Hello, everyone. I am Robin, 33 year old mom of a sweet daughter. I had a kidney stone a while back that required surgery and when I got the medical records to transfer to my doctor, I noticed that they mentioned a liver lesion. Nobody at the hospital had told me about it. I mentioned it to my doctor.
Well, two CTs later, I found out today that it is a liver mass. They are scheduling an MRI.
What does this mean? I looked up information on liver masses and found that there are benign ones but if it is liver cancer, I would only have a 5% chance of surviving the first year!
I've had many health problems over the years (lupus, fibromyalgia, PCOS, asthma, plus a cyst on my ovary right now) but this scares me more than anything ever has.
You are jumping too fast like I did when they found mine. Liver cancer is rare and usually spreads from somewhere else in the body. It could just be a hemangioma which is not removed unless it causes problems or FNh. In my case I had a adnemoma which is a beign tumor. However I had to have open surgery and remove 55% of my liver. I am six weeks out of surgery and doing remarkable well. They say it is caused by birth control pills. You might check out the other boards FNH verses Adenomas. This thread is one through eleven. I would take things a little at a time and I would also consult a liver surgeon to view the films. They have seen enough to know what it is. Adenomas can rupture causing severe pain and are life threatening. They also can turn to cancer. They have to be removed. Try not to think the worst as I did being a mother of three. I am here for you and will answer any question you have. We support each other.
Robin, I know how you feel but do not panic! This could be benign. Have you had any blood tests done? Ask lots of questions of the doctors and us. Do not jump to conclusions .... it is more likely that they are benign. Hang in there.
I went in for an MRI in February to see if I had a kidney stone and they too found a 7cm size mass in my liver and after many scans, determined it was a neuroendrocrine tumor. I had 60% of my liver removed in June and the biopsey was benign but not the primary spot so they will continue to do scans. My doctor feels that this all they will ever find. I'm doing great now.
As the other ladies have said, these are usually benign. you must see if poss a liver transplant specialist in your area who can give you more info. i had a 7cm FNH benign tumor removed in march this year. they took 30% of my liver. i am also 33 years old and i have 1 son. my immediate reaction last november when i found my lump was - "i have cancer". its a normal reaction but please dont jump to it. there are about 15 ladies on the "ademona, FNH and hemanginoma" thread and we are all a great bunch of girlies who will be able to answer some questions for you. We are currently on thread number 11 but if you have time please read back. i could not have got thru without these special ladies. These tumors or masses are mainly associated with oral contraceptives. Have you taken these before?? They will probably want to do a CT and MRI with and without a contrast dye which they put thru an IV. You will need to get bloodwork done although mine were all normal during the whole ordeal.
Please try not to worry too much. Several of us have now had the resections done on our livers and some are happy to just "watch and wait".
We are all here for you hun, and its so surprising how many of us have these inside us. Hemanginomas and FNH can often be left there as long as you are symptomless, whereas adenomas usually have to come out, as potential risk of rupture and a small chance of turning cancerous.
General rule of thumb is anything over 5cm needs to come out.
Sorry to suddenly find myself part of this group, but it sounds like you do have some great experience and encouragement here.
I'm just at the beginning of this course: following up elevated ALT levels, US found "ill-defined" hepatic mass 5 x 4.3 x 2 cm. Next step is CT scan, which here in health care heaven involves a 3 month wait.
I don't feel ill, although I would feel better if gallstones had not just been ruled out as the cause of the occasional GI pains I have been having! So maybe the pain is related to the "mass."
One question I have, from reading your posts about the difficulty of diagnosing some of these lesions even after many types of tests, is whether CT is the most likely scan to lead to a diagnosis, or is merely cheaper than, say MRI. If I were to arrange for a private test sooner, what should I arrange?
You are welcome. Did you find a liver surgeon or transplant specialist? Have you had mri, ct, or sulfur collied scan? None of these are painful and hopefully they can tell from them.
You are going to be fine and I will hope and pray for you that it is not surgery. Hang in there.
I've read that CTs are better at seeing "soft tissue" structures in the abdominal area. CTs also good for heart/lung, although a plain old chest xray, also good to dx lung problems. MRIs i've read, are accurate for pelvic area.
Wanted to add, I also had surgery almost 3 weeks ago for a liver hemiangioma. The reason I had it out, was they had found a "mass" from a routine CT, that appeared to relate mostly to the stomach. - they thought I had a rare gastrointestinal stromal tumor or carcinoma (cancer) and said it had to be taken out. thankfully it was a completely harmless hemiangioma and the surgeon said the surgery was totally unecessary, but of course they thought it was cancer, so had to check.
So all summer I was worried sick. Now 3 invasive tests and 1 unecessary surgery later, I found out this whole mess was a complete waste of time. BUT, I am very thankful it was nothing more.
Anyway, try not to worry as I think the chances are good it will be something totally beneign. sometimes I think these CTs cause more trouble than help, as we all have weird things probably sitting in our body that are totally harmless, but those CTs pick up everything.
Good morning RoseRed, I saw you were scared, I wish I knew more about your liver issues but I know if someone said" tumor" to me and Liver in the same sentence I too would be greatly alarmed, from what others who have written you it seems more often than not something that turns out ok. I have found when I first hear what I call the "dreaded diagnosis" I take it all in then I immediatly start my homework such as I did in coming here just to get a feel for whats going on and why, then I do good old text knowlege and always look at actual facts, Im still personaly waiting for more results so Im going about my buisiness as usual and on with life and hoping whatever it is is managable, the wiating is probably the hardest part for most I think. Try to enjoy your weekend and sending you a smile.
one more thing.... when I first read your posting name I thought of ROSE RED the Movie, I hate scary movies but that one is one of me and my daughters favorite we laugh because we nknow all the scenes and words(shes 22) and we laugh it up,, hope made ya smile just a tad.