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Old 09-25-2008, 11:56 AM   #1
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carl2201 HB User
Lung nodules

What are they, what different kinds are there and which are the most dangerous?

 
Old 11-23-2008, 12:26 AM   #2
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Re: Lung nodules

Hi
I found out recently via CT scan that I have them too. They were found along with bronchiectasis. I was told they were not anything to worry about. I am not sure if I am comfortable with this, since my doctors have been incorrect diagnosing my chest issues for so long. Twice I was told I had pneumonia and treated w antibiotics. Then, the lung doctor decided I might not even have it!

 
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Old 11-29-2008, 08:09 PM   #3
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Re: Lung nodules

I recently was told that I had a lung nodule and granuloma. I have no idea what that means and that is why I am on this web-site so I can get answers. My lung nodule is 1.9 cm long. I was told that I need to see a lung docter and may have to get a biopsy to see if it is cancerous or not. THIS REALLY SCARES ME. I have been having chest pains, random breathing problems, nausea problems-no idea if all this is related to the nodule in my lung. I need someone to communicate with about this. I am afraid to tell my husband everything I am beginning to find out abou this. he can't handle stress and I am very easy to get stressed out. My back is so tender and sore. Please help and tell me what you know about this lung nodule business.

 
Old 12-06-2008, 08:01 AM   #4
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Re: Lung nodules

It's been a while since my last post. I read about the nodules and wanted to let you know I've been in the same position. Having a CTScan find something in the lungs then hearing you need to go to a lung doctor is frightening!!! My pulmonary doc watched my lungs for just over a year. I had a bronchopsy which was negitive. Also had CTScans every 3 months and the nodules stayed the same without growing. Then there was a new growth! I had to have a VATS biopsy. He didn't know what was growing fungus,cancer or any number of lung diseases. Eventually the results confirmed something called MAC/MAI. It is treatable with antibiotics over a long period of time. One of the side issues of it is bronchiecastis which I escaped because of the speedy diagnoisis and treatment. At least that's what the doc says! I still go to see him and the CTScan lady every 6 months and still have some nodules but so far no new growth. Good luck and keep posting.

 
Old 12-07-2008, 04:41 PM   #5
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Re: Lung nodules

Thank you for posting on here! I go to my first appointment tomorrow with a lung docter. I am very scared. But I know I need answers. I was wondering if you had breathing problems with your lung nodule? I gasp alot when I lay down. I can hardly breathe. My back also burns like fire. I get too hot and I get too cold. I am going to look up those terms you mentioned: bronchopsy and VATS biopsy~ Anything you can tell me is so appreciated.

 
Old 12-09-2008, 05:05 PM   #6
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Re: Lung nodules

Ok I am back...I went to my first appt. with the lung dr. It wasn't as bad as I thought it would be. I got a breathing test (which turned out to be poor). I got a breathing treatment...the nurse took 4 vials of blood...he said it was either a bacterial infection or cancer. He didn't think it was cancer but he said he had to rule it out. So I am scheduled for a pulmonary function test and a esophagus test. He thinks I have sleep apnea --he is also a Sleep disorder Specialist...so, I have to spend the night at the Sleep Apnea Center. Anyway, he seems to be knowledgeable enough and he gave me some hope in that he believed it wasn't cancer. I encourage anyone who has discovered to have a lung nodule to seek a Lung docter right away...

 
Old 12-10-2008, 11:11 AM   #7
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Re: Lung nodules

Good news you did okay at the docs. There are so many things that could be in the lungs it's mind boggling. The reason I was diagnoised with MAC/MAI is because I had bronchitis so often and the last bout didn't go away for weeks! So I was having trouble breathing and fevers and chest pain anyway. I also have mild emphysema that is controled by an inhaler. What is the esophagus test? I'm not familiar with that one. The breathing test I have every year and it's not gotten better but is not worse either! I know better won't happen so not worse is good news. It is good to look things up. Knowledge is power so keep learning!

 
Old 12-12-2008, 03:16 AM   #8
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celes01 HB User
Question Re: Lung nodules

The only reason I can come up with is the Esophagus test is for a Sleep Apnea. (He is a Sleep Disorder Specialist as well as a Lung Specialist.) I didn't have any complaints about sleeping but he asked many questions about my sleeping habits as well as questions about my Lungs. Can you tell me anything about a Pulmonary Function test? What kind of procedure is that? Are you injected with dye or breathe into a machine or what?
He also said he was going to check my imune system...blood work? I do remember reading (I was investigating into lung topics after I was referred to a lung docter) that it was usually caused by HIV if one had a bacterial infection. That was a scarey thought....He said it was either a bacterial infection or cancer. So...I am wondering if it is possible to have an infection WITHOUT having HIV?! If he tells me I do indeed have a bacterial infection---> Do I need to assume I have HIV? I have plunged into unknown waters here and I need a LIFE JACKET!!!!! Help!!!

 
Old 12-12-2008, 08:37 AM   #9
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Re: Lung nodules

YIKES!!! Try to relax a little bit and take a deep breath (as best you can). There are so many thing it could be in your lungs. I am absolutely not an expert but do know a few facts. It is true that MAC/MAI is often found in AIDS patients because they have a low immune system. BUT!! It is also just something that can be caught without HIV involvement. I have been tested for all sorts of things including HIV ,lupus,fibromylgia,and diseases I never heard of before! The last one the lab took 8 vials out of my poor skinny arm! What was discovered was that I have a low immune system. Not severe enough to have the injections but low. Most MAC patients do too. It is an NTM mycobacterium infection usually found in post menopausal thin white woman although can really infect anyone. It is NOT contagious and is acquired from air,soil or water. You might have something completely different but this is all I know about. As for the pulmonary function I don't know what your doc has for testing. Mine has this phone booth type thing and you basically just sit in there and breathe into a tube, hold your breath, breathe out and it's painless. Forget the life jacket! Put yourself on a nice raft and float in the sunshine! You aren't going under you have lots of support!

 
Old 12-13-2008, 02:06 AM   #10
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Smile Re: Lung nodules

THANK YOU for calming me down!! I guess I ventured a little too far into my investigative mode...too much information....I was freaking out! I was wondering why that he just didn't give me antibiotics for this right off--but--you explained that if the imune system was too low one could not take the injection shots, right? Did I paraphrase that correctly?
I was thinking, why should I keep on suffering if it is a bacterial infection? Antibiotics would not affect cancer one way or the other, would it? But I think what you are saying is that it depends on the imune system, thus, the reason for blood work...right? So if you have a weak imune system, what then? No medicine at all?
I am clearly not in the medical field and I just don't know too much about lung nodules. I appreciate that you are here because I have been FILLED with stress. Ok, here is a BIG question...In the case it turns out to be cancer, what then? Surgery? What is the probability of surviving that?! What is the procedure, take out the nodule or the whole lung? (I was too scared to even ask the docter. If there was a chicken icon here, I would have inserted it--!!)

 
Old 12-20-2008, 07:58 AM   #11
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Re: Lung nodules

The shots I meant are gammagoblin to boost the immune system not anything to do with lungs. Sorry Iwasn't clear and mixed my subjects. As for the nodules when I was finally diagnoised with MAC/MAI I did take antibiotics for almost 2 years. I had blood tests done every month. Still not sure exactly about that except that it would show if the infection was clearing up. Something in the liver protein. I had surgery in order to be diagnoised because the other tests were negitive and still nodules were growing.The docs didn't know what they would find or if I would still have both lungs intact afterward. It was frightening not knowing. Stressing out and worrying can lower your healing powers so try to relax. My mom used to tell me " No matter how much you worry about something it won't change what is so save your energy!" ASK ASK ASK! It's your body so make sure the doc keeps you informed about options. Have you gotten the blood test results back? Meanwhile enjoy today.

 
Old 01-03-2009, 06:58 AM   #12
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macca51 HB User
Re: Lung nodules

Just to maybe relax you a little I had my right upper lobe of my lung removed on 28.10.2008 lung cancer keyhole surgery and have acquired asthma for a short while I hope only.
You have not mentioned any symptoms of lung cancer that I have picked up.
I had only nausea, then vomitting and pain in my right hip, possibly arthritis.
Lung cancer has other more serious later stages. Vomitting may be the first real serious sign.
As someone told you the lung function test is nothing to worry about just breathing into a mouthpiece no injections nil.
Generally cancer is described as a cyst or tumour I am no Doctor but, never a nodule? Do not forget benign lung tumours can exist.
I was never told I had a nodule so the likelihood of it being cancer maybe slim.
I may be wrong but, hope this relaxes you.
I cannot answer much about your other symptoms because it is new to me.
Treat it all as being not much unless the Doctors tell you and thta way your body is not under stress.
Easy said than done. Everything is almost beatable.
Good luck.

 
Old 02-02-2009, 08:39 AM   #13
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jezzica23 HB User
Re: Lung nodules

I have the same symptoms, I also have had a cough since june 08, and I told my doc about the burning in my back, he looked at me like I was nuts...lol The only way I could think to explain it was like hearburn in my back. I had a chest xray and ct and found my mediastinal lymphnodes to be enlarged, went for a biopsy and was found to have histoplasmosis, a fungal infection yay, i go to see a lung specialist in march. I also go from extreme cold to being hot and sweaty. let me know what u find out Best of wishes

 
Old 02-04-2009, 12:47 PM   #14
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celes01 HB User
Re: Lung nodules

GOOD NEWS!! I did get the blood work results back. He said I did not have cancer and I did not have a bacterial infection! YAY! he said the lung nodule may or may not go away but in any case, it was nothing to worry about. YAY! I tell you what--i went through alot of stress when everything was actually okay! But one has to check things out when you're told you have a lung nodule. I did have a bad case of pneumonia once and I think that is what caused this nodule in the first place. I was not told by my primary care physician for 10 days that I indeed had Pneumonia! Then after 10 days I got medicine that I needed....Sometimes you have to stay on top of these docter offices--because they get so involved with so many patients and you get neglected and put on a shelf.

 
Old 02-08-2009, 01:16 PM   #15
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Re: Lung nodules

So very happy for Celes. I too have an anxious situation as I have been told I have multiple very small nodules in both lungs. Largest being 3mm. Been rechecked at 6 mo. with another CT and they say no change. Still, I am a wreck. My doc recommended I wait 1 year for recheck. He is not a pulmonologist. I think I am going to go to a specialist (Hosp. for lung diseases in Denver) in May as that is the soonest I can go. I will try and relax until then (fat chance).
I do celebrate your good news and wish you the best. I will post as my situation evolves.

 
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