Hello all... Was hoping for anyone that has had a similar exp like mines. A poster had recommended me to this section for answers. Thanks vh90453.
First off, I have been exping some really bad abdominal pains on my left side the last 2-3 weeks or so. Very aching and sometimes painful. Its something that came and went. I visited my doc and he did his usual exam. He felt that i should get a CAT scan. My schedule for a cat scan was on Jan. 7th. Really bad Nausea set in just right after my visit with my PCP, I'm guessing this was a new symptom that had just come up.
I got my scan on the 7th and got my results in about 3 days with some unfortunate news. A growth/mass was found on my liver. And the doctor recommended that i get a sonogram/ultrasound right away. I had scheduled my ultrasound for Jan. 13th which is today. I just came back from doing my ultrasound and the nurse says it would take about 3 days for results to come in. Obviously for people who are reading this will know that cancer is the first thing that will come to my mind. I'm very nervous on the results.
I have always had problems with constipation in the past. Never really solved the problem. Had a colonoscopy done last year and came up with a "good" status. I was on stool softeners, laxatives and tried eating a healthy diet. Things have definitely improvement now that I have changed my diet but now this happens. Anyone have had a similar exp to mines? Any replies is appreciated. thank you.
I went through this at Christmas! What an emotional rollcoaster! I was diagnosed with hepatic adenomatosis (not cancer). At first I was told I had cancer based on my MRI. I was horrified. The hardest part for me was the waiting. Hang in there :-)
Have you had any blood work to check your liver function? How about tumor markers (AFP)?
I'm there with you. A mass was found on my liver 6 months ago. Right before Chrsitmas another MRI was done to find out it had grown. I was very upset all through the holidays. They did another test last week and I'm going Wed of next week to see the results. They say mine is not cancerouse, they believe it to be FNH but I still worry. Good luck to you.
My goodness we were at the same point during the holidays! It was so hard not to let the worrying take over. Finally discovering what I had made such a difference. I hope everything works out great for you!
I understand what you are feeling. I too thought cancer as I know several around me right now with cancer, not to mention my father in law recently passed away with and a dear friend of our just died with it. So my first thought was cancer. Now they say for sure mine is not cancer, its beleived to be FNH but is also seems to be growing. I have had a lot of test done and will go to the doc on Wed to find out the results from the last test. The waiting and not knowing is awful. But if it makes you feel better, you are not alone. I just signed up for this board a day ago. Even though I have had 3 doctors tell me its not cancer, I still wonder about it.
Thx so much for all the replies. As of today I still have yet to get my results. I'll let everyone know what the results are when I get them. If it does turn out to be some sort of tumor, wouldn't some sort of biopsy be done? I didn't know an ultrasound can easily determine if a growth is cancerous or not. I'm surprised that so many people have had this problem. The liver must be an organ that is sensitive to this kind of stuff. I hope one day that a cure is found for this awful disease. To all people that said FNH, can anyone explain what the abbreviation is and exactly what it means? thx again for all replies and future replies.
FNH means Focal Nodular Hyperplasia. I think thats how you spell it. Its called FNH for short. I've been doing lots of research since I found out this is what they think I have. Seems like sometimes you can live with these things and they just watch it for a few years to see if it grows and sometimes they take it out. They seem to think it stems from an injury to the liver. Not really sure. They dont think its Hormone related any more. I'm still learning about this so I dont know all this is to know. Not sure any one does. I have heard no one has ever died from FNH. It is not cancerous and so far none has turned into cancer from what I have been reading. My doctor says they usually stop growing at some point on their own. I get yelled at for doing so much research on the inernet. They keep saying STOP as it might be wrong info then I get upset. But I rather know as much as I can about this stuff and about the surgery in case I do have to have surgery. I wont know until I go get the lastest results from the doc next Wed. I will let everyone know then what he says. I pray for good news.
thanks for the info momo. I guess we all have to hope for the best that its nothing bad.
After what seems like forever I have finally got back my results. It took almost a week whereas they said it would take 2-3 days. I don't know what happened. Anyway, there was good news and bad news. First the bad news, unfortunately it is NOT a cyst of anykind. It is indeed a tumor. However, the good news is that the tumor is a Hemangioma kind of tumor. I really don't know what that is. They said it is benign and not cancerous. However they did recommended that I do another ultrasound follow-up test 6 months to keep tabs on it. To see if it increases in size or not. I don't know whether if i should feel happy or worried. Right now I am worried just because there is a tumor on my liver. And from what I know benign tumors can turn cancerous if given the time. Has anyone heard or experienced this Hemangioma? PLEASE, if anyone has had a similar experience or know a lot about it, some information is really appreciated. thank you!
I just had two hemangiomas out Nov 25th of 2008. I knew about them 13 years ago when they were little things but over time they grew to 12 by 9 by10 cms. They didn't worry about cancer when they first found them and when they took them out a few months ago they were what the catscan suggested, just hemangiomas. Everything I have heard about them is that they do not turn to cancer.
My symptoms, and I never quite made the connection, was when I would lie down, I felt that I couldn't breathe well. Apparently one lived near my diaphragm. When they become too large they can displace things inside of your body. I got a compliment today at work (I think): you look less pregnant. I was bulging a bit from them. I think what you have to tell your doctor and really think about is the pain you say it is causing you. That is one thing I read when they say they will consider removing them, also size. I am looking forward to see how I feel when I am healed living without those 2 tumors and maybe you would have less problems too.
Please read the boards that discuss the hemangiomas/fnh/ and adenomas!
thx so much for the reply kathryn... I do have a question. I have never heard of a doctor distinguish a tumor to be benign or maligament through a scan. I always thought a biopsy had to be done to know for sure if something is benign or not. How reliable is my diagnoses since a biopsy was never done. Only an ultrasound.
I don't think an ultrasound can determine much, but I think the cat scan is much better way that they can tell what you have. I have in front of me the radiology report from 1996 when they scanned my liver. It speaks of the contrast and "on the unenhanced image there is a central area of decreased attenuation" and then
"images following enhancement after a twenty minute delay also shows peripheral fill in, which becomes isointense to ............... the delayed enhancement ....is consistent with a large hemangioma"
I didn't understand any of that, but the point is, by the way the mass took up the contrast and what showed up on the film, it convinced the doctors they were looking at a hemangioma.
Yes they did biopsy them 12 years later upon removal and they were what the scan suggested.
I know it is scary, but read up on hemangiomas, ask the doctors lots of questions!
and request that cat scan with contrast!
Today I had a doctors appointment and I was told I have a growth on my liver. I went in for tests about a month ago because of pain that I keep having on my left side....just like yours that comes and goes. I read your first post and it sounded EXACTLY like what I'm going through, same symptoms and all.
They found it from an ultrasound they did. The doctor told me that it wasn't cancerous and that it was nothing I should worry about, but that i had to go back in 5 months for another scan to make sure it s what they think it is.
I'm confused like you, I don't understand how they can know it's not cancer just by seeing a ultrasound. I'm not sure if I should ask for a second opinion or if I should just let it go. My symptoms are getting worse every month, but I don't see how a mass on liver could be causing pain on the opposite side of my body and messing with my digestive system.... I noticed your posts are older, any updates and how you are doing?
My father is livid, he thinks I should demand they explain why they don't think they should investigate further just from the write spot on a blurry ultrasound photo. Should I be worried or just take their word that it's nothing and let it go? They are referring me to a gastrointestinal specialist to investigate my pain and bowel issues further....
I may not be Tommy but I know what you are going through, i've been suffering with a very similar issue for about 6 months now, but i'm thinking possibly longer.
About 5 months ago my doctor sent me for an ultrasound of my gallbladder area because I reported to her that I had pain underneath my right rib cage that was not going away and a feeling as if something was there underneath my ribcage, as well as nausea and really bad stomach issues such as almost daily dhiarhea and constant gas (really fun things for a 32 year old female to have). At that time the results came back being that my gallbladder was fine and the only issue was a mass on my liver "most likely a hemangioma", and I was also told by my doctor that this was nothing, "just a type of birth mark" and it cannot be the cause of my problems.
So I came home and started doing research online about "hemangiomas". I find many websites that say "hemangiomas are almost always symptomless, but when symptoms do present that usually means the hemangioma is near a vein or close to the surface and can be problematic. These symptoms include: Pain in the upper right abdomen
Feeling full after eating only a small amount of food, lack of appetite, nausea, vomiting. If you read the other posts on this forum about liver hemangiomas you can see that almost everyone with these masses have at least some if not all of the same symptoms I have.
So far i've had the ultrasound of my liver that showed the hemangioma and they told me to come back in 6 months for another one, then my doctor decided it is not the cause of my issues and that I had irritable bowel syndrome which I told her I knew was not the problem but tried the medication she gave me anyways (I went to her with my hemangioma research and she practically laughed in my face), after the medication for IBS did not work (which she grilled me about like I was a 5 year old that had done something bad) she decided to send me to a gastroenterologist who also told me the hemangioma could not be the cause of my symptoms and decided I needed a colonoscopy. I knew this would reveal nothing because by this point I was positive it was my hemangioma but I did it anyway. By this point I had some new symptoms added to my list: Really bad leg pains, dizziness, my whole right abdomen was swollen, and I kept putting on weight for no reason. After the colonoscopy came back fine the specialist tried to dismiss me with "well you are fine" and I knew he figured the case was closed. So I said "NO, what about my symptoms? I am not fine!". So he decided to send me for a CT scan which turned into an MRI because they were afraid to give me the UV contrast dye because of my allergies. So right now I am still waiting to hear about the results of my MRI and I still have all my symptoms.
So whatever you do, do not let the doctors dismiss you until they give you a proper answer. My life has been almost non-existent since I got sick and all I want it to feel healthy again but I have a feeling it will still be a while. Do some research, read the other posts on this forum about liver masses and keep going until someone takes you seriously!!!