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Old 11-16-2009, 07:00 PM   #1
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charlysmommy HB User
Nodules in lungs,,Scared!

I recently went to my local ER for abdominal and back pain. CT of abdomen was done and 3 nodules showed up so a CT of chest was ordered. The results said it could be related to noncalcified granulomata or areas of rounded atelectasis......ALL GREEK TO ME!!!! Since this began in late September I have had an increase in my white blood count, latest CBC was last Wed, Nov. 11. WBC count was 17,700, high platelet count, have had temperature anywhere from 99.9 -102.8 for 6 weeks and have lost 35lbs since July. I have Incredible fatigue, edema in my legs and feet. Headaches, blurred vision, muscle pain, shortness of breath, non productive cough. Have been to a pulmonologist and he wants another CT done on Wed. I was diagnosed with fibromyalgia 2 weeks ago, but my major concern is the big "C" I was a smoker for many years, quit 6 months ago. I feel like there is something systemic as well as lung issues going on but cannot find any answers. My PCP is doing his best I know, but I am really getting scared. They have tested me for Lupus as of today no results back.....I also have a nodule on my spleen and on my left kidney,,,I am just one BIG MESS!!!!!
Anyone have any ideas what I may be dealing with? Any comments, advise, or feedback will be GREATLY appreciated....Thanks so much for your time... S.

 
Old 11-17-2009, 07:01 AM   #2
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angelee12 HB User
Re: Nodules in lungs,,Scared!

I am having the same issues. My concern is that I have asthma and have NOT seen Pulmonolgist. Should I make an appointment or wait. I had a nodule in each lung. I am so confused I don't know what to do. PCP wants another x-ray on Dec 4th. He just kind of blows it off. My health has been going down hill the last 3-4 years. Should I take a proactive step and make appointment myself???
Goodluck, I know how you feel. We just got to have faith that all will be well. Have they decided a course of action for you. Keep your head up and don't loose hope.

 
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Old 11-18-2009, 02:21 PM   #3
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charlysmommy HB User
Re: Nodules in lungs,,Scared!

I would try to see a pulmonologist, my PCP referred me only because I insisted upon it. Was diagnosed today with Lupus, but the main concern is my lungs. Have another CT and MRI on Monday. PLEASE do NOT let this go, be aggressive this is YOUR body and YOUR life. I changed PCP's and have had better luck with this new one, but have a feeling they know more than what they are telling me, I think it is going to be a long road to recovery for me, and I am really scared of that.
Insist on seeing a specialist, you will NOT regret it......Please keep in touch.
Susan

 
Old 12-17-2009, 08:13 AM   #4
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Leigh3444 HB User
Re: Nodules in lungs,,Scared!

I am 66, and have had 2 CT scans & a Pet CT, I have a very small nodule in my lower left lung. I was supposed to have lung surgery today, but heard about a new treatment called 'Cyberknife', so I made an appt. to check it out. There are centers for this treatment all over the US, and it says no incisions and no anethesthia. Sounds great to me.

 
Old 01-09-2010, 02:09 PM   #5
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codycat HB User
Re: Nodules in lungs,,Scared!

I had weird nodules reading on my Ct scan and Pet scan....Had a hacky cough for 6-9 years and was diagnosed with allergy then asthma. My lung doctor ran a CDC blood panel that showed 57.4 percent Pigeon feces with assorted feathers..A bronoscophy showed no Cancer or tumors present, but I did have pus sacks....I WAS SO SCARED thru Nov and Dec....I am on Amoxicilin and go back to dr this March for another look-see....Try to stay brave....My guardian angel was definately watching over me.

 
Old 01-09-2010, 02:14 PM   #6
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Re: Nodules in lungs,,Scared!

DO NOT PUT THIS OFF...Get to a lung specialist. I had a dry hacky cough, x-ray showed swollen nodules. Had CT scan, PET scan, none confirming Cancer so I had a CDC/diff blood panel and a bronoscopy....GUESS WHAT, NO CANCER, but my CDC panel showed 57.4 percent Pigeon Feces with assorted feathers. Pigeon breeders disease that I got from pigeons back in 1981 when I worked for Shf department and we were housed ina old victorian house back then....You need to track your problem down. Don't be afraid....Nov and Dec of 2009 were a nightmare for me. God Bless

 
Old 01-10-2010, 05:27 AM   #7
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Leigh3444 HB User
Re: Nodules in lungs,,Scared!

My Pulmonologist/Critical care Dr. wants me to have my nodule removed since it 'lit' up on the pet scan. Had surgery scheduled, then heard about the 'Cyberknife' Treatment, so postponed surgery and made appt. to check that out. My problem, they need to do a biopsy first, and that is what I'm trying to avoid since I have an 'air pocket' right beside the nodule. If they did the needle biopsy and missed the nodule and hit that, my lung would collapse and they would have to put a chest tube in. Also, at the cyberknife center they told me that a needle biopsy is only 95% accurate. If they miss the nodule, you'd get a false reading, so I have decided to just go ahead and have the surgery to get 'it' removed. That way if it is cancer, they will take out what they need to and check lymph nodes in the area and go from there. If it's not cancerous, they will just remove the nodule and that will be it. You should definitely see a pulmonologist. I waited almost a month for my Pulmonologist to make me an appt. w/surgeon, and finally ended up calling and making my own appt. This way I will know for sure if it's cancer or not, and whichever way it goes, the nodule will be removed.

Say your prayers.

 
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