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Old 09-07-2008, 10:26 PM   #1
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Question Hypoechoic Liver Lesions Are They Usually Malignant?

As I haven't had any responses to my liver hypoechoic question I was really searching on here today as I am so very very worried. I have been in pain all day - especially under my rib cage on BOTH sides - left and right, feeling sick to my stomach, just feeling awful. I did find one post that states (although this was for thyroid) that hypoechoic lesions are most often malignant. Are there cases where these are NOT malignant? What percent normally are or aren't? Would this also be the same for liver lesions as it is for thyroid? Could someone please give me some info on this if you can help out? I have to insist on getting more testing from these doctors and not just let it go another 6 months. Especially if there is a chance they could be malignant. Perhaps that is why they seem to be spreading so fast and the original one is growing. All I do know is this is making me crazy with worry and if someone would just write a reply email about what you know (or just some support) I would be so grateful. By the way, am cutting back on the Xanax and believe me, when I am done with weening off I am not ever going back on. I feel shaky but am doing it slowly as I have to. I truly think that stuff is the main reason all this is happening - especially if it has damaged my liver to a cancerous point. My doctor should have never given me that stuff for 9 years - tinnitus or no tinnitus - but I have to move forward and not do the "should have, could have" thing now. PLEASE someone reply to this. I need help and just having someone respond will ease some of my pain. I keep looking on here but no one answers or replies to my other 2questions and it is so depressing. Hope to hear something from someone. Thanks. Linda

 
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Old 09-08-2008, 07:18 AM   #2
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Linda, I am sorry you have not had responses. I had to look up your liver tumor. I was not sure what it was, so I do not have any words of wisdom. The best thing I can offer is make sure you are with a liver surgeon. Try to find a teaching hospital and has a liver transplant unit, these are the doctors you want helping you.
I am one of the ladies that is in the FNH/Adenoma support thread. I had a 9 cm. Adenoma removed 5 months ago. I can relate to how scared you must be feeling right now, but I do not know much about maligant hypoechoic liver lesions. I do think that unless you have a very skilled radiologist, sometimes they can not tell what kind of tumor you have. I was at University of Cincinnati Hospital with the director of the liver transplant unit and he was not 100% on all of my scans. I had three scans, ultra sound, MRI and a CT scan, they all included the chance for carcinoma on the reports.
The best thing you can do, but I know it is not easy, is take a deep breath, and try to search for answers. If your doctor thought you had cancer, he/she would not put you on a wait and see schedule.
What kind of doctor are you seeing? What scans have you had done? Have you had a biopsy?
I am sending hugs your way and will try to help anyway I can, at least help get you to ask the right questions and see the right people to get the answers.
Sorry I am not more help,
Katie

 
Old 09-08-2008, 09:36 AM   #3
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Linda, hypoechoic masses are not necessarily malignant. My lesions (which were adenomas) were listed as hypoechoic. Hypoechoic simply means that the tissue is giving off echoes.

You should see a liver specialist however.

Beth

Last edited by bethegk7; 09-08-2008 at 09:37 AM.

 
Old 09-08-2008, 09:50 AM   #4
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Hello Katie,

Thank you so much for answering me. I have only had an MRI that showed Fatty Liver in May and no lesions. Not a concern to the doctor. Then a couple months ago an ultrasound that showed one lesion they called it a non-cancerous type - hemangioma? or something on that order. Said we'll watch it, not to worry, very common and have another scan in 3 months. So I did a couple weeks ago and this last ultrasound showed another lesion (didn't tell me what size) near my gallbladder and the original lesion had grown from 1 cm to 1.35. The nurse seemed very concerned I get in and have the CT scan to try to get to the bottom of these lesions, but I am highly (and I mean highly) allergic to the iodine IV so I told her that I couldn't do that one with the contrast. I am seeing my ob/gyn this afternoon at 4:30 to get on track and be sure this is not a spin off of ovarian cancer or another cancer that has been brewing. But when I called and told the nurse I would rather not take the chance on having that CT scan with my bad reaction previously she got mad and said "Well we'll see you in 6 months I guess". So it really was not a doctor related thing. I am not sure if my doctor even knows about all this except a cancellation of a CT. I am supposed to see him in Milwaukee on Sept. 30th but after that nurse treatment I an not sure - I haven't canceled anything yet with him.

I called the Cancer Center Of America which happens to be only about 35 minutes away from me in Zion, Il. and spoke with a lady there. She told me to get the AFP test as soon as possible. If it showed positive then their cancer specialists would be able to take over. I have a lot of faith in this place. Have heard wonderful things about it. So today I am going to ask my ob/gyn if he will order that test as well as a complete liver/kidney panel and blood panel. I am surprised my GI doctor didn't already offer to do that for safe measure, but I just got his crabby nurse. I recently had a perfect colonoscopy by this same Milwaukee doctor. I have been having pain on both my lower ovarian areas/back for some time but my previous ob/gyn (who left for Denver) just blew me off when I saw her a couple months ago. Did no testing for that at all and said "Oh you don't have ovarian cancer." Why all the pain??? Then this liver thing shows up.

The only reason I thought it might be cancerous is because on a post here I read that MOST hypechoic liver lesions are malginant but again, that doesn't mean always I guess. I was not told by anyone yet that it is cancer. I am hanging on the thread of MOST right now and praying they aren't or are some different kind that aren't. However the worrisome thing is that I am getting more than one and the original has changed in size. Wish I knew what size the new one is. I suppose people can get several liver tumors and they aren't cancer. I just am in pain and depressed that these doctors seem to just not be in a hurry to do anything. I think, however, that the GI doctor in Milwaukee may not be aware of what his nurse said and I will call if my ob/gyn doesn't order another MRI of my upper and lower areas. For that I have to be sure my kidneys are at 100% because of all the problems associated with the IV fluid used in the MRI's. Have you read about all the lawsuits on this?? It's horrible. But I guess the main thing is to get that AFP test (and others) done, according to the lady at the cancer center. And then pray pray pray. I still need these lesions attended to, even if it says I don't have cancer at present. I am in pain and they can probably turn into something later. I don't want to risk that. I also just wasn't sure if the Xanax I had been on for panic attacks and tinnitus these past 9 years might not have damaged my liver. I wouldn't be surprised. I am so sensitive to any medications, but the Xanax was about all I could take that kept me out of the ER. My blood pressure floats up and down alot too and the Xanax always lowered it. I would take 2 (per doctors order) and lie down immediately. Within about 1/2 hour it was down. I did have a severe dizzy spell Friday night. It was rough. Almost went into the ER then, but our ER here in Racine is NOT good. The nurses at the hospital even call it the butcher shop. Isn't that something? So I have no faith in anything here in Racine. There is Froedert Hospital in Milwaukee that is a teaching hospital. It is one of the best around here. I do have options, especially if it isn't cancer but these lesions are coming on.

Katie, thank you so much for writing me back. You have no idea who your note helped me. Just knowing that I have someone out there listening has made all the difference this morning.

I'll keep you posted and if you do find out anything or some other members in your group do, PLEASE write me back. I am feeling so down already, cannot even think about breakfast. Well, I am sure you understand all this Katie.

Big Hugs and thanks again,
Linda P.

 
Old 09-08-2008, 09:58 AM   #5
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Hi Beth,

Thank you so much for your reply. It has helped me a lot! I just am so worried right now. You can read more in the note I just posted about what is going on.

Thanks again Beth,
Linda

 
Old 09-08-2008, 01:34 PM   #6
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Linda,
You need to take that deep breath now. Find a liver surgeon close to you. The Froedert Hospital in Milwaukee does have a liver center, I looked it up. It would be good to find a liver surgeon there. The GI doctors are good, but they do not see these tumors every day. I have heard some scary stories from other women about what an uninformed doctor has told them about their tumor. Please keep us posted and yes, we are all here for you, even if it turns out to be nothing. This is a scary time for you and we understand that.
Hugs,
Katie

 
Old 09-08-2008, 10:07 PM   #7
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Hi Katie,

Well my ob/gyn ordered the CA-125 test but nothing else. Guess he didn't know about the AFP test that can tell most people if they have cancer cells floating around in their bodies from somewhere other than the ovaries. Said that test was for pregnant women only. I have done my homework and I know for a fact that test is a real good one for cancer detecting. Sigh....oh well. But I had the CA125 test and will know something perhaps by Friday he said. Then I have the pelvic ultrasound this Thursday but after examining me he didn't seem to think it was anything ovarian. Do you think I should have that test anyway or cancel? It is SOOOOO uncomfortable for me. I honestly need another MRI first I would think, which can check both the liver AND my pelvic area. Any input or thoughts? Still having the pain on both lower sides, but he said IBS?? But then he did make it a point to say that is not his field and I can certainly understand it.

I found it strange the doctor never even had me take my top off to check the bloating and I guess since I have had female doctors for years, I found his attitude not the best. Maybe he does better with females who aren't in menopause. LOL. Nevertheless I am hunting for a female ob/gyn. Heard there is a new one in town but at a different clinic than I have used all these years. ALSO am hunting around for a good liver doctor/surgeon. My current (if you can call him that) GI doctor is rated one of the best in America right now. He's from GI Associates in Milwaukee, Wi. - Michael Schmolz (I may be spelling that wrong). I imagine I will contact his office before this upcoming appointment on Sept 30th with him to see if I can get in sooner to talk about what other options there are. If not, I will have to find someone at Froedert.

Have had aggravating pain most all day. And I am tender to the touch where I am assuming those lesions are. Yuck. I am so tired of this feeling rotten.

Gosh, I cannot tell you how happy you all have made me by replying to my posts. This board is a lifesaver for me. I look forward to keeping in touch on here. And I learn everytime I read things others have posted. I can't thank you enough.

Time to try to get to sleep. Another thing that has been getting rough. And I used to sleep like a log. Not anymore....but tomorrow is a new day and maybe I'll feel better.

Hugs to all and especially to you Katie,
Linda

 
Old 09-09-2008, 07:47 AM   #8
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Hey Linda, I sounds like you are having a lot of tests done. I think the best thing to do is collect all of your records, scans and blood work and bring it with you to your appointment on the 30th. If this doctor is good, he will let you know if this is out of his league. Liver tumors are rare and not many doctors know much about them, even GI doctors.
The waiting is the hardest part. Beth said that hypoehoic liver lesions are like what her and I had. Adenomas and FNH can cause pain, bloating, nausea. I had heartburn for years and just kept eating tums everyday. I have not had heartburn sense my surgery. It is a beautiful thing!
So, keep asking questions, bring everything you have with you and don't have anymore scans done until you meet with your GI doctor or a liver surgeon. Sometimes they like to order other tests and you could be wasting money if you are getting things done now.
Hang in there, we are here for you!
Hugs,
Katie

 
Old 09-09-2008, 06:10 PM   #9
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Hi Katie,

Well I did get my GP doctor to order up and do the AFP, a complete liver panel and kidney testing via bloodwork today. So my GP won't be in the office till Thursday, although the blood results will be in tomorrow. Like you said, waiting IS the hardest part about this.

I can hardly stand this bloating! My jeans just barely go around me. Thank God they have a stretch waist. Only thing I have been able to wear the last few months. Miss my zippered jeans which would never fit me now.

The bloating had seemed to have gotten better about a week ago because these same pants were actually loose. Now they are real tight again, but I am losing weight on the scale. So tummy goes up and down. I am so tired of this. But at least in a couple days I'll know something - one way or the other. Am really scared, but am trying to relax and take deep breaths. Not easy for me though with my panic disorder and anxiety. Praying alot. And I have cut my Xanax down to 1/2 the dose I was on before...now only 3/4 mg. a day TOTAL instead of the 1.5 mg I was on before. It really hasn't been that bad but then I wasn't ever on a real high dose like many people are. I just wonder if that is why my liver got messed up? I probably always will think that might have been the reason as I am so sensitive to drugs. I am going to call tomorrow and put the pelvic ultrasound on hold. Not worth going through all that pain, etc. when the blood tests will show something Thursday.

Well I am going to try to get some work done here. Can't sit that long anymore. The compression on my stomach hurts so bad. :-( But I'll throw some movies on and try to watch them as I do my work.

Bless you Katie and everyone on this board that is in need and all those that are offering help to us. Please keep me in your thoughts the next couple days and I'll let you know the results as soon as I get them.

Hugs,
Linda

 
Old 09-10-2008, 04:40 PM   #10
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Katie,

Just something that is going on and should I be real concerned? On the left side of me, right below my left breast, there is pain and it is pretty much constant now. I still get the pain twinges on the right side where they found the first lesion but this left side has taken over more intensely. All the nurse said was that they had found a second lesion near my gallbladder. Could that be it? I was doing reading on here and am concerned about the possiblity of a rupture and bleeding. Our ER is not good!!! I get my bloodwork results tomorrow and then hopefully another MRI ordered asap. Again, after reading, it seems that we all go through tons of these tests and they still are not sure what the lesions are. I got that feeling from my ob/gyn who was trying to read what the radiologist had said about their findings on Monday. Seems they more or less were saying if this doesn't answer the question, do this or this with the final thing a biopsy. I am trying to find a good LIVER SURGEON at Froedert Hospital in Milwaukee but seem to be having a hard time on the internet here. Any suggestions?? What am I missing in my search? I do believe that a hepatologist/liver surgeon is the only way to go to try to diagnose this thing. I am finding my appetite has dwindled down to almost nothing and I feel full right away when I do try to eat something now. That may be my nerves too, but I just feel lousy. I also note that the left side pain is increasing every day so wonder if that lesion is growing really fast or if it is sticking into my stomach or doing something weird? Stomach burning too - like acid reflux. I had an endoscopy done in May and they took a tissue sample which was negative then - showed some stomach inflamation. But of course just had the fatty liver and no lesions at that time. Plus not all this odd pain either. If you have any thoughts on this, let me know. I am worrying myself into a frenzy here. Sigh....Hope to hear back from you or anyone else who might have or had these symptoms? I realize it could be something not even related to my liver, but have a strange feeling it is. I took my waist and belly measurements last night and almost fainted. BLOATED!! Gosh. What a nightmare. I am so afraid of surgery too, especially after my fiasco in 2005. I also read about when they pull out the drainage tube and the pain. I agree. I thought I was going to have a heart attack - it hurt so much. And no one offered me anything beforehand either for pain. Yikes! I am just so scared.

 
Old 09-11-2008, 10:09 AM   #11
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Linda, bless your heart...now breath. You sound like Nessie and I were back in February. We were both a mess, and now look where we are. The hardest part is getting a true diagnosis. Is there a big teaching hospital in your area? Is there a liver transplant unit in your area? I looked it up and see the Froedtert & the Medical College of Wisconsin has your transplant unit, all you need is for someone to refer you to a good surgeon there. Call the hospital is you have to, at least it will help to keep you busy.
As for the pain part, I never had any pain, but some of the other ladies on here did. Post your pain question on our support thread and someone will have more info an me.
Hang in there dear. I promise, if you get with the right doctor, they will know what you have and what you need to do. My doctor sees many of these every week, so I was lucky to go straight to him. If you have no luck up North, come on down to Cincinnati, and go to my surgeon.
Hugs to you today!
Katie

Last edited by kt8889; 09-11-2008 at 10:10 AM.

 
Old 09-11-2008, 11:36 AM   #12
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Dear Katie,

Well I got a call this morning from the doctor's office and he wants to go over my test results in person. This is the first time in all the years I have been seeing him, that he's requested this. I have had oodles of tests run too. When he diagnosed my dad with lung cancer in 1994 he had him come in the same way. I am totally scared out of my mind. I go in to see him at 2pm today, about another 1 1/2 hours from now. I hardly slept last night. Well I'll try to post on here what the outcome is. Gosh, what a nightmare Katie.

Thanks for listening....

Linda

 
Old 09-11-2008, 12:46 PM   #13
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Linda, you are in my prayers, please keep me posted.

Katie

 
Old 09-11-2008, 05:17 PM   #14
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Dear Katie and all,

Well so far the cancer blood tests they took appear to be negative. Very low readings. He reviewed all my test results with me and they were actually better than in April 2008. Scared me to death though when he wanted to see me and I got in the same day.

So for now another abdomen MRI is being scheduled next week and we'll go on from there. Thank you sooooo much for your thoughts and prayers. I know they helped me.

I am sitting here drinking of cup of organic green tree. I heard it is supposed to be really good for you. I steeped the tea bag in hot water and didn't add anything. Just the tea itself. Not the best tasting but I can handle it. Read a report in the new Reader's Digest (October issue) today about how at the University of Mississippi Medical Center researchers gave water mixed with a green tea antioxidant combination to mice with breast cancer. After 5 weeks, their tumors were 66% smaller and 68% lighter than those in mice who just drank water. Now I realize we are talking mice here, but has anyone had good results on liver conditions or other medical issues that got better or resolved after drinking green tea? Would be interested to know.

Also wouldn't that be wonderful if something that we have so readily available and at such a reasonable price, could actually help heal tumors and such? Well I am going to keep drinking it unless it starts to bother my stomach. (So much does). Sure can't hurt I guess.

Thanks again and I'll keep you posted on what happens next after MRI scan and findings. Plus if anyone else drinks green tea and if they find it helpful for anything, I'd like some input.

Hugs,
Linda

 
Old 09-15-2008, 12:22 AM   #15
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Re: Hypoechoic Liver Lesions Are They Usually Malignant?

Hi All,

I need to ask a question perhaps you can help me.

My mother was diagnosed with breast cancer in October 2007 and so far they haven't done a mastectomy, they just did radiotherapy and chemotherapy.

This week, she did an abdominal ultrasound and in the letter for our GP, there was written that "the liver contains numerous hypoechoic lesions throughout measuring up to 5.3cm in diameter". Our GP said it is sugestive of metastasis but I still don't know what hypoechoic lesions are and I also don't know how serious it is.

If anyone can help me, I'd be very grateful.

Thanks
Maria

 
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