Hi Nessie,
I am hanging in there, honestly, work has been so busy, I have not had time to think about operation day, and it is 9 days away. I am in sales, so I have been trying to close deals before I am out for a while.
Every day it gets closer, I can feel the stress building. It is hard to go into something and not know what I am going to wake up to, you know?
I will let you know how I am feeling next week. You sound like a very strong woman, we always mask our worry very well, don't we? You hang in there, talk to you soon.
katie
I have an appointment with a liver specialist today re: the, frankly, huge FNH on the left lobe of my liver (6.0 x 7.7 x 6.1 cm)
It does not cause me any problems and was discovered incidentally, so I am hoping he says just to watch and wait, because I cannot have a surgery that will lay me up for months (self employed) nor do I want to have anything removed from me if it does not have to be.
robins23pounds - how did it go with your specialist ?? what have they suggested ?? whatever you decide it will be right for you im sure .
kt - how you doing?? thinking of you lots , not long now hey?? make sure you take it easy and not worry too much . im also counting the days now , going in on 11th march and op on 12th!! Feel like i have so much to do. my last week at work (for a while ) this week - very emotional! Anyway if you dont get time to post back - good luck, i know you will be fine i will say a prayer for you .
Aside from the two hour wait in the lobby, it went fine.
We're going to run a blood test for tumor markers, which the doctor suspects will come back negative, and told me that it is overkill, but I have already been overkilled at this point, so what's another test.
We scheduled a follow up MRI for June, which will be 6 months from the last one. If nothing has changed, that will likely be it, aside from periodic checks.
He does not suggest any surgery, as it is risky, and there are always risks associated with any surgery. Even had he suggested it, I would have asked for a follow up in 6 mos., as I want to avoid surgery at all costs. Ofcourse, he stated there is always a chance that it is something more than just an FNH, but given the CT scan and MRI, he is pretty confident that is what it is.
So, hopefully my petite filet stays right where it is.
This was the news I was hoping for, and expected.
I have an appointment in March for an adrenal adenoma follow up. Seems my body was busy with these "omas"
Hello All,
Nessie- I am getting very nervous... We got back in town last night at 10:30. California is beautiful, I was so relaxed all weekend, but now with surgery 3 days away, I have having trouble holding my own, and I have so much to do at home and at work, it is a little scary. My daughter is going to stay with me in the hospital over night this first night, so we will update when we are able, I promise. Keep the prayers coming this week, I need them and I will do the same for you.
Linda, you live in the most beautiful part of the country. We stayed in a house right on Russian River and it was so beautiful. I got up early every morning to meditate and watch the fog burn off and listen to all the birds.
Robin- Congratulations, sounds like you have a good plan in place. Good idea to keep an eye on it, even if it is an FNH.
I will keep in touch and keep sending out the prayers,
Katie
kt . sounds like you had a fantastic time , im really glad you were able to relax and enjoy! you take care over the coming few days and dont worry about being in rush to do anything. if your daughter can post on here thats great but you just concentrate on looking after yourself. im so glad we have this site for support -it really has helped me . I cried at work today and its only monday - another week to go yet!!!! take care x x .
robin - good news for you then hun. like kt said best to keep an eye on it but brilliant that surgery was not recommended. really pleased that you are happy .
kt - I just wanted you to know that I am thinking about you and praying for you during your upcoming surgery. I'm looking forward to hearing from you again after it's all over!
Judy,
Thank you so much for the prayers. Today is the first really stressful day I have had in all of this. I am just nervous about everything, but I know this is the best thing. Two doctors have looked at my scans and said the same thing. 9 cm.- adenoma,they think that is what it is, it has to come out. Today is my day to cry at work, although, I am the only one in the office today, so I think that is why. Nessie, you are not alone.
My daughter, Kayla, will fill everyone in on Friday as to what happened so far.
Prayers are being sent out to you all too!
Katie
I'll be thinking about you. Stay strong, and when you are blue, try to think about the things for which you are grateful. Keep us posted on your progress. We are all thinking of you.
Hi! knew to site. Here is my story. In Nov. 2005 went to ER with severe flu symptoms. After complaining of pain in upper abdomain ultra sound done to look for gall stones, 3 tumors were found in liver. I was told I most likely had cancer which spread to the liver and was sent to Mayo Clinic in Rochester MN for evaluation immediately. After 3 days of CT scan, Mri, was diagnoised as most likely hepatic adenoma's 7 cm, 3.5cm. and 5.5cm unable to rule out vascular metastases and recommended resection in a month. My insurance company required me to have second opinion, so I went to liver specialist at the Virginia Piper institue in Minneapolis. I then had a nuclear medicine scan which then the doctor diagnosed focal nodule hyperplasia and off the birth control should shrink and yearly ct scan would be acceptable treatment no surgery. I have continued to have dull aching pain and at times sharp pain (doctor says I should have no symptoms). Went for regular scan two weeks ago and the tumors have not changed and I know have a adrenal lesion (does anyone know what this is??) My family doctor ordered scan with yearly check up and sent to liver specialist--He wants to see me in 3 months for another scan at his office. Poor communication between doctors and know one is relaying info. to me. I requested all my scans on disc and the written reports. Concerened about new lesion on adrenal. I have not read anyone with this also. Nervous about why after 2 years i need to go in 3 months versus yearly but somewhat relieved to see liver specialist have not seen him in 2 years. Appreciate any feed back. Thanks
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