I need help. I searched and found an older thread and posted, but decided to start a new thread.
About 5 months ago, I went into the hospital with right side pain. After 2 days of x-rays and CT's, it was determined that it was due to my gallbladder. The surgeon removed the gallbladder but there was mention that I could possibly have phenomena. I had had a cacky type cough for about 4 months.
The story goes as follows: I was sent home and I just couldn't recover. After 14 days, my primary care doctor called me and said that he and a radiologist was looking at an x-ray and that I needed to return to the hospital. It turned out to be that I had a very bad infection in my right lung....strep. I ended up with two chest tubes. A surgeon had tried to insert them with a local and cut on me three times before deciding that I would have to go to surgery to have them placed. After surgery, I ended up with a collapsed lung and was on a ventilator and in ICU for three days and then a total of 14 days in the hospital with the chest tubes. I felt like someone had ripped my back & right breast apart with barbed wire when they were removed. One had been placed through the back on around under my arm pit and then into my right breast and then into the lung.
I have continued to be very sore in all these areas since then. I didn't really feel as though anything was wrong until I returned to work after a 3 month period. I immediately started having shortness of breath and chest pain in my right lung area.
I just went to the lung specialist this past week and he wanted to rule out my heart before going any further. I still felt as though the pain and discomfort was coming from my right lung area, but he insisted that I have a stress test next week. But, before I left the doctor looked at my chest x-ray from a month before and called me back as I was leaving. I had another chest x-ray and then he compared them. He came back into the room and told me that the scarring from the infection had gotten lighter and then said that my diaphragm was out of place and was too high. Since I'm not a medical person, I didn't ask the questions that I should have, so I have been surfing the web to try and locate any information that I could about the diaphragm. After reading this about a paralyzed diaphragm, this seems like what has happened to me. If anyone is out there, would you care to reply. Deep down in my right lung area hurts very bad. Sometimes when it gets to a certain point, I have to hold the area to try to obtain some type of comfort. I can't sleep on my back. I'm still on for the stress test next week, but I just know that the pain is coming from the diaphragm. Is there any hope for this if it should turn out to be a paralyzed diaphragm?
Hi Susie2, I've been looking for info also about paralyzed diaphragm and found your thread was the most recent. So sorry to read all that you've been through. You sound like a strong person though. Well, I hope you didn't get that diagnosis after you've completed your medical tests. My husband has a right paralyzed diaphragm and is oxygen dependant after open heart surgery 18 months ago. He's only 51 yrs old. All medical test have ruled out any lung disease process. In fact we are learning his right lung is collapsing more because his diaphragm is rising higher. We also weren't given any explanation why this happened. In fact we feel all the MD's have just shrugged their shoulders and don't want to talk to us anymore. This is so frustrating and don't know where to turn. I think I'll be asking for a MRI or a CT Scan to rule out possible pressure on the phrenic nerve. Maybe we can help each other find resources or other studies being done in major medical centers to fix this problem.
Here's to hope
<Maybe we can help each other find resources or other studies being done in major medical centers to fix this problem.>
Thank you so much for replying. I am going back to the Lung specialist on Jan. 31.2005. I definitely want to know more about this. I have read about trauma being an issue when this happens. Of course as with your husband, I can see where he & I had trauma in these areas. It's involving my right lung area that had collapsed during the bout of pneumonia. Since I left the hospital after the gallbladder removal, my medical records (I went and bought them) I had pneumonia when the gallbladder was removed. I was discharged with NO antibiotics for the infection, which turned to the strep infection and eventually the collapsed lung. I'm telling you, the two chest tubes and the removal was trauma enough.
I plan on talking to these specialist instead of sitting there like a puppy dog and listening to him. I want to know the WHY'S...WHEN'S....HOW'S & what can be done about it.
I'm really sorry about your husband. Would you care to tell me what type of symptoms that he has or can he tell? I do have an ulcer and I can't tell if the knawing sensation that has gotten worse since this happened or what's the reason...another question.
Since my post, I have been diagnosed with cirrhosis and I've never took an alcoholic drink in my life. That specialist has done 10 different blood screens and I go back to him in March. I also have emphysema (never smoked in my life, had plenty of second hand type).
I hope we can help each other and please, please keep in touch.
Hi Suzie, I'd be happy to share my husbands symptoms. When he couldn't keep his O2 saturations with in normal ranges after his open heart surgery, a xray was taken which showed his diaphragm was elevated on the right side. When the radiologist asked to him to "sniff" and the diaphragm didn't move the radiologist said the diaphragm was paralyzed on one side. The nerve that controls the diaphragm is the phrenic nerve and now it's calimed it was damaged during his surgery. His surgery wasn't typical for open heart. While it was very invasive, he wasn't put on heart/lung machine which has been noted to cause damage to the phrenic nerve. Found that out after the surgery. We are at a loss. The lung specialist just sees the result and confirms what has happened but doesn't offer any hope for change. I continue to research and asking "what if". Like, what if a surgeon brings down the diaphragm, attaches it lower to make room for the lung to fully inflate. Sounds like it could work to me or it could be stupid. I feel it never hurts to ask. My husband is scheduled to see a surgeon this week so maybe I did mention something worth looking into. I'll let you know.
Now if I understand correctly, you see the doc on the 31st. Hope your diaphragm isn't paralyzed. A chest xray compared to one prior to this illness will also be helpful. I've read some people don't need additional O2 like my husband does when they've had phrenic nerve damage. How is your oxygen need? Are you often out of breath? Do you use O2 now? You are correct in not wanting to be a puppy dog. Advocate for yourself. Make them hear you and ask a multitude of questions. It's good to have someone go with you to also hear what is being said. Maybe the doc can do more lab work to assure the infection is gone. With your new diagnosis of cirrhosis and emphysema are you getting treatment? I can't believe you have to wait until March for results of the 10 blood screens. Hang in there, I think we will be able to help each other. I'll keep looking for your post.
Thanks for replying. Yes, I go back to the Lung doctor this Monday (31st). I have looked back over some of my medical records and noticed two mentions of the diaphragm being elevated on the right side. This was during my two week stay in the hospital in August. This is 14 days after my gallbladder removal and after I had been sent home. The radiologist called me at home and mentioned that I needed to come back to the hospital for them to check my Lungs??? I thought at the time....wonder what's wrong.
well, looking at my records as I mentioned before. The doctors had to have known that I had pneumonia during the gallbladder removal, it's mentioned on all the records. I got ahead of myself, but looking at both sets of records from the gallbladder stay and then the pneumonia stay when my right lung collapsed, this is where I have read that one of the chest tubes crossed the diaphragm area and then there is a mention about 4 days later that the diaphragm is in an elevated position. So, this was in August and it wasn't until early Jan. that I was even told about my diaphragm being too high. I think what ticks me off the most is the fact that the doctors sent me home after the gallbladder incident with no follow up on the pneumonia until about 10-14 days later. I feel as though, I went through all the rest because of this neglect.
When I returned to work after 3 months, I definitely had shortness of breath. This is when I went back to the Lung doctor, if I had not went back, I probably would not know about the diaphragm today.
I will definitely let you know what or even if the doctor answers some of my questions on Monday.
I don't have to have any O2 at this time.
Please keep and touch and the best to you and your husband.
I'm not a very happy person today. Several things have happened and it not good. The doctor on the 31st tried to tell me that my diaphram could have been placed in the upper most position for years. From everything that I have read it takes some sort of trauma for this to happen. The only trauma that I know about is the trauma from last summer. He more or less dismissed me as a patient. I don't know if these is due to all my questions or what. He spent the majority of his time telling me that the things that I was asking he couldn't find in my chart...wonder why?
Then on Wednesday, I received a call from the doctor concerning my liver and his office is referring me to Vanderbilt Hospital in NAshville for further studies of my liver and that he couldn't do anything for me...........Whewww then he mentioned that I needed to go on a liver transplant list...better to be at the bottom and work your way up as they monitor you. I just don't know where to turn. I have made another appointment for a second opinionconerning my liverliver.
Keep in Touch!
& Take Care.
I don't know what to say about your new situation. TRANSPLANT LIST!!!??? I think getting a second opinion about your new diagnosis of liver disease is a very good idea! These doctors are only scientists and look at numbers and parameters. If a lab test results fall into certain categories they assume for certain reasons. Has any biopsy been done on your liver? I know doctors don't like to biopsy livers but in some cases it's necessary. If you are still having complications with your diaphragm, then going to the larger hospital might be a good thing. Have that new doctor look your whole person. Is Vanderbilt Hospital a long ways from home? I understand that hospital is a well known medical school and produce very good doctors. Do you have someone to support you with this emotional rollercoaster? You can always post to me. When do plan to go? I have so many questions but what you need is someone to listen to you. Please stay in touch. I'll be thinking of you and I look often for your response.
Take care of you first,