Im new here, just found out that I have Chronic Pancreatitis with a fatty liver. It started with severe bloating after meals, and then progressed to severe pain, vomiting, nausea, diareaha, and what looks like mild jaundice. At first er visit they did cat scan showed normal results, and all blood work came back normal. They said enzymes sometimes show normal in cases of chronic pancreatitis. Anyways Mri, showed CP and fatty liver, so at least I got a diagnosis, and a referral to see a surgeon, who performs islet cell transplant with pancreatectomy. They say if you want to spare yourself from brittle diabetes, the islet cell transplant is an option for those who still have good cells, its usually in cases where they catch it earlier on, and for those who have not had any other surgicial procedures on thier pancreas.
Problem is I dont know if I qualify, or if insurance will cover that surgery. Ive been prescribed tramadol for pain, but its of no help, so they are referring me to pain specialist to see what they can do. Has anyone here ever had total pancreatectomy? If so, what was your expierence? Did it relieve the pain?
As far as pain management goes, what do they usually prescribe to provide relief? Ive been told pancreas does not get better from chronic pancreatitis, but worse, but that sometimes the pain goes away as the pancreas dies, basically. One concern is cancer, because Ive had that before, and Im hoping the Eus rules that out. Im not sure what role the fatty liver plays into all this, but I do have RA, and am hypothyroid. Another symptoms that I have is dark colored urine and gray bowel movements, which I assume is due to the CP. I havent seen the specialist yet so Im sure he will answer more of these questions, but the surgery is scary, the average stay in hospital is like 22 days from what I read.
So, this is my dilema, and it would be nice to speak to others who are dealing with a similar diagnosis.