This is my first posting. I was just told yesterday (12/5/03) that I have cysts all throughout both lungs. On CT scan they showed up as round black circles of different sizes. They looked like black holes of nothing. I also have 2 pulmonary nodules. I also have a kidney cyst or lesion.
These are totally unexpected findings. My Orthopedic doctor was investigating right hip pain and a positive bone scan. The bone scan showed hot spots on my right hip and right 8th rib. He suspected stress fractures. Luckily they could find nothing with my hip or rib on CT, he suspects they lit up just due to a stress reaction from some bad body mechanics and coughing from a upper respiratory virus.
But unfortunately he found the pulmonary cysts, nodules and kidney cyst.
He being an Orthopaedic doctor doesn't have a clue. So now I have to schedule a CT scan of the abdomen to evaluate the kidney lesion/cyst. He suspects that's a normal finding. He's an Orthoaedic oncologist and he says the majority of patients he evaluates for cancer have a kidney cyst that is benign.
The pulmonary cysts are a mystery.
I also have to schedule an appointment with a Pulmonary specialist. I do not smoke or have any other lung problems. I do not have any symptoms like shortness of breath. I do get short of breath upon exertion, but I am extremely out of shape, do not exercise and have gained 25 lbs in the past year.
Has anyone else heard of pulmonary cysts that look like black circles? The biggest one was about the size of a quarter. The internet was not much help.
My doctor said the only way to see what's going on with the pulmonary nodules are to scan them again in several months to see if they have grown. He said they could have been there for a long time. He found one of the nodules and showed it to me on my CT scan. Our radiology department has gone digital and he could manipulate my scan on the computer. He could not find the other nodule (he had talked to the radiologist before he talked to me and this is the report he received from them).
He also had difficulty finding the kidney cyst, but we think we finally found it. There was a small shadow on my kidney that he thinks is the cyst or lesion.
Luckily I am the clinic manager for the Orthopaedic Department at a large university medical center and have access to every test and doctor known to man it seems.
I am just scared about what this means. Anyone with experience in these areas? Sorry this was so long.