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Old 01-09-2012, 01:04 AM   #1
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animalrescuer HB User
Chronic Pancreatitis/Sphincter of Oddi Dysfunction Pain and the ER

I have had Sphincter of Oddi Dysfunction for 8 years with so many attacks that it has ruined my pancreas and now I have Chronic Pancreatitis. I cant tell the difference in the pain, but I get attacks several times a day---even after having many ERCP's, Sphincterotomies, Stents, Nerve blocks, etc. Nothing has helped for any extended amount of time. My question is, has anyone else had issues with this and going to the emergency room while having an attack? Maybe it is just my hospital, but some of the doctors seem to be irritated---or maybe think that I am doctor shopping for prescription drugs. I guarantee that is not the case. I have a full bottle of Dilaudid in my purse that I refuse to take because I do not like the side effects these drugs cause. However, sometimes the pain becomes unbearable. I am often (about once every 2-3 months) put inpatient for a week or so to be put on iv fluids and made to be NPO for several days at a time, and also given pain medicine via iv at this time. The pain is very real, but I have dealt with doctors and nurses that dont treat me like they believe it is. It is bad enough to be in such excrutiating pain, but to also have doctors that have zero compassion makes it even worse. Does anyone have any suggestions on how to deal with this? It makes me afraid to go to the hospital when I need to.

 
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Old 05-21-2012, 09:03 PM   #2
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Re: Chronic Pancreatitis/Sphincter of Oddi Dysfunction Pain and the ER

Quote:
Originally Posted by animalrescuer View Post
I have had Sphincter of Oddi Dysfunction for 8 years with so many attacks that it has ruined my pancreas and now I have Chronic Pancreatitis. I cant tell the difference in the pain, but I get attacks several times a day---even after having many ERCP's, Sphincterotomies, Stents, Nerve blocks, etc. Nothing has helped for any extended amount of time. My question is, has anyone else had issues with this and going to the emergency room while having an attack? Maybe it is just my hospital, but some of the doctors seem to be irritated---or maybe think that I am doctor shopping for prescription drugs. I guarantee that is not the case. I have a full bottle of Dilaudid in my purse that I refuse to take because I do not like the side effects these drugs cause. However, sometimes the pain becomes unbearable. I am often (about once every 2-3 months) put inpatient for a week or so to be put on iv fluids and made to be NPO for several days at a time, and also given pain medicine via iv at this time. The pain is very real, but I have dealt with doctors and nurses that dont treat me like they believe it is. It is bad enough to be in such excrutiating pain, but to also have doctors that have zero compassion makes it even worse. Does anyone have any suggestions on how to deal with this? It makes me afraid to go to the hospital when I need to.
I just had a new procedure for SOD and have been pain and med free for 2 months. Let me know if you would like more info.

 
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Old 09-17-2012, 09:23 PM   #3
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Re: Chronic Pancreatitis/Sphincter of Oddi Dysfunction Pain and the ER

I understand ur pain, I"m suffering from the same thing. Im newly diagnosed and waiting for my refferal to pain specialist to come in. I go to the ER when its severe, but geez thats a bummer to have to go there for relief. Ive only been a couple of times, because I havent had it that long, but they ask about alcohol, and drug use, and when I tell them no I dont abuse those things, dont even drink, they seem like they dont want to believe it. I hate that the internet writes the primary cause as alcohol abuse that gives those of us whose cause is not that a harder time. So after a couple morphine injections the ER doc sent me home with Ten whole percocets, wow. If he only knew that it would take two or three at the dosage he gave me to even take the edge off. I dont think we should be put in a position to suffer from legitimate pain. Its like neglect to make someone with Chronic Pancreatitis pain to wait for relief. I also have RA, so it sucks. I really hope you find help for the pain with a doc that believes you and trusts you. I hope the same for myself. My only suggestion is to ask your pcp, or er doc for a refferal to a pain specialist so you dont have to rely on er visits for relief. Let me know how it goes with that. I would be interested in hearing from others whove had a similar fate to see what has worked for them. Pancreatitis is one of the top ten painful diseases, so I dont see why they would even blink, but maybe becuase thier just is so much narcotic abusers out there, but for us who have validation of it, naw, it should be a given. Hope ur feelin better.

 
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