Hi I've never been on any message board so if I do this wrong-sorry. My mom has been recently diagnosed with lung disease, she called this morning and spelled it out but cant find it, think she may have copied it down a little wrong what she gave me was interspitial severe fibrosis, but looking that up I haven't found any thing, but some things that look sorta live this, do you know much about lung disease? Thanks Naomi777
My husband is 32 and has interstitial lung disease which is caused from rheumatoid arthritis in his lungs. He's had it since he was about 17 but doctors never figured it out until he was about 27 years old. He gets out of breath very easily, even just from laughing and he coughs a lot. Doctors have told him that he'll need a double lung transplant in 2 to 5 years. I think interstitial lung disease or pulmonary fibrosis (which doctors have also called his condition) can have many causes. His was from the arthritis. He is on Methotrexate to treat the arthritis and some other medications. He deals with it all really well though and has a positive attitude. I hope your Mom will be able to get the right help she needs.
Yes your Mother did write it down wrong she was probably very upset you did spell it right it is interstitial lung disease. I have it also along with fibosis that is scaring in the lungs along with hypertension which is high blood pressure in the lungs there are over 200 causes for these diseases most of which is from chemical exposure, smoking, and genetic inhereted. Autoimmune disease is also another big culprit which is what I have as well.
I was recently diagnosed and know how scared you and your Mother feel.
I was put on home oxygen 24/7 and will be put on medications soon as my testing is still going on. There are many tests that have to be done so Mom can get the best treatment for her illness. I have read many posts were lots of different meds work for people for a long time. Wishing you and Mom the best.
Hi, I am new to this and hope I am doing this right. I am 29 years old soon to be 30 in July, I was dignoised with pulmonary fibrosis relalated to RA two months ago. I am on o2 24/7. I was dignoised with RA in 1995 a senior in high school. It took a while it get undercontrol, but was able to to go on to collage and recieve a deerge in nursing and become a nurse working full time. Now i am applying for SSI because the MD said as of right now you are disable. That hurt for a time, but honestly I am ok about the whole thing, don't get me wrong I would love to be at work I love working. The thing that gets me is I fell like i am trapped in side or limited time when i am out due to the o2. Does any one have the same thoughts. Please let me know, i would like to here your suggestions.
rheumatoid arthritis, Interstitial lung disease, pulmonary fibrosis 
Re: rheumatoid arthritis, Interstitial lung disease, pulmonary fibrosis 
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