Re: Hairy Cell with minimal remission
I am sorry to hear that your father has had such an unusually difficult time of things with his HCL. Does he have the variant form of HCL?
I have been in remission from HCL since 2007 when I was first diagnosed and treated with Cladribine. Has he tried to get into any clinical trials? Does the oncologist at the Mayo Clinic who treated him have experience treating HCL in other patients? When was his spleen removed? Has he contacted any of the experts in the field of treating HCL such as Dr. Kreitman at the NIH, or Dr. Saven at Scripps in San Diego? What type of chemotherapy has he had? Have they determined what the mass on his kidneys and Pancreas are? How old is your father?
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Last edited by hb-mod; 04-19-2011 at 12:04 AM.
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