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Old 01-07-2013, 02:39 PM   #1
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Location: sheffield yorkshire england
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freddiesmum HB User
Question fnh recurrence

Hi I have never posted before but wonder if anyone can shed any light on my concern.
I had liver resection in 2007 to remove a 10cm fnh.In summer last year I experienced the same pain I used to get before the fnh diagnosis & resection so went to the doctor.
I was sent for an ultrasound followed by an MRI which confirmed fnh had returned and the tumour was 2.6cm.I was told to wait until Dec when I went back to surgeon-he arranged for another MRI which I had last month and explained that if it had grown to 4cm or more I would have to have another resection straight away if not it would be "watch & wait".I have not yet had my follow up for results due to xmas but I rang and asked if anyone could tell me the size-basically so I know whether or not I am facing surgery.
Well a nurse rang me & said it is 4.5cm x 2.7cm-Never once have I been given more than 1 dimension before.The nurse said he could not help as he did not have my previous scan result to compare-so if the original 2.6cm is now 2.7cm-no problem but if the 4.5cm was the original 2.6cm I face surgery.
Can any one tell me please;
1.Is it at all possible for growth of 1.9cm in just 5 months?
2.when only one dimension is given to patient is it likely they would quote the smaller or the larger measurement
3.Has anyone ever been diagnosed fnh for this then to be re-diagnosed as adenoma?
hope someone out there knows more than me!!!!

 
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Old 06-29-2013, 01:16 PM   #2
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conalves HB User
Re: fnh recurrence

Hey there,
I'm just wondering what happened to you. My daughter has been diagnosed last week with a fnh very large. I wanted more information since there is not alot out there about large ones. Did yours grow? Did you have surgery?

 
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Old 06-30-2013, 03:55 AM   #3
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freddiesmum HB User
Re: fnh recurrence

Hi,I had surgery 1st time round in 2007.In summer last year I felt the same pain I had previously before surgery-went to docs,had ultrasound then MRI and was diagnosed that it had returned!!! I went to see surgeon (as my earlier question)who told me quite categorically that when my mri results came through if it had grown to more than 4cm it would be taken out and the op. would be immediate.When I did go for follow-up appointment it all became a bit strange-yes it had grown to more than 4cm but it was in a "tricky place" and at the moment nothing will be done.That was back in Jan.this year-I am having another MRI in the next fortnight so I will know more then.

What I do know from reading about fnh is;
1.normally these are no trouble at all.
2.They are only usually removed if very big which can press on other organs or are causing symptons e.g.pain.
3.4cm is not really classed as big,probably "average"
4.Resection to remove is a big operation but it is safe and your daughter would be fine.

Hope this helps if you want to ask me anything else please feel free.

 
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Old 07-01-2013, 06:31 AM   #4
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Join Date: Jun 2013
Location: Glen Allen
Posts: 2
conalves HB User
Re: fnh recurrence

Thanks so much. My daughter is also 6 months pregnant. So we are concerned how that interferes although the doctor said nothing would be done even after delivery. Hers is 10cm. We are going to a high risk specialist this week. Please let me know how it goes!

 
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Old 08-02-2013, 03:31 AM   #5
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Join Date: Jan 2013
Location: Sydney
Posts: 6
shell26 HB User
Re: fnh recurrence

I hope your daughter is going well in her pregnancy. I have a FNH as well and I want to have another baby. Has the FNH affected her pregnancy and how she will deliver the baby? What did the specialist say? I am a litte scared to have another baby because of it!

 
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Old 09-15-2013, 02:06 AM   #6
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Join Date: Jan 2012
Location: Bundaberg, QLD Australia
Posts: 28
brittanyaus90 HB User
Re: fnh recurrence

Quote:
Originally Posted by freddiesmum View Post
Hi I have never posted before but wonder if anyone can shed any light on my concern.
I had liver resection in 2007 to remove a 10cm fnh.In summer last year I experienced the same pain I used to get before the fnh diagnosis & resection so went to the doctor.
I was sent for an ultrasound followed by an MRI which confirmed fnh had returned and the tumour was 2.6cm.I was told to wait until Dec when I went back to surgeon-he arranged for another MRI which I had last month and explained that if it had grown to 4cm or more I would have to have another resection straight away if not it would be "watch & wait".I have not yet had my follow up for results due to xmas but I rang and asked if anyone could tell me the size-basically so I know whether or not I am facing surgery.
Well a nurse rang me & said it is 4.5cm x 2.7cm-Never once have I been given more than 1 dimension before.The nurse said he could not help as he did not have my previous scan result to compare-so if the original 2.6cm is now 2.7cm-no problem but if the 4.5cm was the original 2.6cm I face surgery.
Can any one tell me please;
1.Is it at all possible for growth of 1.9cm in just 5 months?
2.when only one dimension is given to patient is it likely they would quote the smaller or the larger measurement
3.Has anyone ever been diagnosed fnh for this then to be re-diagnosed as adenoma?
hope someone out there knows more than me!!!!

With my ultrasound they gave me just the one dimention, 5 i think it was. Then later with MRI's I was given three dimentions, 10 x 9 x 6. Was wondering much the same as you! Never ended up finding out which were which but I was given a CD of the MRIs and there was a measuring tool so it was good to work it out.

I had my liver resection Dec 2012 however the last few weeks I have been experiencing pain the side of my liver that had the mass. Was wondering what kind of pains you were getting? Just a dull pain, had any other syptoms returned? Did yours grow back in the same spot? How did you go with everything?

 
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