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Old 10-10-2010, 10:53 AM   #1
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A liver doctor is known as ?

What is a doctor with an expertise in Liver Disorders called?

Are there other areas of expertise which might include the liver? Gastroenterology for instance.

 
Old 10-10-2010, 11:22 AM   #2
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Re: A liver doctor is known as ?

My dad's liver doctor is a gastroenterologist.

 
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Old 10-11-2010, 09:58 AM   #3
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Re: A liver doctor is known as ?

there are the GI docs that work with people who have liver issues and also if trying to really Dx an upper GI type of possible issue too? but "just" a "liver doctor" would be called a "hepatologist". my son who has a liver transplant actually has had both types of docs working on him. at the beginning it was GI docs and now he sees a hepatologist for manitainace. but either type of doc would be good for a liver issue. it kind of depends upon what the actual problems are that determines the "who' in who one would seek out? a GI doc would be a good place to start if there is something wrong within the GI/attatched organs, upper or lower? good luck, marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 10-11-2010, 02:32 PM   #4
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Re: A liver doctor is known as ?

Quote:
Originally Posted by esker View Post
My dad's liver doctor is a gastroenterologist.
Thanks for the reply. I'll respond in more depth to "feelbad"

 
Old 10-11-2010, 03:06 PM   #5
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Re: A liver doctor is known as ?

I didn't want to bore anyone with the details and what might otherwise be the trivialities of my situation. And like most medical issues there always seems to be peripheral stories and incidents extenuating circumstances and god knows what else that makes it hard to listen to. At least that's the feeling that I get when I attempt to tell people where I'm at and how I got here.
I've been working on a reader's digest version aka abbreviated version so to speak that I can attempt to hammer out here. Let's see how I do.
1968 in the Army and Jaundice. Admitted to hospital ( US hospital in the middle east ) Put in isolation suspected of having hepatitis. Test come back negative. Give liver biopsy. Dx's Gilberts syndrome. Told it's benign. But it swells up from time to time and hurts. I tell the VA and the VA doctors this for years. In 71 they do another biopsy after fasting me for 3 days and called what I have Dubin-Johnson and or hyperbilirubinenemia. It seems that all three of these conditions effect bilirubin but otherwise are harmless. One doctor that I met at a party ( I bet they love when you talk about your ill at a party ) gave me a good analogy: suppose you have a noisy muffler. It's not "hurting anything" but it's noisy. Then your shock absorber breaks and is clanking around and you tell you mechanic My muffler is making more noise now than ever. He goes under the car, shakes it, see's that nothing is broken in the muffler and tells you "don't worry about it". Maybe it's not just your gilberts syndrome that is giving your problems. Well The VA primary care took the analogy and ran with it avoiding the issue of inflammation and pain in my liver.
Thursday I went to the VA ER where after 8.5 they told me that I might have a gall stone and might have a fatty liver and might have an ulcer. Stop taking ibuprophen, take a double dose of prilosec and take oxycodone for my pain. The didn't write a scipt of the oxy because I take it as needed for my back. So there was no idications as to how much oxy I should take.
I think I need to find my own liver doctor and stop going to the VA for this problem once and for all.
So is it the liver doctor that I should see?

Thanks for your reply

 
Old 10-11-2010, 04:14 PM   #6
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Re: A liver doctor is known as ?

Hepatologist is the general term

 
Old 10-14-2010, 09:58 AM   #7
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Re: A liver doctor is known as ?

i am not too certain what you mean by hepatologist being a 'general term"? a general term for what exactly? since i know it just IS a very recognized specialty, specific to being a "liver doc' than moreso a GI doc would be?? unlike certain other types of 'specialists in certain fileds can be when given the titile/label of 'specialist, such as with pain management? there IS no real actual 'specialist" at the med school level that is a recognized and taught that way type of "pain management specialist"(tho they ARE 'called that'), there IS hepatologist? just trying to understand your statement there, thats all. i DO tend to confuse more easily these days, lol.

okay steppen, i had to go thru some research here in order to fully understand exactly what gilberts actually even is for sure? i KNOW i have seen many people post/ask about gilberts here over the years but never really read the posts, mostly becasue i was not familiar with what it was? now i do know it is basically hyperbili that is created by too much unconjugated bili that is NOT water soluable and cannot therefore be 'desposed of' like conjugated just is, so the way too many old red blood cells are simply left, after they seep into your blood, floating around there and create your jaundice too, kind of the 'basics" there as i saw it anyway?

i did find MANY 'differentials tho that gilberts can just be thought to be that all kind of are the very same level of hyperbili that is not in and of itself a 'bad/hurtful thing to the person who has this, but one huge thing i DID see was that people who have gilberts are missing a particular enzyme "glucoronyl transferase", or its overall activity is very very weak? but ALSO despite the fact that the needed enzyme for tylenol and alcohol metabolization is NOT THAT GT enzyme, there seems to also be a deficiency of the needed enzyme "glutithione" that metabolizes tylenol and alcohol in people with gilberts as well? this would make you, if this IS what you definitely have(the jury i think is still out on this? esp if Dx was made wayy back in 1968)much more 'likely' to also develop certain toxicities to certain meds/ drugs like tylenol esp and alcohol too only becasue you would be much more deficient in your glut BECAUSE of having gilberts at all? do ya know what i mean? and of course any meds that also may require your missing enzyme/very reduced activity of actually to simply breakdown and metabolize certain other meds too.

exactly what 'form' of oxy are you taking? anything that actually contains any tylenol, i would ask to be switched to certain types that simply do NOT carry any tylenol as its base. there ARE other options usually used more in a pain management facility setting that do not contain ANY tylenol at all, like even a med called oxy IR or roxicodone or even oxycontin depending upon overall pain levels. i personally have to be on oxycontin and used to also take roxi for my BT med too. and NO tylenol products. you just really do have to be a bit more aware if this IS gilberts, of your tylenol and alcohol intake more than the norm. no one really knows, even without having gilberts, just exactly what their own individual 'sensitivity" is to tylenol and their liver actually even is, it is pretty individual with certain people who can actually suffer a toxic level actually taking the 'occasional usage limit of 4000mgs per 24 hour period over several days, and others who routinely take way more than that toow with no issues? its just somethoing no one truely knows til they suffer a possible toxic level event of some kind? just be careful with that stuff.

you simply have wayyy too much 'free' bili that cannot be converted from non water soluable form and into the needed water soluable that has to be broken down to this 'conjugated bili' in order for your body to simply dispose of ALL of your old red blood cells that get carried to your liver via the bloodstream within what is called albumen. the albumen simply carries what is the 'heme' part of what makes up our blood as 'heme- and globin'? if you look at any lab sheet where they run a full hepatic on you, you will actually see TWO bilis there? one is the direct-conjugated bili and the other is usually labled the 'total' number? that total includes BOTH the conjugated and ungonjugated bili levels in us and would more than likely BE the one that showed much higher in you just becasue THAT one does show both kind of the before and afters and whats left type of thing that was not able to conjugate and be gotten rid of?

if i were you, if you have ONLY been seeing basic 'primary' docs at the VA so far, is seek out a good group practice of gastroenerologists(GI)(out of the VA network at this point), to mostly find out just EXACTLY what it is you actually have for certain and what other possibles also need to be tested for and ruled out here since gilberts simply IS kind of a 'rule out' type of dx whenever a good reason for the hyper bili cannot be found kinda thing? its the very same type of dx that IS what MS and MANY other possible medical conditions and how people get labeled with them too? MS is also a 'rule out when nothing else fits' type of dx too? ya know what i mean?

you simply NEED a more of an expert in the whole GI here to have everything fully checked out and better defined right now. the one thing i also saw was that gilberts IS caused by genetics here too with a "recessive gene" that BOTH of your parents would simply HAVE to have been carrying in order for YOU to even end up with gilberts? i did find out that well over half the population actually carries this gene in their DNA too, but it would actually take another person with this gene and them having a child togehter in order for anyone to realistically even develop this(and not 'all" people who actually end up with both copies will ALWAYS even develop gilberts for some odd reason either?)? another name for gilberts actually is 'familial nonhemolytic jaundice" as i found along the way. how are your mom and dads bilis running? they may or may NOT actually even be affected or always running a bit higher than the norm too, but not have gilberts, just a wee bit higher bili than the national average ratios? it DOES vary quite a bit from what i just read.

i do hope this helped some. one other thing that your docs need to really look at is what is called the 'reticuloendothelial system' just to see HOW your overall body systems are actually breaking down old red blood cells to even begin with since this IS the very system that kind of 'governs" the overall breakdown of old red blood cells within various areas within our bodies as a whole? this just 'could' also be some level of problem "area' too, ya know? its just checking ALL potential bases here for anything that contributes to the problem. and in your case, this "reticulo system" IS that governing body then eventually to the liver. it simply is generating much more overall red blood cell destruction than your liver is able to fully conjugate so it can be gotten rid of thru the 'normal' channels, basically. so its either "there" or the liver.

but a good team of GI docs should really be able to fully give you some better answers than you have gotten from the military and the VA so far. everyone is simply entitled to actually KNOW for certain exactly what their body is doing/not doing and what the major problems are, ya know? good luck with this and please do keep us posted, marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-02-2011, 10:52 PM   #8
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Re: A liver doctor is known as ?

Hi feelbad!!...and Steppenwolf, I happenned to notice a post on the Military Boards re:Gilberts Syndrome. This man who had Gilbert's wanted to know if this was something that could keep him out of the army. Well my son's (who is now 21)pediatrician diagnosed him with Gilbert's a few years ago. Said it was no big deal. Just to make sure you tell any new docs or lab tech's that you have it because it can look like hepatitis and other liver diseases. The pediatrician just diagnosed him by routine lab work is how I remember it. Back to the poster on the Military Board...so I told him I didn't see why the army wouldn't accept him. However, this poster said his father WAS denied entry into the military during Vietnam(I think) because he too had Gilbert's. Anyways, after I posted there, I put "Gilbert's" in the search engine above and it brought me here, first. Very interesting info from you, Steppenwolf, and feelbad! Not sure I understand all of it. I have read up on it before in my old medical books when my son was diagnosed. But the info on the tylenol and alcohol that you wrote about feelbad is very interesting. Did you all know that Napoleon Bonaparte had Gilbert'sSyndrome? He did!...Battery's runing out...cya...janiee

 
Old 02-03-2011, 04:59 AM   #9
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Re: A liver doctor is known as ?

hi janiee. i can only imagine just what specific 'conditions or diseases" caused certain people to be denied entry into the mnilitary that far back since the overall research capabilities to even better 'define/REALLY understand' just what certian conditons even tuely were and how they could impact others as well was pretty much 'not actually known' real well? but time and good research really HAS been so crucial in dxing specifics in more disease processes and condtions too that just was not even a blip on the old screen back then but IS now kinda thing?

when ANY disease process is just NOT well understood, docs will tend to err on the side of what 'could' possibly occur instead of allowing someone with 'something' that could have the real potential to start an ongoing epidemic of something within such a close proximity "community" like sharing close quarters could simply do, if something simply WAS actually contagious? look at what a huge scarey niughtmare HIV and aids was like back in the early 90s and just how MUCH more we have learned about it with time, and testing that people WITH this condition have allowed themselves to just 'do" for the better good for others along the way, including actually creating newer meds that can keep the HIV from becomming full blown aids at all? when i was working as an emt/ff back then, and we initially 'heard' about aids, NO ONE actually knew back then in like the early 90s just what was even 'safe' for us to actually 'do' for any HIV positive patients, let alone full blown aids. like even DOING CPR using resperations delivered possibly mouth to mouth(ANY actual 'body fluids were considered to be for us,a real possible contamination)? so we were told to do ONLY compressions if we did NOT actually have a 'barrier mask' of some kind. and anyone who 'accidentlly got contaminated with ANY actual blood from anyone who was confirmed as even HAVING HIV occured, oh my god. was THAT ever a huge as deal too(and this was ONLY getting it ON skin and not a blood/blood contact).

thankfully we now DO understand A TON more than back then vs now. and these patients are now treated with the dignity of what ANY human being simply does deserve and not like a leper anymore. its amazing how much real difference occurs once people are no longer ignorant of realities, thru real hard facts stemming from solid research that come to light, ya know? that ugly fear of the unknown is all it takes for people to get a bit crazy and then hysteria kicks in too? just look back at the 'anthrax scare" post 9/11? and the insane amount of people who were actually buying cipro online or begging docs for this really nasty stuff that has soo many possible issues when used, but were willling to just hand it off like candy to their own children?? that one was seriously sick. but that did not stop people from diving in and doing stupid things either. yikes! marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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