Re: Living w/cirrhosis
I'm sorry for your situation. My dad had cirrhosis from Hep C. The good news is that we think he contracted it in 1982 from a series of transfusions, but he lived until this year (27 years). He had cirrhosis for the last 16 years of his life. He was pretty sharp until he got hepatic encephalopathy, and then he went downhill pretty fast. He lived a good life, though. He decided early on that he didn't want a transplant, so his medical treatment was focused on chasing the symptoms of liver failure. He had several serious conditions that were pretty well controlled until about a year ago. His doctors tried to convince him to get a transplant, but he had hemophilia so he was scared of the surgery.
Have you thought about a transplant? If you find a good match, you can even have someone donate a small portion of their own liver (no harm to them) and the little piece you get can regenerate somewhat and function pretty well.
One of the main things to do is find an exceptional doctor who you are comfortable with. I think you said you live in NYC, so I would see if you can find a doctor at one of the teaching/research hospitals there. They will have to most "cutting edge" info about treatments, procedures, and medications.
I wish you the best. I'm not an expert, but I have learned a lot about liver disease in the last few years, so feel free to ask any questions and I'll let you know about my dad's experience. I was his caregiver at times and was always in the hospital with him when they were deciding which treatments to go with. He pretty much encountered almost all of the symptoms at some point.