I hope someone can help me, give me some advice or just some guidance to help me with my doctors!
2 years ago after several years of being generally unwell - nothing specific, but overwhelming tiredness, itchy skin, hot flashes, irritation and horrendous periods and pms I was diagnosed as Diabetic by my family doctor. She was unsure of the underlying reasons for this as I am young and not hugely overweight. I was sent for an ultrasound which found a huge mass on my liver.
Fast forward 3 months, and a 15cm adenoma was resected from my liver and I was put on insulin for Type 1 diabetes. All better.
Until my next follow up MRI, where is was discovered I have 'multiple' 2-4cm adenomas throughout my liver. I have been told these are inoperable due to the number and the locations and that they are slowly growing.
The consulant I have recently been seeing is clueless about hepatic adenomatosis and diabetes and any relationship between the two (there is one - I found some case studies on it!). He told me I was not to have children and that I will need a liver transplant.
I am generally well and have no real health issues (apart from the obvious) so this seems extreme to me..certainly at the moment anyway. Its now been 2 years since the first adenoma was removed and I am still ok.
Can anyone advise me on their management of adenomatosis so that I be armed with the relevant information at my next group of consultant appointments? I live in the UK and so far I am number 2 of the 2 adenomatosis diagnosis' made in the UK in the last 10 years and noone seems to have any idea how to treat it. Do you? Please pass on any advice you have so that I can discuss it with my doctors!!!
Thanks so much!!!