Dessy

Hi all I am new to the boards and I felt I would share my story and hopefully gain some advice.

I am a 30 year old female, who has celiac diease (an autoimmune disease where I cannot eat wheat, oats, barley, rye or malt), polycystic ovarian syndrome, and just recentally I have been dignosed with FNH (they are pretty sure). I have multiple masses some which cannot be measured and four that can be. The largest is 7.3 X 6.4 cm. The MRI report says the masses have signal dropout suggesting the presence of Kupffer cells. I'm assumming Kupffer cells are associated with FNH. Does anyone know anything about this?

I have had an ultrasound which orginally found the masses back in the begining of June. I stopped taking the pill the middle of june. The end of June I had a CT and which is where they though I might have adenomas. In July they did an MRI and that is where they feel they are probably focal nodular hyperplasias. The doctors presented my case to a tumor board committee and the general concenses was to do a repeat MRI in October and then from there decide what to do (biopsy or not). Is this resonable?

I have a bit of discomfort, but I am not in pain. My liver enzymes are slightly elevated but that could be due to the fact I have a fatty liver.

I have polycystic ovarian syndrome...so I actually don't get my period when I am off the pill...I'll occasionally get some break through bleeding. My doctors have told me to stay off the hormones because of the FNH. Anyone else have this problem?

I have a few questions that I hope you can all help me with. I'm trying not to drive my doctors crazy with the little things

Do you avoid soy based products?

Do you buy organic foods?

Do you drink alcohol sparingly?

Is exercise restricted?

Also I am overweight do you know if there is connection between weight and FNH?

I have been reading all sorts of inspiratational stories on this board. I am so happy to have found you all.

Thank you

Dessy