle hugs,
Thanks Toni
[FONT="Book Antiqua"]Toni [/FONT](BLESSD 1)

Old 05-19-2011, 08:42 PM   #4
Join Date: May 2011
Location: Tampa, Florida
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Jeanette78 HB User
Re: Possible Leukemia?!?!?

mom2dotNjimmy did you ever get any results?

Old 07-15-2012, 06:00 PM   #5
Join Date: Jul 2012
Location: Asheville, NC, USA
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jesshess HB User
Re: Possible Leukemia?!?!?

Hi, I'm like you...

I have bruises all over my legs, only my legs...sometimes so many on my thighs and around my knees I can't wear shorts...I've counted into the 30's at one time, some small others big. They take a very long time to disappear or I think, but I'm not sure because its hard to keep track, but they might even just be reappearing in the same spot before completely going away. It's hard to figure out what's causeing them, so I figure when I start feeling like crap or uneasy, I'll go to the VA and get checked out because something in Iraq scewed me up even more.

Old 07-18-2012, 02:34 PM   #6
Join Date: May 2012
Location: CA, USA
Posts: 7
peachtrees HB User
Re: Possible Leukemia?!?!?

Originally Posted by mom2dotNjimmy View Post
so no answers from anyone?????

i want to add that my bruise on my legs have faded just a bit but after 3 1/2 weeks are still noticeable. should i follow up with a hematologist and demand other tests?
I've had the same bruising problem and my doctor said it is very common to get bruises from thrashing around in your sleep. I know that I don't, because I share a bed and they said I don't move an inch when I'm sleeping. It wasn't really a possibility for me but maybe that could be the cause for you?

Old 07-19-2012, 05:23 AM   #7
Join Date: Jul 2012
Location: Asheville, NC, USA
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jesshess HB User
Re: Possible Leukemia?!?!?

Nope, I take sleep meds...when they kick in, my husbands says I've stopped mid word...lights out...good morning. I had an ortho appt 2 days ago and my dr saw my legs and ordered some blood work and told me to call my primary...seeing how at the va everyone is in the same building, I gotta go now because he sent an email.

But, if anyone is on any kind of anxiety med or depression, ADHD, ADD, mood, bipolar, etc. Anything that would be considered to mentally help you in any way...Causes Bruises!!

You can google it, or read that crap you get at the drug store when picking up your meds that makes you want to just deal with it rather than take the med in the first place...I know there's a few that only read the side effects and the ones that dont point out as being common you don't usually remember.

I just got prescribed a med the other day and upon getting it in the mail, opened it and did just, all I can think about is "I may start smelling like a jock do to all the excessive" and "my husband may not be getting any lovin in the near future." And, looking back, bruising was on there. But, somehow armpits and low libido stuck.

Also, I'm a low protein eater and I'm sure it will rat me out in the blood work. I'm not much of a meat eater...I tell my husband that it's that darn cute bunny in our backyard that nibbles grass and looks up at me when I take its picture...but, actually in grade school we went on a field trip to the local meat packing market to see how it was ran..."come kids, lets go see the animals...and by the way, this is what a cow tongue looks like." So, Gatorade makes a protein and electrolyte replacement drink that has 16 grams protein in one bottle.

Just changing a little helps a lot. And, I'm not talking weight here...

One more thing. When I was over seas I noticed something...amongst all the crap that was going on, there was still happiness. A commercial just came out with a saying we used in our unit. Don't for get to "embrace the suck." Yes, perhaps you've hit a moment in your life where something has you sitting on the edge of your seat and your trying to find the solution...but, don't forget all the other moments going on around you. Life is short...and it happens fast...don't miss out on the things that make it worth happy in the moments you can create. In every moment there is a minute a second, that chance...

I hope everyone finds what they are looking for, don't dwell on the worst possible thought and comb through the symptoms with a fine'll drive yourself nuts and the people around you.

Thank you for the reply Peachtree


Last edited by jesshess; 07-19-2012 at 05:26 AM. Reason: left out a paragraph when pasting after spellcheck

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bruising, headache, leukemia, petechiae

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