My 33yr. old daughter-in-law has had nausea and vomiting, enlarged liver, elevated counts for several years. She has been tested negative for all Hepatitis and recently had a negative biopsy. Tests on her gall bladder have also been normal. This is a chronic condition that has forced her to stop working. She knows when she is going to have an episode because she smells a strange odor and her sinuses fill up with a heavy mucous, then her back starts to hurt and her nausea and vomiting starts. She is under the care of a team of doctors who have consulted with liver specialists in the Boston area, but they are stumped. She has no quality of life. Please help.
you may not have mentioned this but i don't see where they have actually done any types of real scans of her liver? an ultrasound(this would show alot and also check the very important bloodflow thru her portal vein too)? CT? anything? Marcia
Sorry, yes they've done all that stuff, nothing shows. Since she has this funny thing going on with the strange odor and heavy mucous, I told her to get them to do a culture. She says she's mentioned those symptoms to every doctor and no one's commented on it. I told her she has to fight to get anywhere with the medical people and to insist they do a culture. What could it hurt?
one possible doc she could see would be some type of infectious disease doc. i do know at the university teaching hospitals they do have teams of these types of docs on staff there. my son had to see this type of 'team"(among having like five other teams of different docs there) when he had a very insane bile duct infection that was part of his liver failure from another actual liver disease.
this is just what i would do if i was in the situation she is at this point,since "something" is very obviously wrong here with her liver. they WOULD be able to do any types of needed cultures or specific types of tests that alot of other docs just don't do or even know about. these are specialists in just trying to figure out many different possible types of even remote or rare types of infections and or viruses. this just could be a very rare or very seldom seen type of issue ya know? but this is where i would go at this point. it would appear that no other type of docs have been able to figure this out yet so you move onto someone who possibly could. just a good suggestion for you. please keep me posted as to what you find out,K? good luck,Marcia