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Old 06-28-2009, 01:30 PM   #1
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Question Living w/cirrhosis

I`ve tested positive for hepatitas c about 15 yrs. ago.I was put on interferon treatment for about 6 months.I then had a heart attack & my Dr. told me I`d have to cease treatmment.Tx ceased in 2003.2-3 months ago I had a colonoscopy & although that was all clear my G.I. specialist informed me that I now had cirrhosis.I suffer from terrible FATIGUE & my appetite has decreased considerably.He told me there was not any treatment that was available to me for my cirrhosis.Also my platelet count was very low.
The fatigue is terrible.I`m also on methadone.Is that hurting my liver @ this point?I contacted my Infectious Disease Dr. to set up an appt.Does anyone know what else I should be doing in the meantime?I never drank so I assume this came to light because of my hep c.Any help would be greatly appreciated. Thank you,
Bacalla

 
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Old 06-28-2009, 04:36 PM   #2
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Toonces1 HB UserToonces1 HB UserToonces1 HB UserToonces1 HB UserToonces1 HB User
Re: Living w/cirrhosis

I'm sorry for your situation. My dad had cirrhosis from Hep C. The good news is that we think he contracted it in 1982 from a series of transfusions, but he lived until this year (27 years). He had cirrhosis for the last 16 years of his life. He was pretty sharp until he got hepatic encephalopathy, and then he went downhill pretty fast. He lived a good life, though. He decided early on that he didn't want a transplant, so his medical treatment was focused on chasing the symptoms of liver failure. He had several serious conditions that were pretty well controlled until about a year ago. His doctors tried to convince him to get a transplant, but he had hemophilia so he was scared of the surgery.

Have you thought about a transplant? If you find a good match, you can even have someone donate a small portion of their own liver (no harm to them) and the little piece you get can regenerate somewhat and function pretty well.

One of the main things to do is find an exceptional doctor who you are comfortable with. I think you said you live in NYC, so I would see if you can find a doctor at one of the teaching/research hospitals there. They will have to most "cutting edge" info about treatments, procedures, and medications.

I wish you the best. I'm not an expert, but I have learned a lot about liver disease in the last few years, so feel free to ask any questions and I'll let you know about my dad's experience. I was his caregiver at times and was always in the hospital with him when they were deciding which treatments to go with. He pretty much encountered almost all of the symptoms at some point.

 
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Old 07-06-2009, 10:54 PM   #3
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Re: Living w/cirrhosis

bacalla, I have had Hep C since 1969. Just recently the doctor did enzyme test which was 200 last year. But was 89 when he took last week. He did an Ultra Sound last week and told me I had a Mild Cirrohosis. Not sure what Mild means. I have taken herbs all these years alot being detox herbs. The only symptoms I have is I do tire easily and sleep alot. But I have also noticed I bruise easily now. I had two episodes where my feet swelled and I went to emergency and they said it was gout. But when My doctor took the uric acid test it came out okay. So I am guessing the swelling was from the Cirrhosis. What I would like to know from someone is how long do I have before I get too bad to live alone and care for myself and my 7 pets. I have never been a drinker or taken drugs. I contracted Hep C from the hospital in 1969. My doctors have not recommended any medications except a low dose for high blood pressure, which again is from the cirrhosis. I never ever had a blood pressure problem until about a month ago. My doctors have told me it is best not to take medications unless very necessary due to they all go through the liver or kidney's. But I never really have any condition that requires pain meds or anything like that. Haven't even had a headache in 40 years. I truly think the herbs have helped me a lot. But I wish I could know when this Cirrhosis will really get me. I think it is just now beginning to show it's ungly face. Slowly, I feel and notice small differences in my body from day to day. There is no cure for Cirrhosis, but I take nu-liver, Milk Thistle, B-12, Q10, and a bunch of other herbs to detox everyday. All we can do is try to slow down the progression of Cirrhosis. I am told that even a liver transplant is about 80 to 90% because in many people the Hep C virus is still within the organ blood etc. and can come back..

 
Old 07-06-2009, 11:06 PM   #4
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Re: Living w/cirrhosis

Toonces1
I don't know if you read my post but I have had Hep C since 1969. (40 yrs)Just recently I was told I have a Mild Cirrhosis. What does that men? I've noticed I have small little bleeding bumps that come and go. Twice my feet swelled. Recently my blood pressure wass high 149/99 and doctor gave me blood pressure and it went down to 118/79. I've also noticed spiting more mucus from my throat than normal. So I think Cirrhosis is starting to show it's ugly face. I've taken herbs/ detox for years. Do not drink. What I would like to know is once Cirrhosis begins to take me down, how long before I am no longer able to live alone and care for my pets?

 
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Old 07-10-2009, 06:25 AM   #5
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Re: Living w/cirrhosis

Is age a factor in a liver transplant? Like if one is age 64 or so? For me, no one has ever suggested treatment or a transplant. I'm told to just keep doing what I am doing, suggesting to me that I must not be a rappid declining case. On the other hand, I have yet to meet a doctor that seems he really cares. Most have attitudes like..Well you have Hep C and it is what it is. And I have been to soooo many doctors. I really don't have a lot of faith in their university knowledge. With too many of my friends have blotched surgeries, from slicing a main nerve, to removing something in error, I think I would be affraid to get a transplant. I am not affraid to die, I just want to know what to expect so I can make plans for my pets before I am unable to care for them. I have everything in order in a Trust for my daughter, but it is my pets I worry about. I have 7 loving dogs ( 5 rescues) and my daughter would have a difficult time finding homes for them. 2 are huge 110 pound black Labs that look mean but they are really just sweethearts that love everyone. I have found people here in Texas with acreage that will take them, but no one will love and care for them as I do. So I want to keep them with me as long as I can. So I was just wondering what the symptoms are before I become unable to care for myself and my pets.

 
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