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Old 04-30-2006, 12:31 AM   #1
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Interstitial Lung Disease

Has anyone heard of it or had any experience with it?

My mom was diagnosed with this after several misdiagnosis' and many different doctors.

 
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Old 04-30-2006, 07:02 AM   #2
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Re: Interstitial Lung Disease

ladypepper, it is a blanket term for ****, chronic asthma or emphysema etc.

 
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Old 04-30-2006, 11:27 AM   #3
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Re: Interstitial Lung Disease

Thank you for the reply. So it basically is just anything that is a lung disease? Okay... that kind of makes sense. They really don't know what is wrong.

Another question, your reply has "a blanket term for ****, chronic....." What does the **** mean? LoL Is it a secret? lol

 
Old 04-30-2006, 11:48 AM   #4
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Re: Interstitial Lung Disease

i guess they must have blanked out part of my reply,maybe it is a secret lol, i mean ****.

 
Old 04-30-2006, 11:49 AM   #5
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Re: Interstitial Lung Disease

they r blanking out the reply, check out the other threads on this board it might answer more of your questions.

 
Old 04-30-2006, 03:34 PM   #6
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Re: Interstitial Lung Disease

Sorry, I hate to disagree but Interstitial lung disease is not emphysema, bronchitis and asthma. That is **** chronic obstructive pulmonary disease. Interstitial lung disease is a restrictive disease and totally different in physiology. In **** you cannot get air out in restrictive diseased you cannot get air in. Sometimes people have both but ILd is less common and treated differently as the inhalers don't give much relief so usually on O2 and steroids are used though there are always new things. There are a number of restrictive diseases of which pulmonary fibrosis is the most common. If you search on line for ILD you will find more information. You mother needs a specialist in pulmonary fibrosis. They may want to do a biopsy to see what it is caused from as that sometimes determines treatement. It will show up well on a CT scan with contrast. It is a serious disease. Smoking will make it worse but probably did not cause it. it is caused sometimes by Rheumatoid arthritis, chemicals among other things.

 
Old 04-30-2006, 04:58 PM   #7
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Re: Interstitial Lung Disease

Canyondweller is right, interstitial lung disease is a restrictive disease that generally effects oxygen transfer in the lungs.

These forms of lung disease include: Pulmonary Fibrosis, Sarcoidosis and allergic alveolitis.

 
Old 04-30-2006, 08:17 PM   #8
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Re: Interstitial Lung Disease

Good grief, why would someone block out the most important medical term in this post. It is the most commonly used term for emphysema, chronic bronchitis and sometimes asthma. **** is the abbreviation for chronic obstructive lung disease and probably the only thing you will see on the diagnosis.

 
Old 05-01-2006, 12:02 AM   #9
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Re: Interstitial Lung Disease

That blocking thing is weird... is it possibly letter after b and n and o and c??
C
O
P
D
this was something suggested before but never confirmed.

Did that work?

 
Old 05-01-2006, 12:03 AM   #10
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Re: Interstitial Lung Disease

I don't know how I did it but I managed to post the same thing three times! Sorry!

Last edited by Ladypepper; 05-01-2006 at 12:13 AM.

 
Old 05-01-2006, 12:54 AM   #11
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Re: Interstitial Lung Disease

Well, you got it in there but that is not ILD but you can have both and they usually think of the "secret letter" one before they thing of ILD because it is more common.

 
Old 05-01-2006, 12:55 AM   #12
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Re: Interstitial Lung Disease

I think if you put a period after each letter it works but that really isn't how it should be written. I see on other posts that it is done that way.

 
Old 05-01-2006, 05:06 AM   #13
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Re: Interstitial Lung Disease

well i have ILD, i don't have fibrosis,ILD is what they call numerous lung disease, i have early emphysema , c o p d , and severe asthma , on all my reports it says ILD, but canyondweller is right your mom needs to see a speacialist.if you look it up on the internet it will tell you more about ILD.

 
Old 05-01-2006, 09:17 AM   #14
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Re: Interstitial Lung Disease

Thank you all for you replies. I hope you are doing well with you ILD marissamm. They put my mom on prednisone and it has really affected her badly... a lot of weight gain and she felt terrible. Now she is only on Immuran (SP?) and she is doing a lot better. In fact the last tests showed improvement. Thanks again!

 
Old 05-01-2006, 07:12 PM   #15
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Re: Interstitial Lung Disease

marrissamm, I don't understand why you say you don't have fibrosis. the other name for ILD is Interstitial Pulmonary Fibrosis. I didn't want to disagree until I looked over all the sites but everyone I looked at said that fibrosis is part and parcel of it. It is a thickening and stiffening of the lungs. You can have both C.O.P.D. but that is not ILD. If you have emphysema you have that you do not have ILD unless you have some fibrosis. It is called IPF and ILD interchangeably so I don't understand why they would write ILD if you have emphysema because that is not ILD at all. Asthma is basically in a class by itself as it considered a reversible disease which emphysema and ILD is not. I know you cannot give site addresses but I couldn't find one that did not say the same thing.

 
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