texasmom59

The first 12 years were great. I could go anywhere and do what I want. Did not go back to my job as an accountant as it was to many hours in a hostile environment (to many people and germs around). But I was doing good. The past 3 or so years have been gradually more difficult as I have almost no immune system left and get infection so easily. I stay home most of the time and avoid theaters, concert halls, shopping malls, grocery stores, and public places. This year I have had three epidosdes with 2 hospitalizations, one session of 12 days at the Infusion Center getting IV's every morning of antibodiacs and fluids. My kidneys are very touchy and I get hydrated easily and then the creatine number goes up. Don't mind staying home with my quilting projects and books to read. My husband (the last of the good ones!) is retired and home with me and supports me in many ways. I take 150 mg of cyclosporine twice daily, 5 mg of prednisolone, iron, calcium, blood pressure meds, and the usual vitamins. I am anemic and very weary and can sleep a lot. Have muscle spasms in my back right now as they tell me the cyclosporine has damaged my muscles. Also have arthritis and have had 4 hip replacements over the last 30 years. The aching and tiredness gets to me sometime. But I think it has reached that anything I complain about is caused by the cyclosporine. Or it's a good excuse for the doctors to brush me off. This is too long!