I am 67 and was diagnosed with Stage 2 CLL in June after a BMB and blood tests. In Watch and wait with 11q deletion, unmutated, positive Zap 70, Neg. CD38 and scan showing small lymphs in lower back, neck, shoulders and hip. I am always tired and have mild night sweats.
My mom had indolent CLL for over 15 years and lived to age 91 but her sister had thrombocytemia vera and A
ML and wasn't that lucky. Now my aunt's son is starting off the same was as his mom with thrombocytemia vera. I truly believe there is a familial component to these blood cancers.
I know I will have lots of questions as I traverse this difficult disease over the next few years. Right now I am just coping with the whole idea.
best wishes to all of you out there.