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Liver & Pancreas Disorders Message Board
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Old 09-24-2008, 08:05 AM   #1
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lourash HB User
need help understanding ct results

I wonder if anyone understands what this probably means. I had a ct which found a 2 cm hemangioma a while back. I had another ct done for blood in the urine before a cystoscopy one month ago. Well I also was having trouble with an enlarged ovary. The pain was worse so I called the doc and had to have another ct scan a few days ago. It shows a difference in the one from last month. It reads "two new small low density areas in the liver , these are too small to characterize , but a follow up ct scan in a few months is recommended. Could these be new hemangiomas from the sound of it. I would guess they are not too worried or they would have done further tests. My gyn wanted to put me on birth control pills just to stop further ovarian cyst. But I have been told they make the hemangiomas bigger or can cause them to bleed. I don't want that so I am not going to take them. I still have yet to find out the cause of the blood in my urine since the cystoscopy did not find where its coming from. I just want to get everything fixed this year since I have crumby insurance and have hit my deductible for the year.

 
Old 09-24-2008, 07:15 PM   #2
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Nicky927 HB User
Re: need help understanding ct results

I also found out I have a liver problem (Fatty Liver) and I'm thinking of stopping my birth control because of it. I heard B.C. can cause liver problems or worsen existing ones. And I feel you on the deductible thing, I too reached mine, AND my insurance sucks. I don't really have a choice though since I'm in a union.

 
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Old 09-24-2008, 09:25 PM   #3
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gcbpgh HB User
Re: need help understanding ct results

Hi, I don't know how much help I can be but why did they say your ovary is enlarged. About 14 years ago I had a 10 lb tumor on my right ovary that caused a lot of trouble , it almost injured my kidney.....2 years later I had the same thing on the other ovary... I would not go on any type of estrogen.....I had been on it since the removal of the first tumor and ovary and have had nothing but problems.....though there is no proof but many studies regarding hormone therapy......I do have cirrhosis, one doctor has said its from fatty liver the other one says it auto immune hepatitis from sjogrens.......I don't think any of them really know.......if I were you I would take care of the ovary first and then see what happens with the liver......and I would definitely make sure I had the best liver doctor in the city.
good luck....
gcb in pgh

 
Old 09-25-2008, 05:03 AM   #4
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estria HB Userestria HB Userestria HB Userestria HB User
Re: need help understanding ct results

Lourash,

Find another doctor !! Any doctor that would recommend you take birth control pills when you have a hemangioma and 2 other possible lesions on your liver obviously is not worth his salt. Thank goodness YOU happen to know that the pill can make any liver issues worse otherwise you would have followed your doctor's advice. Good for you ! Many doctors are not aware of benign tumours that can develop on the liver due to birth control pills because this is quite rare (but it does happen and you don't want to run after this). It BEHOOVES me that gynecologists are not aware of this possible side effect of the pill. They of all doctors should be.

If you are able, find a liver specialist and get another opinion on the liver issues and find another gynecologist to address the ovary issue. If the ovary becomes severely enlarged you may have to have it removed. Your other ovary will take over for the two though (unless this other one was already removed). One thing is for sure though, HORMONES AND LIVER ISSUES DON'T MIX so be careful about any advice given regarding hormones.

Take care of yourself and I hope you get some sound medical advice shortly regarding these issues.

Estria

 
Old 09-25-2008, 05:47 AM   #5
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lourash HB User
Re: need help understanding ct results

thanks for your posts! I am not sure weather or not to see a liver specialist or not.I just don't know if the low density spots since they are small are anything to even worry about. Can the hemangioma cause trouble ??

I have already decided about the ovary -- I will not take hormones , but the doc won't remove the ovary due to the adhesions from the 6 previous belly surgeries.

I still have not learned what is causing the blood in my urine _ my cystoscopy was fine , but my gfr is in the 60's even though my bun and creatinine are fine. I asked my urologist about it and he says don't worry about it since your bun and creat are ok. So I guess I won't get that figured out.

But yesterday after going to a second opinion about my breast problem , I got a diagnosis ---- papilloma and fibrocystic breast disease. So now I have had two of the problems figured out my precancerous skin on my face is now treated and doing great and now i know why I have breast pain and discharge.
So I guess now I have to decide weather to see a liver doc or a kidney doc , it seems everything happened at once. I would not worry so much if my insurance covered office calls. I cannot believe what docs charge for a few minutes!! My urologist charged $546.00 for about two minutes and ordered my ct and my cystoscopy and my gyn charged like $200 for the office call. Now I have seen two breast surgeons and the family doc and might need to see a liver doc and kidney doc. I really feel sorry for those uninsured I guess they can't afford healthcare.

 
Old 09-25-2008, 07:38 AM   #6
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tinyt3 HB User
Re: need help understanding ct results

lourash.

I agree with the other ladies do not take the birth control pills. I had the same spot on my liver and it turned out to be an adenoma which is a precancerous cell. On June 26th I had liver resection by open surgery. They removed 55% of my liver to get the adenoma. I am now three months out and doing great. However it could have turned to cancer or ruptured. They could not figure out what it was until I saw the liver specialist. He knew right away but said they cannot tell for absolute until they take it out and sent it to the lab. He was right on mine and surgery was the right thing to do. I am alive and have a second chance thanks to my surgeon. I was told never to take any kind of hormones or have anymore children. Being 34 and having three children, I am okay with that. I too have lots of bills now from crappy insurance but they will just have to work with me. You might check out the threads FNh/hemangioma versus adenoma. They are on number twelve but if you go back to some of the older ones there is a lot of information. I was told it was rare also but if you read those threads there is a lot of ladies with these conditions caused from birth control. Some weeks there are new members daily. So how rare is it really?
TinyT3

 
Old 09-25-2008, 09:27 AM   #7
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Re: need help understanding ct results

Hi Tiny3,

Great to hear that you are doing well ! I totally agree with you about doubting the stats. Supposedly without b/c pills this type of lesion occurs in about one in a million and the pill increases this risk by about 40 times (!) so it becomes one in twenty five thousand. However, if these things are not tested for and they don't cause any problems (ie. they don't burst) I wonder how many women are walking around with them. Not sure they have tested for this since it does not affect enough people for their wallets (oops, sorry that just "slipped" out).

Lourash, I am not sure if what you have should be of great concern or not but why sit and worry ? See if you can get in to see someone who is specialized in this area so that you can rid of that doubt. If you can afford it, of course. I know that specialists are not cheap but even if you can go in for a short consultation with all of your test results and scans, I am sure this would put you on surer footing.

Take care and all the best to you.

Estria.

 
Old 09-25-2008, 09:29 AM   #8
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gcbpgh HB User
Re: need help understanding ct results

You have a lot of decisions to make but I can only give you advice from my own experience and I would not ignore the ovary.....when I had the first 10 lb tumor on my right ovary I had no idea....no symptoms.....just heavy bleeding which I always had and at that time my weight was fine.....it wasn't till they removed it and I went on estrogen that my problems started.....but the tumor could have done more damage if not removed so again I would suggest you not ignore it, find out if they can at least see the how big it might be and if it needs to go....immediately.....then see what is next in line on priorities. Ovaries can cause lots of problems. Do some research on line on ovarian cysts and tumors and mine were benign both times......but hormones can throw everything off......
gcb in pgh

 
Old 09-25-2008, 10:30 AM   #9
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lourash HB User
Re: need help understanding ct results

Well I talked to my doc and she said she is not sure if bc pills will make it worse or not. So I have decided not to take them cause the doc that diagnosed my benign breast disease said it will likely make the hemangioma worse.
My cysts are now only 2.4 cm on one ovary and 1.4 on the ovary which that is small. The pain is gone now that the large one and the enlarged ovary are much better.

I really don't want to have another expensive ct of the liver , but the doc says do it anyway in 6 months. She said it likely a couple of cysts. She also said they just watch them to be sure they don't get bigger but they are not anything to worry about. They don't need treatment.

That made me feel better, so at least I got good news about my blood in my urine even though they did not diagnose it. And my ovary is better for now at least but give it a couple of months or so. And she does not seem at all worried about my liver dots or hemangioma so that makes me relieved. Now I can start looking forward to no more doc appointments for a long time!!

 
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