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Liver & Pancreas Disorders Message Board
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Old 09-16-2012, 06:43 PM   #1
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jmsk HB User
Possible End Stage Liver Disease?

My husband has had 3 bleeds since Dec 2011, he has ascites, portal hypertension and varices, he tells me that he is eating, but I'm not at home during the day so I'm not sure, muscle wasting, jaundice, it appears that he is sleeping more and he has had white stools, bleeds and bruises easily. The doctors never want to say that he is in end stage, or decompensated liver failure, or stage four. Everything I've read says he is. Like so many other people I'm very frustrated with the doctors.
Is he in end stage and what kind of time does he have? I know he gets very frustrated with me hovering over him. Any information would be helpful!

Last edited by jmsk; 09-16-2012 at 07:54 PM.

 
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Old 09-22-2012, 01:52 AM   #2
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Re: Possible End Stage Liver Disease?

If he is being treated by liver specialist you should know his MELD score. That will tell you what level he is at. I had all of those symptoms for nearly two years before I was considered end stage and got my liver transplant.

I feel for you and your husband. I was rushed to the emergency room multiple times near death from internal bleeding or my lungs filling up with fluid. I got my transplant April 18, 2011. My kidneys were damaged and I almost lost them. I was in the hospital for over a month.

My liver disease, NASH, ruined my life, my marriage, my career, my sanity, and forced me into bankruptcy and foreclosure. Watch for psychological problems, the toxins that are not filtered out attack the brain. My wife left me less than 6 months after the transplant.

Now my anti-rejection drugs that can run $3200 a month are damaging my kidneys, causing osteopenia, high cholesterol and high blood pressure.

Look into different transplant boards for more help.

Good luck, Jim

Last edited by jim76180; 09-22-2012 at 02:17 AM.

 
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