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Old 11-03-2009, 12:28 PM   #1
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my surgeon says he'll extend the sphincter of oddi what is that?

my surgeon says he'll extent the sphincter of oddi what is that? already had a sphinterotomy which caused a perforation

 
Old 11-05-2009, 10:54 AM   #2
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Re: my surgeon says he'll extend the sphincter of oddi what is that?

If you already had a sphincterotomy, then you should know your Sphincter of Oddi is the door valve to the pancreas. Your doctor sounds like he is going to extend his previous incision to make yours a bit wider.
Feel free to read my previous entry.

 
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Old 11-10-2009, 04:16 AM   #3
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Re: my surgeon says he'll extend the sphincter of oddi what is that?

Thanks for that, does anyone know if the extention is more risky than the sphincterotomy , will the risk be greater for perforation than before.

 
Old 11-11-2009, 07:36 AM   #4
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Re: my surgeon says he'll extend the sphincter of oddi what is that?

The risks are with the anesthesia and going into you every time. that doesn't change. But seriously to widen what was done originally might be necessary. It is clearly evident that people need their minor papilla opened too not just the major one done and if you haven't had this done yet, maybe you need to.

Go for a second oppinion at a more experienced pancreas hospital. However this procedure gives one the risk of getting pancreatitis. That's why you need the best of the best working on you, even if you have to leave Scotland and go to Italy for instance !

Nymphaea

Last edited by moderator2; 11-11-2009 at 08:55 AM. Reason: please do not post websites except as described in the Posting Policy

 
Old 11-12-2009, 07:36 AM   #5
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Re: my surgeon says he'll extend the sphincter of oddi what is that?

Having this condition has taken its toll on me, I have been suffering for two and a half years had 3 ercps, have had Botox twice and a sphincterotomy which caused the perforation and two months later a lap choly as a result of the sod damaging my gallbladder( no stones). It causes terrible pain every day and everything that I eat makes it worse. I am also a piper and can't manage to play my bagpipes any more, as this causes more pain and symptoms i.e. feeling sick, itching, fatigue, pain..., my skin is a very bad colour, so I look very unwell. Do you ever get better from this?, it seems to be very hard to treat. My life is on hold at the moment, I miss my old life very much.

 
Old 11-13-2009, 08:27 AM   #6
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Re: my surgeon says he'll extend the sphincter of oddi what is that?

Hi again,
Really sorry to hear you have gone through so much, but sister I feel Your pain. In Jan. 2005 the chief hospital professor of the GI dept started throwing around the words "Spincter of Oddi" DZ and the ER team before him "Biliary diskinesia" . In my case, I suffered horribly for 1 ms. also had no stones or blockages and that hida scan killed me. But as soon as the ejection fraction of the Gall Bladder was low enough to spell out trouble, the very same professor called me on the phone and said schedule it to be removed, its dying. (Maybe so, but I still think if they had just did an ERCP with a spincterotomy, it would have revived my gallbladder like CPR.) a squirting of bile into my "fossa" didn't tickle either and the hida scan forced on me at that time 24 hours after home from the surgery was the cruelest torture. As I was alone in a wheel chair waiting for the ER team to pick me up and slid out to the floor writhing in pain after it was done. Then somehow I did get better for 6 ms before the "Sphincter of Oddi" had me screaming with the worst pain in my life with what I was first calling "Ghost Gall bladder pain".
After 2 sphincterotomies of the minor and major papilla, 1 case of pancreatitis prior to stent removal and now 1 ms. into my most recent attack, I have learned < edited > that unfortunately this never goes away. Just gets maintained. I have found that Nuerontin(Gabapentin) completely takes the pain away and increased my ability to eat with out enzymes, but likewise I gained 10 lbs. which is really not very healthy for me. So, if you don't mind the possibility of weight gain, You might want to try it. It also had to be titrated up every 2weeks and as 4000mg. was the limit, per day, my body created a very quick tolerance to it.
You said your skin is bad, dryness and chafing is coomon when you can't eat or have no fat absorbtion, however what color is it ? Shades of yellow are immediate cause for concern and you must go to your ER if this happens.
NYMPHAEA
I believe I have also found another RX that can help the condition as I was researching on my computer last night and put some pharmaceutical principles together that I learned in med school with my own logic. I will let you know about this pharmacuetical if I start using it, I will be calling my GI today with my ideas. He is also a professor, but not a pancreas specialist. He understands my condition but ironically the best hospital in NYC's pancreas team does not. They understand pancreatic cancer, transplants and regular pancreatitis, but not this.

Last edited by hb-mod; 11-13-2009 at 11:13 AM. Reason: Please don't post disallowed websites as per Posting Policy. Thanks.

 
Old 11-13-2009, 01:17 PM   #7
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Re: my surgeon says he'll extend the sphincter of oddi what is that?

I responded in quite a lot of detail and apparantly also gave you a recco of another wesite that could help you. My info was censored and the reply was stricken from the record. I supposedly also received a "Point" against me for this rule infraction. This sounds like something out of the old Soviet Union. And certainly not worth my participation. Obviously the Dr. who started these message boards is unfamilar with a simple freedom we have here in the states called the freedom of speech. Perhaps they didn't have that freedom in the country where he is from and we should actually feel sorry for him. But there are too many other web sites dealing with this subject, for me to worry about this one, so good luck with finding me on the others.

 
Old 11-13-2009, 01:20 PM   #8
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nymphaea HB User
Re: my surgeon says he'll extend the sphincter of oddi what is that?

Hi again,
Really sorry to hear you have gone through so much, but sister I feel Your
pain. In Jan. 2005 the chief hospital professor of the GI dept started throwing
around the words "Spincter of Oddi" DZ and the ER team before him "Biliary
diskinesia" . In my case, I suffered horribly for 1 ms. also had no stones or
blockages and that hida scan killed me. But as soon as the ejection fraction of
the Gall Bladder was low enough to spell out trouble, the very same professor
called me on the phone and said schedule it to be removed, its dying. (Maybe so,
but I still think if they had just did an ERCP with a spincterotomy, it would
have revived my gallbladder like CPR.) a squirting of bile into my "fossa"
didn't tickle either and the hida scan forced on me at that time 24 hours after
home from the surgery was the cruelest torture. As I was alone in a wheel chair
waiting for the ER team to pick me up and slid out to the floor writhing in pain
after it was done. Then somehow I did get better for 6 ms before the "Sphincter
of Oddi" had me screaming with the worst pain in my life with what I was first
calling "Ghost Gall bladder pain".
After 2 sphincterotomies of the minor and major papilla, 1 case of
pancreatitis prior to stent removal and now 1 ms. into my most recent attack, I
have learned that unfortunately this never goes away. Just gets
maintained. I have found that Nuerontin(Gabapentin) completely takes the pain
away and increased my ability to eat with out enzymes, but likewise I gained 10
lbs. which is really not very healthy for me. So, if you don't mind the
possibility of weight gain, You might want to try it. It also had to be titrated
up every 2weeks and as 4000mg. was the limit, per day, my body created a very
quick tolerance to it.
You said your skin is bad, dryness and chafing is coomon when you can't eat
or have no fat absorbtion, however what color is it ? Shades of yellow are
immediate cause for concern and you must go to your ER if this happens.
NYMPHAEA
I believe I have also found another RX that can help the condition as I was
researching on my computer last night and put some pharmaceutical principles
together that I learned in med school with my own logic. I will let you know
about this pharmacuetical if I start using it, I will be calling my GI today
with my ideas. He is also a professor, but not a pancreas specialist. He
understands my condition but ironically the best hospital in NYC's pancreas team
does not. They understand pancreatic cancer, transplants and regular
pancreatitis, but not this.

 
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