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Old 11-19-2012, 04:22 AM   #1
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alan72 HB User
b-cll patients under 40

My wife (35yrs old ) was diagnosed with b cell chronic lymphocytic leukemia recently. The doctor said there is very little data because most people are in their 70s when diagnosed. I am interested in finding out how to begin to fight. Do we have any options? Are there any supplements that work? Is there anyone else in this age group who has experienced the same thing?

thanks

alan

 
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Old 11-25-2012, 05:08 PM   #2
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Re: b-cll patients under 40

Hi Alan,
I also have just been diagnosed with this. I am 42. I have just visited a naturapath, who was very good, and I have been told that I need to keep my immune system strong, and keep up my anti-oxidant levels. I am about to try mangosteen (not sure how that will go, but am willing to try..) and have some other supplements that were recommended by the naturapath. My specialist did mention that there was a clinical trial running at the moment for younger patients with CLL, however, he did not want to recommend it to me. Maybe you could look into that? Basically though, there does not seem to be too much info for us younger patients as it is uncommon in our age group. My specialist is "watching and waiting" and I am to go back every six months to see how it is progressing.
I know that this has not offered anything in the way of information for you, but I too am interested to see if you get any other posts...
Kind Regards,
FLH

 
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Old 12-04-2012, 04:25 AM   #3
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Re: b-cll patients under 40

FLH,
Thanks for the message. We are also a bit frustrated by the wait and see approach. I have heard of mangosteen but don't know much about it. I will be also checking the Gawler Institute in Melbourne, and a vitamin C (intravenous) clinic in Goulburn. Green Tea extract and vitamin B17 are other avenues, but it is also a bit daunting because there are so much conflicting opinions online.

Somehow, I hope there are people out there that have gone down this road as well, and are able to figure out what is fact from fiction.

Thanks again for the message.

alan

 
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Old 12-04-2012, 04:26 AM   #4
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alan72 HB User
Re: b-cll patients under 40

FLH,
Thanks for the message. We are also a bit frustrated by the wait and see approach. I have heard of mangosteen but don't know much about it. I will be also checking the Gawler Institute in Melbourne, and a vitamin C (intravenous) clinic in Goulburn. Green Tea extract and vitamin B17 are other avenues, but it is also a bit daunting because there are so much conflicting opinions online.

Somehow, I hope there are people out there that have gone down this road as well, and are able to help figure out what is fact from fiction.

Thanks again for the message.

alan

 
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Old 03-10-2013, 04:30 PM   #5
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Re: b-cll patients under 40

Hi, This is a 30yrs old male. I had an exposure to toxin 4 mn ago and developed persistent headache rib/back-bone pain for last4 mn. My cbc are normal for all but a recent immune competence test showed elevated CD19(B-cells). I have 23% b-cells lab range (4-22%). I am scared if I have L***? I am goinig to see my Dr in 3days but I am scared what he will say. I wonder one can have L*** even if CBC is normal? I do have high IgM level since last4 mn? Is CLL can be practically cured for young adult or it is just have few years of prognosis no matter what you do. Any idea? Thanks and regards. -Ravi

 
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