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Old 03-25-2008, 01:11 PM   #1
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Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Anyone have experiences with this? I am trying to conceive and have 2 lesions -- one is 7 " and one is 4.5 ". They have not caused me any "symptoms" or discomfort, however I did just have my liver enzymes checked and for the first time, they were elevated/abnormal.

Anyone have elevated liver enzymes with FNH? What would cause this? This has not happened to me before and I think my masses have been there for a while.

Also...wondering if I can have a successful pregnancy without complications from FNH?

???

 
Old 03-25-2008, 01:42 PM   #2
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Well, I am not much help, but I found my Adenoma with elevated liver enzimes. My ALT were off the charts.(311 and 415, on two different tests, with normal being 35-150) My surgeon says that the elevated numbers has nothing to do with our "lesions", but I think many women have found them that way.
Hopefully someone will have a better answer for you.
Katie

 
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Old 03-26-2008, 06:43 AM   #3
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Thanks for the responses.

They do think that both of my lesions are FNH, however there is a question about the smaller one. They are 90% sure it's FNH (as I was told that 25% of patients with FNH have multiple lesions...??), but could possibly be an adenoma. I saw a high risk pregnancy consultant and they said that all they could tell me is that we'll keep an eye on them for any problems/growth/rupture during pregnancy... not very reassuring. I don't want to have unecessary surgery though. I am trying to figure out what to expect if I do become pregnant.

Katie, did you have yours removed? Why did you make that decision? How was the surgery and recovery?

Most troubling immediately is my elevated enzymes, which have tripled suddenly since my last blood test 10 months ago. I've known about the lesions for years, so this was a great surprise. I have previously always had normal blood tests. I have to go back for more tests tomorrow -- I think they are checking me for hepatitis, among other things...??? I cannot imagine that I could possibly have this, although my husband works in healthcare, so we are concerned that maybe he could be a carrier and not have symptoms. I don't know what the chances of that could be. I would think more likely it's related to the lesions....?

thanks again for your responses!

 
Old 03-26-2008, 06:46 AM   #4
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

how high are your enzymes and how long have they been high? what has your dr. said about this?

I am afraid to even have a glass of wine now...

 
Old 03-26-2008, 07:03 AM   #5
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

I am having my adenoma removed next week. I am having it removed because adenomas can turn malignant and or rupture if left alone. Mine is about 9cm., so it is not huge, but not small either. You can read through the adenoma thread. Our friend from England, Nessie, had hers removed two weeks ago today, and tells us all how it went. Because you are try to get pregnant, you might want to see a liver specialist. I believe another of our friends in the liver Adenoma thread, Linda, has both, FNH and adenomas. There is a thread, FNH vs. Adenoma that started in 2003, please read through that one. We just continued from that one because they closed it. The risk with adenomas is they grow with hormones (the pill and or pregnancy) and are more of a risk to rupture during pregnancy, if they are pressed against by the baby. The liver guys are the only doctors that see this all the time understand what is going on with them. It would not hurt to talk to one, and even think about a biopsy if they are unsure. I do not mean in any way to scare you, there are many of us dealing with this, and it is just a bump in the road if you look at the big picture, but I want you to be as educated as you can be about what you have.
Where do you live? Do you live near a big city with a teaching hospital with a liver transplant unit? They are the best.
Please keep in touch with us as to what is going on. We will all keep you in our prayers, as Nessie says, we are a special group of ladies. And keep asking questions if you have more, we are here to help each other make good decisions about our own health.

Katie

 
Old 03-28-2008, 03:09 AM   #6
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

hi there

just to reitterate what katie said, i would strongly recommend seeing a liver specialist first hun. they really are the best people to see . i too have multiple lesions. i have just had my 7cm FNH removed through liver resection although i have another 4 in the left lobe which will be monitored. if you need any advice of have any questions pls do not hesitate to ask. i usually write on the liver cell adenoma post.

take care

nessie x

 
Old 03-28-2008, 09:21 PM   #7
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Thank you so much for taking the time to answer. I got a follow up blood test and the results were about the same. ALT 67 AST 53 GGT 171 Negative for Hepatitis, as expected. I guess I have to face the fact that these masses are probably affecting my liver function, but I don't know why it is happening all of a sudden. I do have a pinching pain in the upper right quadrant from time to time, but nothing severe. If I think back to the preceding several months though, I have had flu symptoms on and off -- nausea and fatigue that comes and goes. I wrote it off as being the actual flu... ???

Thankfully I live in Tampa where we have a university close by. I did see a liver specialist who has said that I should get another MRI that focuses on the pacreas, gallbladder and bile ducts (to see if there is some kind of blockage, I suppose? Maybe the FNH is pressing on something?) I am getting that done on Monday. Hopefully that will provide some answers, and not just more questions. He seemed convinced that I have 2 FNH lesions.

Nessie, how was your surgery? how long was your recovery? did it alleviate your symptoms?

Katie, I will keep you in my prayers as you enter into your surgery this week. I will be thinking of you and waiting to hear good news. Please know that you have a new friend...

 
Old 03-29-2008, 10:05 AM   #8
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Thank you so much for the prayers....I need them this week to keep calm. There are many post of woman talking about surgery and recovery time. Our thread is a continuation of FNH vs. Adenoma, started in 2003, please start there and we would all be glad to answer in any way we can.
Prayers out to you too, this can be frustrating, but we are here for each other,
Katie

 
Old 03-31-2008, 06:56 PM   #9
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Figured I would post an update:

I had an "MRCP" today which showed that I have compression on my bile ducts in the right lobe. It appears that the larger FNH lesion is pressing in the bile duct causing it to get backed up...the answer to my elevated enzymes. I will be going back to the liver dr. asap to determine how to treat it.

Katie - I am thinking of you ... please do post once you are up to it to let me know how you are doing after your surgery.

 
Old 04-02-2008, 02:11 PM   #10
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Another Update

For those of you reading this, I figure it is helpful to post updates so that perhaps it can help you as well.

My husband and I are researching the possibility of have my FNH embolized in the hopes that cutting off the blood supply leading to the tumor will force it to shrink. This is a very new procedure...we can only find info. online about treating it this way from European Med. Journals, but it is something to consider as the results have been great, from what we've read. One article said that the tumor completely went away. It is much less invasive than surgery and seems much less risky. If it does not work, I think you can always have surgery later. This procedure would be performed by an interventional radiologist.

I will keep you posted...It may be something to ask your treating physician about though.

 
Old 04-02-2008, 06:51 PM   #11
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Re: Focal Nodular Hyperplasia and Pregnancy...also elevated liver enzymes

Wow, that sounds great. Please keep us all posted on what happens with your FNH. If that can be done, it is always helpful to let people know about it...that is what we are here for.
Thank you for the prayers and you are in mine!
Katie

 
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