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Liver & Pancreas Disorders Message Board
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Old 08-04-2009, 06:13 AM   #1
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chandrasweetums HB User
Unhappy pain after liver surgery

Just wondering if any of you have had surgery to remove adenomas on your liver & how long your recovery took?

I had the entire right lobe of my liver & gallbladder removed on 4/14. They made a cut from between my breasts diagonally down to my right side (about 12 inches long). It is now 16 weeks since the surgery & I am still having trouble with pain (pain pills have become my best friend - Vicodin or Tramadol). It is mostly on my right side, sometimes in the middle of my abdomen. They did a CT scan on 7/06 & the liver specialist says my liver is growing back nicely, nothing wrong with it. He thinks maybe I should see a GI doctor. I'm just wondering if this pain is normal? I'm almost resigned to the fact that I'm not going to feel good for awhile & I don't want to deal with any more tests or questions. I'm so tired of analyzing my symptoms & just want to feel better.

 
Old 08-05-2009, 07:39 AM   #2
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Re: pain after liver surgery

Ihad my surgery on 4/21 I had hand assisted laproscopy so my incision is only 6 inches. They removed a hemangioma the size of a large grapefruit off my left lobe, I still have pain in my liver but they told me I could have that for up to a year and some days its really painful almost makes me think this thing has grown back. And my incision is still sore some days are better than others but I also blame my 35lb 2 year old. I am also dealing with nausea its gotten better. I go tommorrow for my cat scan to see how it all looks. Laguna Iam so glad to hear everything went so good for you. Now hopefully you can get back to normal. Take care Chelle

 
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Old 08-10-2009, 01:11 PM   #3
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Re: pain after liver surgery

chelle,
Thanks! My surgery was 07/07. Was feeling pretty darn good by 2 weeks post. Tire very quickly --just standing to fix lunch can wear me out. All discomfort is to right of my incision (straight down my center to belly button) - feels like a roiling head pushing around. Incision itself does not hurt. I am being very good about not picking up anything other than a frying pan. No laundry baskets, no bags of groceries, no granddaughter lifting. July 29 I had post op visit. Everything looked good and doc pulled out tube and nasty bottle of bile. Did not hurt;However, that night I really started to hurt and for the next 8 days. If I sit perfectly still I don't hurt but the minute I move. This was a real set back. Now on August 9 feeling good again. Still have roiling to right of incision but not as much as before. When I get tired my right side kind of pulls. But again I only had a tiny tiny part of liver cut as tumor was sitting on top of liver --not imbedded into it. I drove for the first time on Friday --prior my husband or daughter drove me to hairdresser etc. Considering the invasive nature of this surgery and 10 days in the hospital I feel very very fortunate. I am very pleased with my doctor and the hospital. Incisiion healing beautifully --actually I don't think scar will be that bad. t

 
Old 08-10-2009, 03:31 PM   #4
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Re: pain after liver surgery

chelle,
Thanks! My surgery was 07/07. Was feeling pretty darn good by 2 weeks post. Tire very quickly --just standing to fix lunch can wear me out. All discomfort is to right of my incision (straight down my center to belly button) - feels like a roiling head pushing around. Incision itself does not hurt. I am being very good about not picking up anything other than a frying pan. No laundry baskets, no bags of groceries, no granddaughter lifting. July 29 I had post op visit. Everything looked good and doc pulled out tube and nasty bottle of bile. Did not hurt;However, that night I really started to hurt and for the next 8 days. If I sit perfectly still I don't hurt but the minute I move. This was a real set back. Now on August 9 feeling good again. Still have roiling to right of incision but not as much as before. When I get tired my right side kind of pulls. But again I only had a tiny tiny part of liver cut as tumor was sitting on top of liver --not imbedded into it. I drove for the first time on Friday --prior my husband or daughter drove me to hairdresser etc. Considering the invasive nature of this surgery and 10 days in the hospital I feel very very fortunate. I am very pleased with my doctor and the hospital. Incisiion healing beautifully --actually I don't think scar will be that bad. t

 
Old 08-10-2009, 03:33 PM   #5
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LagunaNiguel HB User
Re: pain after liver surgery

Chelle,
I was told not to lift more than 10 lbs for 3 months! Your little one is just too heavy for you to lift. Do you not have anyone who can help you? I never had any nausea. Dr put tube down my throat to be sure no nausea issues. What does your doc say? t

 
Old 08-10-2009, 03:38 PM   #6
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Re: pain after liver surgery

Chandra,
Hi. Removing entire left lobe --that's a lot of liver --my doc says takes a good 3 months to get your energy back if they cut out a good chunk of liver --so yours may take longer. Mine is shorter because they just shelled out the tumor --it was sitting on top of liver--not embedded into it. Sounds to me from other posts the more liver they cut out much tougher recovery. I would only be looking at those that had a whole lobe removed to try and make a comparison. yes --one does get tired of being sick . t

 
Old 08-11-2009, 10:22 AM   #7
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chandrasweetums HB User
Re: pain after liver surgery

Thanks for the response, Laguna. I'm really not struggling so much with a lack of energy. It's just the constant/daily pain that gets me down. I live by myself & don't have a significant other, children, or any friends around to offer support. The only person I have is my mother, who lives 3 hours away. She has been a Godsend through all this. I truly don't think I could have done it all without her. I'm waiting for a phone call to schedule an appointment with a GI doctor that my liver surgeon is referring me to. He thinks I don't use the bathroom enough & my right side pain could be due to that. I'm on 2 Senna tabs twice a day & Miralax every day, which keeps everything soft, but it hasn't changed the frequency of my bowel movements. Sometimes I will only 'go' once a week, other times once every few days; it varies. I was never regular before this all happened either, so I'm not sure that's the answer for my pain. My mother is convinced that adhesions are causing my problem. My pain is almost like a pinching, twisting, or pulling sensation. And when I walk around, it feels like I have a big 'bulge' there. But, nothing shows up on the CT scan, so who knows what it is? Hopefully the GI doc will shed some light on it.

 
Old 08-12-2009, 11:54 AM   #8
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Re: pain after liver surgery

Chandra,
Hmmm. My discomfort (not really painful) is just to the right of center --it feels like when you are 9 months pregnant and you can feel the baby's head pushing. And yes it pulls a bit. I felt this in the hospital post surgery. Doc said it is most likely your colon --it is trying to wake up. You will get far more pain from a colon that is not awake and working --you will get gas and pain. So doc stopped medication (i was on oral med at this point) and said I could have nothing. Would just have to accept the pain because the colon would cause me greater gas and pain than the surgery pain-- Sorry but bite the bullet and get past it. I had one rough night then it got better. I lilke you am not regular but am able to solve it thru diet. I was in the hospital 2 extra days because I could not go to the bathroom. I was shocked doc did not recommend a high fiber diet for me --I did it myself. Stewed prunes, oatmeal with raisins, fruit. Doc still had to give me stool softener a couple of times. As the majority of poop is dead blood cells and we put out a ton of dead blood cells after surgery and especially for as much as you were cut I would say going to the bathroom 2x or 3x per day would be critical. This is what works for me. I take a low glycemic index protein powder first thing in the morning. I mix with water and add in a scoop of greens (powder) and a scoop of fruit powder and a handfull of fresh blueberries and blend. I drink this. An hour or so later I have a bowel of Ezekiel cereal --it forms a protein with the combination of grains --I add 2 tsps of ground flax seed (cheaper this way--I grind in little cheap coffee grinder) and add a handfull of slivered almonds -slows the absorption of carbss. Then for snacks eat apples grapes etc. This keeps me regular. I have been sure that I have at least one really good size bm every day. Generally I have one large and a medium to small every day. Ideally a person should have 3 meals (not snacks) a day and therefore 3 bm.
go to your local health food store lilke Mothers Market --I am in orange county calif and tell them you need "greens" and "fruit" in powder form. Which is the highest quality.
In regard to getting you some help. I would call your church. If you do not belong to a local church call the one closest to you and tell them your situation. You cannot be lifting or pushing vacuums. You need help with housecleaning and grocery shopping -bags too heavy. It is exhausting to walk a market --my husband is doing all our grocery shopping. Just standing and fixing food for 15 or 20 minutes tires me out. I hope this helps --feel free to "talk" to me anytime. t

 
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